Posts - My Ovacome | HealthUnlocked

My Ovacome

17,686 members • 19,951 posts

All posts for January 2020

Not the woman I was

I went to the oncologist this week and whilst I was waiting in the coffee shop I heard the women behind me say. ‘I am not the woman I was’... This really...

I went to the oncologist this week and whilst I was waiting in the coffee shop I...

PhillipandBettykid

•4 years ago

12 Replies

Recurrence in neck/shoulder...... anyone?

Hi lovely ladies I’ve had 3 wonderful years of remission after frontline. After a CT scan showing a supraclavicular lymph node recently, my Consultant said...

Hi lovely ladies I’ve had 3 wonderful years of remission after frontline. After ...

MH500

•4 years ago

30 Replies

I'm new here... My partner was diagnosed with Ovarian Cancer aged 30-31 / I'm trying to find a support network for Men?

Hi All, I've found nothing but posts from headstrong women sharing their own experiences and perspectives still rarely if not any posts from the partner's...

Hi All, I've found nothing but posts from headstrong women sharing their own ex...

JDFlo

•4 years ago

13 Replies

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Niraparib

Hello Ladies - I had the good news today in clinic that I am to start Niraparib. I will be starting on one 300mg tablet daily. Have any of you got any tried...

Hello Ladies - I had the good news today in clinic that I am to start Niraparib....

Hidden

•4 years ago

26 Replies

Anyone on Lynparza?

I recently started Lynparza. I'd like to know the experience of others who have been on it for a significant period of time. Is it beneficial? I've had...

I recently started Lynparza. I'd like to know the experience of others who have...

kitties4001

•4 years ago

8 Replies

Really Down

Morning Ladies. Some of you are aware that are following me , I had a change in my scan in October they started me on Taxol but that doesn't seem to be working...

Morning Ladies. Some of you are aware that are following me , I had a change in ...

1916

•4 years ago

33 Replies

Bless you all.

Thankyou so much, all of you, who got back to me, with your advice and experiences. It means a lot, sending love and luck to you, all❤❤❤❤🥰

Thankyou so much, all of you, who got back to me, with your advice and experienc...

Terrileeloughlin

•4 years ago

2 Replies

Lumps in arm from Chemo

Good Evening Ladies... hope all well with you🌸😊... I’m on Gem and Cissplaten for recurrence and now have very painful inflamed lumps in my forarm, last chemo...

Good Evening Ladies... hope all well with you🌸😊... I’m on Gem and Cissplaten f...

rossnbren

•4 years ago

8 Replies

About pregnancy

I am having thyroid.my periods got skipped for about 2 mnths and this is the first it got skipped.i checked with doctor..She gave me duphaston for 5 days .I...

I am having thyroid.my periods got skipped for about 2 mnths and this is the fir...

Renurathish

•4 years ago

3 Replies

Pleurodesis?

I had a chance to speak with my doctor today for the follow-up to the thoracentesis. I was told that I am now at stable disease. I had the second...

I had a chance to speak with my doctor today for the follow-up to the thoracente...

Natsmb

•4 years ago

2 Replies

Why the CT scan?

Hello Ladies, I'm after any advice about a CT scan I am to have. Now, I've had this one before, where you have to drink some horrible stuff, an hour before the...

Hello Ladies, I'm after any advice about a CT scan I am to have. Now, I've had t...

Terrileeloughlin

•4 years ago

17 Replies

Volunteers needed in N. Ireland and Eire for research study on exercise

Hello All You may remember a few months back I posted regarding volunteers for a study led by Deirdre McGrath, who is currently undertaking PhD research at...

Hello All You may remember a few months back I posted regarding volunteers for ...

OvacomeSupport

Partner•4 years ago

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Hair has gone straight despite no hair loss

I didn’t lose any hair during chemo but my hair has gone completely straight whereas it was curly before chemo. Has anyone else NOT lost their hair but found...

I didn’t lose any hair during chemo but my hair has gone completely straight whe...

juliamillen

•4 years ago

4 Replies

Will I get a PARP

I have just completed 2nd line therapy Carbo/Caelyx. There has been reduction in tumours but it doesn’t constitute a partial response. I was hoping to go on...

I have just completed 2nd line therapy Carbo/Caelyx. There has been reduction in...

dramaredgerbil

•4 years ago

8 Replies

Conception after cancer.

Hello everyone, I don't know where to start. I had ovarian cancer almost 15 years ago, at 18. I'm almost 33. Background... Long story, short... Had a 12...

Hello everyone, I don't know where to start. I had ovarian cancer almost 15 ye...

