Posts - My Ovacome | HealthUnlocked

My Ovacome

18,691 members•20,554 posts

All posts for January 2025

Results back from 4th U/S in almost a year and cyst still hasn't changed. Still in limbo about what to do.

And my results didn't even state "abnormal" at the top like the others have. The results were: Left ovarian endometrioma measures 3.3 x 2.9 x 2.7 cm,...

And my results didn't even state "abnormal" at the top like the others have. The...

starrynight5626

•2 months ago

15 Replies

Side effects

Hi all I got diagnosed with stage 4b ovarian cancer in May 2023, ive had 6 rounds od carboplatin,paxitaxol and bevacizumab, then I had 15 bevacizumab with...

Hi all I got diagnosed with stage 4b ovarian cancer in May 2023, ive had 6 round...

Minimarigold

•2 months ago

11 Replies

Liverpool well being day.

Good afternoon ladies. I attended this event yesterday and had a great day. Just wanted to encourage you to go to one of these events if you can. Sometimes...

Good afternoon ladies. I attended this event yesterday and had a great day. Jus...

Kamloops

•2 months ago

1 Reply

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ovarian cancer spread

Hi, I’ve had ovarian cancer for 15 years. During that time I have had 2 surgeries and 6 separate rounds of chemotherapy. My disease has slowly been working...

Hi, I’ve had ovarian cancer for 15 years. During that time I have had 2 surgeri...

TJ_8868

•2 months ago

1 Reply

Monitoring for recurrance

Morning ladies. Please tell me how you are monitored after 1st line treatment. I've been told nothing over 3mm visible ( as of September 23). Then torture of...

Morning ladies. Please tell me how you are monitored after 1st line treatment. ...

TTbatty

•2 months ago

12 Replies

Recurring Cancer cells

originally diagnosed with Stage1 clear cell ovarian cancer following full hysterectomy and appendectomy and removal of tumour on ovary in February 2020. I had...

originally diagnosed with Stage1 clear cell ovarian cancer following full hyster...

Flower-Lover

•2 months ago

8 Replies

I have today to decided on a full hysterectomy or not

Hi again, I posted in November, in brief a complex cyst was discovered on my ovary last year, I was booked in to have both ovaries and tubes removed last...

Hi again, I posted in November, in brief a complex cyst was discovered on my ova...

Tess74

•3 months ago

22 Replies

Book Club

Hi All Eight of us from this community forum have been meeting regularly as a Book Club since the beginning of Autumn last year. The aim was to read and learn...

Hi All Eight of us from this community forum have been meeting regularly as a B...

MountainSeeker

•3 months ago

8 Replies

Radiation damage

I am seeking advice from those suffering and living with the effects of radiation damage following treatment. A family member who is now cancer free for 3+...

I am seeking advice from those suffering and living with the effects of radiatio...

Sis1234

•3 months ago

11 Replies

Birmingham Health and Wellbeing Day - 15th February

Good afternoon all, Please find here the details (including how to sign up) for our February Health and Wellbeing Day, taking place in Birmingham on...

Good afternoon all, Please find here the details (including how to sign up) for...

OvacomeSupport

Partner•3 months ago

2 Replies

mum doesn’t want maintenance treatment

Dear lovely ladies, My mum finished her first line chemotherapy treatment (she has 3a2 hgsoc; hrd negative); avastin was stopped after the first cycle because...

Dear lovely ladies, My mum finished her first line chemotherapy treatment (she ...

Rosefence

•3 months ago

20 Replies

ovarian

Hi beautiful ladies, This is my first recurrence and I am back on carbo / taxol and now I cannot tolerate the carbo after my 9th cycle so My oncologist will...

Hi beautiful ladies, This is my first recurrence and I am back on carbo / taxol...

Pianoanddisco

•3 months ago

14 Replies

local ladies

Hi Ladies This forum is such a huge help and it’s good to keep in touch with the regular posts of each and every journey. I made friends on here with a lovely...

Hi Ladies This forum is such a huge help and it’s good to keep in touch with th...

Barmycharm

•3 months ago

2 Replies

Bilateral salpingo-ophrectomy ( ovarian removal) in BRCA 1 patients.

Hello. Anyone with this experience of being suggested to have prophylactic/risk reducing surgery. Please share your experience and did you go ahead- what were...

Hello. Anyone with this experience of being suggested to have prophylactic/risk ...

Mford786

•3 months ago

1 Reply

Question about follow-up checks

Hi everyone, thanks for reading my post. In summer 2022, I was diagnosed with stage 3 endometrial cancer that had spread to my right ovary (they originally...

Hi everyone, thanks for reading my post. In summer 2022, I was diagnosed with st...

OrdinarySoul

•3 months ago

14 Replies

Update on my condition

I was dignosed with primary peritoneal carcinoma about 4 months ago, stage 3 C. Paclitaxel and Carboplatin proved too much for me and I ended up in hospital....

I was dignosed with primary peritoneal carcinoma about 4 months ago, stage 3 C. ...

Manetta

•3 months ago

13 Replies

Good news to share

I recently saw my gyn-oncologist for routine follow up, and she has released me back into the wild. She says my chance of recurrence is very small, and I can...

