Posts - My Ovacome | HealthUnlocked

My Ovacome

18,675 members•20,544 posts

All posts for November 2018

Good news I think

Hello lovely people, I have just had a call from the hospital to say that a week after I had a magnesium infusion my levels for both magnesium and iron have...

Hello lovely people, I have just had a call from the hospital to say that a week...

Tay100

•6 years ago

8 Replies

A Holiday Miracle??

Hi all, last time I posted, I mentioned my mom's CA-125 going from a low of 6, to an astounding 2,512 in just five weeks time. That was 2 weeks ago. She just...

Hi all, last time I posted, I mentioned my mom's CA-125 going from a low of 6, t...

ssjmichael

•6 years ago

14 Replies

OCTOVA TRIAL

Hi everyone. I have been into clinic today for my CT results and it is as I thought the bugger is back. I finished chemo in August carbo taxol for my second...

Hi everyone. I have been into clinic today for my CT results and it is as I thou...

Colman

•6 years ago

8 Replies

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Antarctic Adventures

Hello lovely ones, For those that know me, you’ll know that I’m always up for an adventure. Even after my DX in 2016 & 3 weeks after my second op in 6 weeks,...

Hello lovely ones, For those that know me, you’ll know that I’m always up for a...

Mrs_Atko

•6 years ago

32 Replies

Side effects

Hi everyone, I just wanted to ask has any one had Taxol for sixteen weeks and the results of ca 125 are bouncing around the 65 64 66 67 back down to 65,...

Hi everyone, I just wanted to ask has any one had Taxol for sixteen weeks and th...

Menaiw

•6 years ago

4 Replies

HRT or not?

Hello Lovely people, what's the consensus on whether to take HRT. I have lost three three immediate relatives to OC. I don't have the BRAC 1 gene. Tibby

Hello Lovely people, what's the consensus on whether to take HRT. I have lost ...

TibbyBaker

•6 years ago

10 Replies

MASSIVE SHARE: Enter At Your Own Risk! (and thanks for reading.)

Thank you all so much for your responses to “It’s back.” I will do individual responses to each of you, but also feel compelled to address you as a community....

Thank you all so much for your responses to “It’s back.” I will do individual re...

CynD

•6 years ago

23 Replies

Rotterdam

Hi Ladies So after 6 doses of weekly taxol my CA-125 is in the 7000s and clearly doing nothing ! Today the Rotterdam regimen has been mentioned - I just...

Hi Ladies So after 6 doses of weekly taxol my CA-125 is in the 7000s and clearly...

2mini2

•6 years ago

9 Replies

Mrsf49 Fiona sad news

Hello ladies, I’m sorry I haven’t posted much but my sister Fiona did and was so grateful for your help and support over the last months. Sadly Fiona lost the...

Hello ladies, I’m sorry I haven’t posted much but my sister Fiona did and was so...

Sallyr3311

•6 years ago

32 Replies

Use Savoo.co.uk and donate free pennies to Ovacome!

Hi ladies, By chance whilst on a UK Ovarian Cancer research site (Admin - have I missed an announcement about this?) I came across a site that you use and it...

Hi ladies, By chance whilst on a UK Ovarian Cancer research site (Admin - have ...

Emsymits

•6 years ago

1 Reply

Madeline Duncan

Dear all This is Phillip Duncan, Madeline’s husband. It is my sad duty to inform you that Madeline passed away peacefully on Monday evening. Her kids and big...

Dear all This is Phillip Duncan, Madeline’s husband. It is my sad duty to infor...

Hertsmum

•6 years ago

61 Replies

Crazy name switch

When I post, it posts as Grammyjill. When I reply to a post, it posts as Mommoo65. I am confused why it switches like that. I started here as Mommoo65 over 3...

When I post, it posts as Grammyjill. When I reply to a post, it posts as Mommo...

grammeejill

•6 years ago

2 Replies

Taxol groin swelling

I wonder if anyone has experienced their groin swelling and being uncomfortable whilst being on weekly taxol 3rd line chemo. I guess you all know what I am...

I wonder if anyone has experienced their groin swelling and being uncomfortable ...

Mlowery

•6 years ago

2 Replies

Has anyone heard from Kryssy?

I think her last post was about the car accident and then another from one of you who said she was just staying quiet and healing. I think of her often.

I think her last post was about the car accident and then another from one of yo...

Mommoo65

•6 years ago

11 Replies

Had a 2nd Opinion at the Christie, still the same response. Has any one used COC protocol?

Still the same view, inoperable and incurable. Now terminal with 12 - 18 months. Soft tissue ewing sarcoma in my colon with mets to the peritoneum and one on...

Still the same view, inoperable and incurable. Now terminal with 12 - 18 months....

Blondie75

•6 years ago

27 Replies

Spamming

Dear All I was away last week and returned today, so I'm really sorry to see that there has been a problem with spamming while I've been away. It is essential...

Dear All I was away last week and returned today, so I'm really sorry to see th...

