Posts - My Ovacome | HealthUnlocked

My Ovacome

18,388 members•20,445 posts

All posts for November 2020

Online talks, workshops and groups with Ovacome this week

Hello This is to let you know about the online events on our programme this week. Exercising during and after ovarian cancer treatment: Q&A - Tuesday 1...

Hello This is to let you know about the online events on our programme this week...

OvacomeSupport

Partner•4 years ago

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Hot Flushes

I have recently been diagnosed with stage 3 Ovarian cancer, having been admitted to hospital with bilateral blood clots on my lungs in October. I had been on...

I have recently been diagnosed with stage 3 Ovarian cancer, having been admitte...

Ivebeenthiswaybefore

•4 years ago

21 Replies

Constipation

Complete de-bulk op, 5 mths carbo/taxol but the only thing worries me everyday is constipation.Have tried several stool softners but been told that if used too...

Complete de-bulk op, 5 mths carbo/taxol but the only thing worries me everyday i...

Mammi

•4 years ago

45 Replies

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Update on bad day.

Thank you all so much for your support advice and kindness yesterday ,I'm sorry I haven't replied to you all individually but I just don't have the energy at...

Thank you all so much for your support advice and kindness yesterday ,I'm sorry ...

fendweller

•4 years ago

21 Replies

HUGE THANK YOU!!

Thank you so much to everyone for the support you gave me after my last post re my mum. We had been told she would probably not get through the night so they...

Thank you so much to everyone for the support you gave me after my last post re ...

Hidden

•4 years ago

9 Replies

Carboplatin is it the big hitter

A lot of chemotherapy seems to start off with carbo and carry on with something else either separate or combined. Is Carbo the big honcho and the others...

A lot of chemotherapy seems to start off with carbo and carry on with something ...

rosebine

•4 years ago

13 Replies

Free skincare products from Jennifer Young still available with Ovacome

Hello As we posted recently, we are absolutely delighted that Ovacome has been selected by Jennifer Young skincare to be a part of their Ten Thousand Gifts...

Hello As we posted recently, we are absolutely delighted that Ovacome has been s...

OvacomeSupport

Partner•4 years ago

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Votrient after chemo and surgery

Hi All, my mom is put on votient as a maintenance after and chemo and hipec surgery. Does any body else have experience with it? I did not see much over...

Hi All, my mom is put on votient as a maintenance after and chemo and hipec surg...

msuspartan

•4 years ago

4 Replies

Abdominal spasms

Hello all. Hope those who celebrated Thanksgiving enjoyed the day. I am six months post debulking surgery and finished front-line chemo about two weeks ago....

Hello all. Hope those who celebrated Thanksgiving enjoyed the day. I am six mon...

Sashay2020

•4 years ago

10 Replies

Bad day.

I'm having a bad day ,one week on from my second cycle of carbo and taxol I'm still feeling dreadful , tearful, leg pain ,aching, very weak legs, bit...

I'm having a bad day ,one week on from my second cycle of carbo and taxol I'm st...

fendweller

•4 years ago

18 Replies

NEED LOTS OF HUGS!!!

Hi All Just had call from care home to say mum not expected to last the night. Rang Onc nurse to ask if I could see her and as long as I keep covered up and...

Hi All Just had call from care home to say mum not expected to last the night. R...

Hidden

•4 years ago

38 Replies

Advice re: Flu Vaccination and chemotherapy/Avastin

Hello, has anyone had the Flu vaccination since coming off chemotherapy? I finished chemo 7 weeks ago, but I'm still having Avastin/(Bevacizumab), every 3...

Hello, has anyone had the Flu vaccination since coming off chemotherapy? I fini...

Doughnut21

•4 years ago

17 Replies

Latest appointment - possible genetic sequencing

I had my latest oncology telephone appointment on Tuesday. Letrozole, which had kept me stable for 2 years, stopped working earlier this year, & I've been...

I had my latest oncology telephone appointment on Tuesday. Letrozole, which had...

Di16

•4 years ago

8 Replies

Unable to drain my Ascites

Home now 😩 unfortunately it didn’t go well, First they had to do another blood test ( I had one done yesterday to save time) waited over an hour for the...

Home now 😩 unfortunately it didn’t go well, First they had to do another blood ...

Broader

•4 years ago

13 Replies

In focus: Hereditary ovarian cancer - Lynch syndrome

Hello This month in our ‘Health in Focus’ posts, we’re looking at hereditary risks for ovarian cancer and genetic testing. We’re often asked about these topics...

Hello This month in our ‘Health in Focus’ posts, we’re looking at hereditary ris...

OvacomeSupport

Partner•4 years ago

2 Replies

Any Rotterdam regime advice please

Hi ladies Well, I don’t really know what to say, I hate bringing bad news to the forum but it’s looking like I only have a couple of choices left for treatment...

Hi ladies Well, I don’t really know what to say, I hate bringing bad news to the...

Broader

•4 years ago

29 Replies

PARP side affects

Hi! Everyone Anyone taken PARPs.. how long we need to take for an ovarian cancer..do they have as bad as side-affects of IV Chemo Thanks in advance

Hi! Everyone Anyone taken PARPs.. how long we need to take for an ovarian cance...