I recently saw my gyn-oncologist for routine follow up, and she has released me ...

Django123

•3 months ago

21 Replies

Could my involuntary incontinence be a sign that my endo cyst is more worrisome than the doctors think?

I'm 53 and having my third follow up US in two weeks (having one every 3 months for a year) to monitor a 3.2 cm endo cyst that was found incidentally last...

I'm 53 and having my third follow up US in two weeks (having one every 3 months ...

starrynight5626

•3 months ago

12 Replies

Mirvetuximab soravtansine - your experiences needed

Dear All We have been asked by the National Institute of Health and Care Excellence (NICE) to make a submission as part of their assessment for Mirvetuximab...

Dear All We have been asked by the National Institute of Health and Care Excell...

OvacomeSupport

Partner•3 months ago

2 Replies

Sweet taste

I am experiencing a very sweet taste in my mouth and cannot get rid of it any ideas

I am experiencing a very sweet taste in my mouth and cannot get rid of it any id...

Harryroberto1

•3 months ago

1 Reply

Relationship

Hi ladies My partner of 3.5 years has ended our relationship... By WhatsApp message I am devastated but so mixed up. I need a hug and you ladies are the only...

Hi ladies My partner of 3.5 years has ended our relationship... By WhatsApp mess...

Emcee71

•3 months ago

22 Replies

Update on previous post a ref results on CT scans.

I posted before Christmas as I’d had a CT colonoscopy and a CT on my pelvis, abdomen & thorax and I’d asked not to be given the results until after Christmas...

I posted before Christmas as I’d had a CT colonoscopy and a CT on my pelvis, abd...

Sheena13

•3 months ago

10 Replies

3MRI scan yesterday - results devastating

Three metastases were found in my liver on MRI .My Radiologist is my best friend and she told me. She was crying too. She says she will get me the best...

Three metastases were found in my liver on MRI .My Radiologist is my best friend...

blackdhalia

•3 months ago

11 Replies

Flying solo!

Morning everyone. I’ve finished chemo for first recurrence and my scan shows stable disease. Previously on Niraparib. Plan now is to have another scan in 3...

Morning everyone. I’ve finished chemo for first recurrence and my scan shows st...

Kamloops

•3 months ago

4 Replies

icing during and after chemo UK

Hi, I am interested to know how many people ice their feet either during chemo or after it in the UK? Specifically during Caelyx? I have never seen anyone...

Hi, I am interested to know how many people ice their feet either during chemo ...

Rosado22

•3 months ago

13 Replies

Private Treatment advice

I was wondering if anyone had experience of paying for private treatment with any of the immunotherapy drugs either in UK or in US and where you had treatment...

I was wondering if anyone had experience of paying for private treatment with an...

Mariej2021

•3 months ago

12 Replies

3rd line Carpoplatin & Paclitaxel.

My story is I’m back on tread mill again. Started Chemotherapy again after Avastin didn’t work as maintenance. Disappointing especially as Olaparib also...

My story is I’m back on tread mill again. Started Chemotherapy again after Avas...

Towergirl

•3 months ago

6 Replies

Liverpool Health and Wellbeing Day - Tuesday 28th January

Dear all, Our first Health and Wellbeing Day of 2025 is taking place in Liverpool on Tuesday 28th January. Speakers include: Mr Mohamed Mehasseb MBBCh MSc...

Dear all, Our first Health and Wellbeing Day of 2025 is taking place in Liverpo...

OvacomeSupport

Partner•3 months ago

Be the first to reply

New to group MOC dx

I've been dx with Mucinous Ovarian cancer and I am feeling somewhat doomed.I hear the prognosis is poor and the chemo Carboplatin and Pacitaxol have limited...

I've been dx with Mucinous Ovarian cancer and I am feeling somewhat doomed.I he...

blackdhalia

•3 months ago

12 Replies

new to group

Hello, I’m new to the community. My wife was diagnosed March 23 with stage 4b OC. surgery right away six rounds of chemo and just about to complete her 24...

Hello, I’m new to the community. My wife was diagnosed March 23 with stage 4b OC...

Lanie2024

•3 months ago

9 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for January 2025

Results back from 4th U/S in almost a year and cyst still hasn't changed. Still in limbo about what to do.

Side effects

Liverpool well being day.

ovarian cancer spread

Monitoring for recurrance

Recurring Cancer cells

I have today to decided on a full hysterectomy or not

Book Club

Radiation damage

Birmingham Health and Wellbeing Day - 15th February

mum doesn’t want maintenance treatment

ovarian

local ladies

Bilateral salpingo-ophrectomy ( ovarian removal) in BRCA 1 patients.

Question about follow-up checks

Update on my condition

Good news to share

Could my involuntary incontinence be a sign that my endo cyst is more worrisome than the doctors think?

Mirvetuximab soravtansine - your experiences needed

Sweet taste

Relationship

Update on previous post a ref results on CT scans.

3MRI scan yesterday - results devastating

Flying solo!

icing during and after chemo UK

Private Treatment advice

3rd line Carpoplatin & Paclitaxel.

Liverpool Health and Wellbeing Day - Tuesday 28th January

New to group MOC dx

new to group

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