Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for September 2022

Never stop living!

IRELAND September 2022 Ashford Castle WHAT A RIDE!

Summergold2

•2 years ago

10 Replies

Good news update

Hello, ladies, I wanted to share the good news with you because I know how important it is to see positive stories in this amazing community. Today we got my...

Hello, ladies, I wanted to share the good news with you because I know how impo...

Uniquem

•2 years ago

9 Replies

BRCA1

I've just been told I'm brca1 positive but as yet haven't been given any information. As per usual my minds working overtime and I can't stop worrying. Can...

I've just been told I'm brca1 positive but as yet haven't been given any informa...

Zelam

•2 years ago

16 Replies

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NIRAPARIB

Hi there everyone. It was great to get replies to my query about diet after bowel obstruction. Now I have another question - I am (hopefully, bloods...

Hi there everyone. It was great to get replies to my query about diet after bowe...

Lilyada

•2 years ago

11 Replies

bleeding

5 years ago upon diagnosis of OC, I had a full Hysterectomy and a round of paclitaxol and carboplatin, 3 years later had chemo again but didn't work, been...

5 years ago upon diagnosis of OC, I had a full Hysterectomy and a round of pacli...

Melnie

•2 years ago

17 Replies

Wound care

Hi lovely ladies, I had my surgery on 14th and recovery was going really well. Staples out on day 13 wound looked lovely and healing well. Later the same day I...

Hi lovely ladies, I had my surgery on 14th and recovery was going really well. S...

verityann

•2 years ago

8 Replies

Hot flushes

Hi. The last 4 months i have been getting really bad uncontrollable flushes. I had an ovarian debulking in August 21 so assume its linked to the menopause but...

Hi. The last 4 months i have been getting really bad uncontrollable flushes. I h...

Craftyperson1

•2 years ago

4 Replies

Advise on post op pain

Hi all,👋 Had my full debulk on 5th September and cut from pubic bone to sternum, also had lymph behind my intestines removed by the amazing prof c, question...

Hi all,👋 Had my full debulk on 5th September and cut from pubic bone to sternum...

Newbery3

•2 years ago

24 Replies

Concerned

Has anyone heard from Sue7777 in the past ten days? I knew she was back in hospital 2 weeks ago & am worried about her. We have been in pretty regular contact...

Has anyone heard from Sue7777 in the past ten days? I knew she was back in hospi...

LochLevenLass

•2 years ago

2 Replies

Stomach problems

I had my hysterectomy last July and then six sessions of chemo which finished last November. Since February this year I have been taking Niraparib and not been...

I had my hysterectomy last July and then six sessions of chemo which finished la...

Jingles6

•2 years ago

1 Reply

HIPEC surgery and Avastin for one year any similar case?

Hi, so I had a big recurrence in the peritoneum on 2021, first diagnosed in 2019, stage 1A fallopian tube cancer, did all the debulking surgey and chemo. As it...

Hi, so I had a big recurrence in the peritoneum on 2021, first diagnosed in 2019...

Marylight

•2 years ago

4 Replies

Latest PARP study

Anyone read this? What does it mean for OC patients. Sorry cant link but something called ASCO, have published the report. It seems to suggest Parps may not...

Anyone read this? What does it mean for OC patients. Sorry cant link but somethi...

Rosebine2

•2 years ago

5 Replies

It's spread to liver and bones. Any advice?

Good morning friends. @I was two treatments in to a clinical trial but the CAT scan yesterday discovered lesions in the liver, bone metestases and some...

Good morning friends. @I was two treatments in to a clinical trial but the CAT...

Riverflo

•2 years ago

4 Replies

Bilateral salpingo-oophorectomy in late menopause

I had a bilateral salpingo-oophorectomy 3 days ago. I am 74 and had my menopause 25 years ago. I had a 5cm left ovarian cyst which has recently developed...

I had a bilateral salpingo-oophorectomy 3 days ago. I am 74 and had my menopaus...

Jennifer-Lee

•2 years ago

8 Replies

chemo advice

I’m due to see my oncologist next week as my ca125 is rocketing. Ive got HGSOC , went straight from first line (carbo&taxol with debulk) to 2nd line (weekly...

I’m due to see my oncologist next week as my ca125 is rocketing. Ive got HGSOC ,...

Horsesrock

•2 years ago

18 Replies

Living with Ovarian Cancer Podcast

Hello everyone. me again 🥰 The next episode of “Living with Ovarian Cancer Podcast “ is out now!!! In this episode I talk to Jo, who describes how she...

Hello everyone. me again 🥰 The next episode of “Living with Ovarian Cancer Po...

Levanah

•2 years ago

2 Replies

Serous borderline tumor

Hi ladies, Where to start? I had surgery on September 16th - initially started as laparoscopic removal of fallopian tubes and left ovary (with a 5cm cyst)....