OvacomeSupport

Partner•6 years ago

9 Replies

HI Lily -Anne How are you

Hi La ,Just like to hear how you are ,post if possible if you can't, just like you to know thinking of you ..Take care Lorraine xx

Hi La ,Just like to hear how you are ,post if possible if you can't, just like y...

lorraine71-Australia

•6 years ago

13 Replies

Chemo delayed again as I’m 0.7 neutrapenic

Hey has anyone had their chemo delayed with low white blood cells? My chemo was cancelled last week as I was 0.6 and After hearing I’ve a tumour on my...

Hey has anyone had their chemo delayed with low white blood cells? My chemo was ...

NIKKibailie

•6 years ago

13 Replies

Life extension

Still on my COC repurposing drug trial & just saw this from October this year. Interesting. Sorry I can’t seem to post a link on this site, Doh! Screenshot shd...

Still on my COC repurposing drug trial & just saw this from October this year. I...

Sherrym

•6 years ago

6 Replies

Gamma-glutamyl Transpeptidase? (GGT test)

I've realized more and more how important it is to be my own advocate and I also like to think of myself as a bit of a medical sleuth :) so hoping for...

I've realized more and more how important it is to be my own advocate and I also...

Lgottenbos56

•6 years ago

4 Replies

BLACK FRIDAY!

I bought a half price handbag that I have had my eye on for some time, it has 3 compartments with plenty of space for all the junk I seen to lug around! ☺ and...

I bought a half price handbag that I have had my eye on for some time, it has 3 ...

Hidden

•6 years ago

34 Replies

Help I’ve a new tumour while on chemo clear cell adenocarcinoma aged 40

Hey im 40 and have had 2 rounds of Carbo and taxol. I had a full surgical removal in September( hysterectomy etc after stage 1c ovarian cyst removal in...

Hey im 40 and have had 2 rounds of Carbo and taxol. I had a full surgical remo...

NIKKibailie

•6 years ago

17 Replies

End of chemo

I am sure many of u saw the Times mag yesterday, Saturday 24/11/18. End of chemo? It’s all about immunotherapy & it so encouraging!

I am sure many of u saw the Times mag yesterday, Saturday 24/11/18. End of chemo...

Sherrym

•6 years ago

10 Replies

WONDERFUL NIGHT

I am on watch and wait at the moment,due to see the oncologist in 10days time to see if I need to start treatment again. I have just had the most wonderful...

I am on watch and wait at the moment,due to see the oncologist in 10days time to...

dryden1

•6 years ago

8 Replies

Stop pursuing treatment, or weekly taxol

This is the latest options my oncologist put to me this Fri. I'm hoping you lovely ladies will help with your wonderful perspectives and provide any close...

This is the latest options my oncologist put to me this Fri. I'm hoping you love...

Nicyellow

•6 years ago

11 Replies

Decisions decisions...? Help!

Hello friends... just need your thoughts and any advice please. I have finished 18 weeks of Taxol but sadly cancer is off and growing again despite the half...

Hello friends... just need your thoughts and any advice please. I have finished ...

Hopefulgal1

•6 years ago

28 Replies

The stoma saga continues .........

After my last post re bloating, I went to see the stoma team. They tried to irrigate the stoma but it ended up coming out of the wrong hole!!!! ( basically in...

After my last post re bloating, I went to see the stoma team. They tried to irr...

Eriksendi

•6 years ago

4 Replies

It's back.

First, the good news: The results of my 1 year post surgery colonoscopy show no colon cancer. Unfortunately, the results of my 1 year post surgery...

First, the good news: The results of my 1 year post surgery colonoscopy show no...

CynD

•6 years ago

57 Replies

Bloating

Hello All Lovely Ladies. Great sibject to discuss: bloating... I am 6 months post Carbo Paclitaxel due to stage 1a mixed epithelial origin ca. I am freaking...

Hello All Lovely Ladies. Great sibject to discuss: bloating... I am 6 months pos...

MartaCiom

•6 years ago

9 Replies

I’m still here. Been given some hope.

Hi lovely ladies (and gents) How are you all? I’ve not been here a while but did read all your lovely messages from my last post. Thank you all so much. I’m...

Hi lovely ladies (and gents) How are you all? I’ve not been here a while but di...

Suzanne333

•6 years ago

59 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for November 2018

Good news I think

A Holiday Miracle??

OCTOVA TRIAL

Antarctic Adventures

Side effects

HRT or not?

MASSIVE SHARE: Enter At Your Own Risk! (and thanks for reading.)

Rotterdam

Mrsf49 Fiona sad news

Use Savoo.co.uk and donate free pennies to Ovacome!

Madeline Duncan

Crazy name switch

Taxol groin swelling

Has anyone heard from Kryssy?

Had a 2nd Opinion at the Christie, still the same response. Has any one used COC protocol?

Spamming

HI Lily -Anne How are you

Chemo delayed again as I’m 0.7 neutrapenic

Life extension

Gamma-glutamyl Transpeptidase? (GGT test)

BLACK FRIDAY!

Help I’ve a new tumour while on chemo clear cell adenocarcinoma aged 40

End of chemo

WONDERFUL NIGHT

Stop pursuing treatment, or weekly taxol

Decisions decisions...? Help!

The stoma saga continues .........

It's back.

Bloating

I’m still here. Been given some hope.

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