Harp-1

•4 years ago

12 Replies

The Big Give 2020: help Ovacome and have your donation doubled

Hello We are very excited to announce that Ovacome has once again been selected to participate in the Big Give Christmas Challenge, the UK’s largest match...

Hello We are very excited to announce that Ovacome has once again been selected ...

TheOvacomeTeam

Partner•4 years ago

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Mum ❤️

Nearly 18 months on since finishing her last chemo, my lovely mum and daughter in llandudno ( north wales) on sunday... ca125 was still 5 on friday... sending...

Nearly 18 months on since finishing her last chemo, my lovely mum and daughter i...

claireRoberts76

•4 years ago

25 Replies

Tumour shrinkage and ascites

Hello does any one else have experience of tumour shrinkage following 3 cycles of carboplatin/taxol? But still a large amount of ascetic fluid showing on CT...

Hello does any one else have experience of tumour shrinkage following 3 cycles o...

Artyrose

•4 years ago

4 Replies

Online talks, workshops and groups with Ovacome this week

Hello This is to let you know about the online events on our programme this week. Chemotherapy headwear: how to style scarves, beanies and more - Monday 23...

Hello This is to let you know about the online events on our programme this week...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Ovarian cyst.. advice needed

Hi everyone, So I have been having difficulties since February with my health. I have had abdominal, lower pelvic pain. I had 3 ovarian daughter cysts...

Hi everyone, So I have been having difficulties since February with my health. ...

Misslittlelu

•4 years ago

4 Replies

Concern about surviving surgery

Anyone have diabetes, asthma and had total hysterectomy due to ovarian cancer. How did you do after surgery. Wondering if I will survive surgery.

Anyone have diabetes, asthma and had total hysterectomy due to ovarian cancer. H...

notforhire

•4 years ago

18 Replies

Carbo/Gem

Hi everyone I just wondered if any one has been in carbo/Gem. I’m due to start in the next few weeks and wondered what the side effects were like. Many Thanks

Hi everyone I just wondered if any one has been in carbo/Gem. I’m due to start ...

Jonich

•4 years ago

11 Replies

Loss of sense of taste

Feeling low since my third chemo session. I've lost my sense of taste again or rather nothing tastes as it should and my mouth itself tastes horrible so I have...

Feeling low since my third chemo session. I've lost my sense of taste again or r...

candyapplegrey

•4 years ago

13 Replies

Additional chemo

Hi all! I’ve just finished 6 rounds of Carbo & Caelyx for first recurrence after 18 months NED. My Ca125 is again in normal range (20) but since it is still...

Hi all! I’ve just finished 6 rounds of Carbo & Caelyx for first recurrence afte...

ElayneZ

•4 years ago

16 Replies

Pleural effusion

Hi ladies, I hope you’re all as well as can be. I’m wondering what symptoms you had with a pleural effusion. My mum was diagnosed with HGS OC stage 3A in...

Hi ladies, I hope you’re all as well as can be. I’m wondering what symptoms y...

N-A-58

•4 years ago

9 Replies

Treating ovarian cancer with anti-angiogenic agents

Hello, everyone Our Staying Connected webinar with Professor Gordon Jayson, BM, BA, Bch, FRCP, PhD, professor of oncology at The Christie in Manchester, on...

Hello, everyone Our Staying Connected webinar with Professor Gordon Jayson, BM, ...

OvacomeSupport

Partner•4 years ago

Be the first to reply

CT scan results

Hello ladies, I hope that you are managing ok through these difficult times. Yesterday I had a telephone Consultation with my Oncologist,and I am pleased to...

Hello ladies, I hope that you are managing ok through these difficult times. Yes...

Caleda4

•4 years ago

14 Replies

Time between finishing chemo and starting Niraparib

Hello, ladies. I finished my front line chemo about three weeks ago. I have bloodwork on Monday, CT scans on Tuesday, then meet with my doctor to discuss test...

Hello, ladies. I finished my front line chemo about three weeks ago. I have bloo...

Sashay2020

•4 years ago

14 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for November 2020

Online talks, workshops and groups with Ovacome this week

Hot Flushes

Constipation

Update on bad day.

HUGE THANK YOU!!

Carboplatin is it the big hitter

Free skincare products from Jennifer Young still available with Ovacome

Votrient after chemo and surgery

Abdominal spasms

Bad day.

NEED LOTS OF HUGS!!!

Advice re: Flu Vaccination and chemotherapy/Avastin

Latest appointment - possible genetic sequencing

Unable to drain my Ascites

In focus: Hereditary ovarian cancer - Lynch syndrome

Any Rotterdam regime advice please

PARP side affects

The Big Give 2020: help Ovacome and have your donation doubled

Mum ❤️

Tumour shrinkage and ascites

Online talks, workshops and groups with Ovacome this week

Ovarian cyst.. advice needed

Concern about surviving surgery

Carbo/Gem

Loss of sense of taste

Additional chemo

Pleural effusion

Treating ovarian cancer with anti-angiogenic agents

CT scan results

Time between finishing chemo and starting Niraparib

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