Hi ladies, Where to start? I had surgery on September 16th - initially started...

kristinaapril

•2 years ago

7 Replies

aliftus yrial

hi , Is anyone on the Aliftus trial ? If so , how are you getting on ? x x

Lookingahead

•2 years ago

11 Replies

Bowel obstruction

Good morning lovely ladies! I rarely post but am so grateful to you all for unseen support at this challenging time for us all. After debulking in March I am...

Good morning lovely ladies! I rarely post but am so grateful to you all for unse...

Lilyada

•2 years ago

14 Replies

Recurrence

I’ve just found out I’m definitely facing my first recurrence. Diagnosed in Aug 2019 interval debulking surgery then 2 years on Olaparb finished May this...

I’ve just found out I’m definitely facing my first recurrence. Diagnosed in Aug ...

Purplerose12

•2 years ago

26 Replies

Confused

any one have every symptom of havin a cyst to be told its a problem with the bowels

any one have every symptom of havin a cyst to be told its a problem with the bow...

Bambi133

•2 years ago

8 Replies

Have you found a way to cure/improve your peripheral neuropathy?

Hello ladies, I previously posted a message asking about foot massagers or foot spas - best ones to use? I see that some people have also mentioned that...

Hello ladies, I previously posted a message asking about foot massagers or foo...

Meridian14

•2 years ago

12 Replies

Helpful ways to relieve peripheral neuropathy. Ideas welcome please.

Hello lovely ladies, For the past 6 weeks I have been having terrible neuropathy in my feet and hands. I have been prescribed Pregabalin and i'm having to...

Hello lovely ladies, For the past 6 weeks I have been having terrible neuropath...

Meridian14

•2 years ago

2 Replies

Partners with mental health problems

I haven't wanted to post this question for ages as it feels disloyal but I know all you lovely ladies don't judge and will hopefully have some good advice. My...

I haven't wanted to post this question for ages as it feels disloyal but I know ...

Zelam

•2 years ago

23 Replies

Completing your bio on this forum

I know with the journey that we are all on due to our diagnosis it is our decision which friends we talk to about what we are going through but what I find a...

I know with the journey that we are all on due to our diagnosis it is our decisi...

SarahBa

•2 years ago

3 Replies

Early stage OC diagnosis & Radical hysterectomy at 37 - terrified. Can anyone give me some positive words/experiences x

I had a giant cyst, ovary and Fallopian tube removed. A CT scan with dye and bloods for tumour markers all showed as normal. But the biopsy showed stage 1a...

I had a giant cyst, ovary and Fallopian tube removed. A CT scan with dye and blo...

Katieannelouise

•2 years ago

20 Replies

Living a long time with late stage Ovarian/peritoneal cancer

Hello All... I hope so many people are as well as they can be. It's a long time since I've posted. Mostly, it's because of the grief I've felt over losing...

Hello All... I hope so many people are as well as they can be. It's a long ti...

TinaB1

•2 years ago

9 Replies

Hi everyone

I would like to thank everyone for their advice, support, kind words and hugs. I would like to thank everyone of you amazing ladies and to Ovacome. Everyone...

I would like to thank everyone for their advice, support, kind words and hugs. I...

SEckett

•2 years ago

Be the first to reply

hi everyone ,

thank you so much for support , advice and kind works. I will be contacting Macmillan and the mental health team to see what they will do for me. Sending you...

thank you so much for support , advice and kind works. I will be contacting Mac...

SEckett

•2 years ago

Be the first to reply

Counseling Support

I was wondering what experience anyone has had with counseling? I’m coming up on a year NED, which I’m thankful for but have been experiencing increased...

I was wondering what experience anyone has had with counseling? I’m coming up on...

Saintgermain

•2 years ago

14 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for September 2022

Never stop living!

Good news update

BRCA1

NIRAPARIB

bleeding

Wound care

Hot flushes

Advise on post op pain

Concerned

Stomach problems

HIPEC surgery and Avastin for one year any similar case?

Latest PARP study

It's spread to liver and bones. Any advice?

Bilateral salpingo-oophorectomy in late menopause

chemo advice

Living with Ovarian Cancer Podcast

Serous borderline tumor

aliftus yrial

Bowel obstruction

Recurrence

Confused

Have you found a way to cure/improve your peripheral neuropathy?

Helpful ways to relieve peripheral neuropathy. Ideas welcome please.

Partners with mental health problems

Completing your bio on this forum

Early stage OC diagnosis & Radical hysterectomy at 37 - terrified. Can anyone give me some positive words/experiences x

Living a long time with late stage Ovarian/peritoneal cancer

Hi everyone

hi everyone ,

Counseling Support

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