RahrahMia

•4 years ago

11 Replies

Breast Cancer

Hi I had stage III breast cancer finished all the treatments, now this week started Harmon therapy. My concern is if I want to colour my hair which brand is...

Hi I had stage III breast cancer finished all the treatments, now this week sta...

kulvi

•4 years ago

5 Replies

CT scan spread but CA125 down?

Hello you lovely lot, just joined and wanted to say Hello. I'm a recurring clear cell ovarian now peritoneum sufferer whose cells maybe spreading even during...

Hello you lovely lot, just joined and wanted to say Hello. I'm a recurring clea...

fishtrombone

•4 years ago

23 Replies

Denise

Hi there, I’ve been on Olaparib for three weeks now and so far have only experienced mild nausea. However, I do have a very watery mouth some days which is...

Hi there, I’ve been on Olaparib for three weeks now and so far have only experie...

Frenchhouse3

•4 years ago

6 Replies

Pendle99 : Farewell to Penny

Dear friends, sisters and fellow warriors, It is with a very heavy heart that I must tell you all that my friend Penny lost her battle with Ovarian Cancer last...

Dear friends, sisters and fellow warriors, It is with a very heavy heart that I ...

Lindaura

•4 years ago

42 Replies

ANYONE ON LYNPARZA?

HI- I RELUCTANTLY WENT ON LYNPARZA BECAUSE I'M VERY SENSITIVE TO ANY MEDICATION. THEY HAVE ME ON A DOSE OF 150MG. TWO TIMES A DAY. AFTER A MONTH MY CA-125 DID...

HI- I RELUCTANTLY WENT ON LYNPARZA BECAUSE I'M VERY SENSITIVE TO ANY MEDICATION....

mupash

•4 years ago

13 Replies

Supra-clavicular node

Hi ladies I had my scan results this afternoon. I’ve been in 1st remission for 3 years. My CA125 has suddenly gone to 41 so had my scan yesterday. The upshot...

Hi ladies I had my scan results this afternoon. I’ve been in 1st remission for ...

MH500

•4 years ago

11 Replies

Bowels misbehaving!

sorry for the delicate nature of this post! I finished chemo 5 weeks ago, all through cycle 5 & 6 I had diarrhoea and unfortunately it has continued. My recent...

sorry for the delicate nature of this post! I finished chemo 5 weeks ago, all th...

Hidden

•4 years ago

11 Replies

Chemotherapy advice

I have recently been diagnosed with Stage 1c low grade ovarian cancer. I have had surgery and the cancer removed. I now have the option of chemotherapy but my...

I have recently been diagnosed with Stage 1c low grade ovarian cancer. I have ha...

JanFre

•4 years ago

18 Replies

Pre op assessmentl

Had this done today everything OK so op goi g ahead on 28th Jan. Full hysterectomy plus omentum and part of the peritoneum. A it anxious but hoping for good...

Had this done today everything OK so op goi g ahead on 28th Jan. Full hysterecto...

Madmolly

•4 years ago

37 Replies

In focus: stomas - travel

Hello In this post, we’ll be looking at things to think about when you’re travelling with a stoma. You may also find it helpful to look at our posts from...

Hello In this post, we’ll be looking at things to think about when you’re travel...

OvacomeSupport

Partner•4 years ago

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Disappointed ☹️

Not great news yesterday at oncology. After 6 sessions of Carboplatin and my CA125 going down to normal level, it’s gone up again. The ct scan shows some...

Not great news yesterday at oncology. After 6 sessions of Carboplatin and my CA1...

Lockygill

•4 years ago

20 Replies

HRT

Can any of you lovely ladies out there who are on hrt tell me how long it took you to feel human and sane again?? I had a full hysterectomy just over 2 weeks...

Can any of you lovely ladies out there who are on hrt tell me how long it took y...

Whisking1

•4 years ago

10 Replies

Laura Update on the Dice Trial - Cycle 5

Hello everyone, Sorry to be so late with an update. I was waiting for the end of the 4th cycle to get my CT scan results. Also, since they lowered my dosage, I...

Hello everyone, Sorry to be so late with an update. I was waiting for the end of...

Lindaura

•4 years ago

23 Replies

Discovery of an immune cell that destroys 'most cancers

including Ovarian Cancer! https://bit.ly/2TIPnoP exciting reading!!

Hidden

•4 years ago

3 Replies

Depressed after NED.

I feel dreadful posting this , because I know there are a lot of ladies out there that are really suffering ,I've dithered for days , 23rd December my...

I feel dreadful posting this , because I know there are a lot of ladies out ther...

fendweller

•4 years ago

49 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for January 2020

Not the woman I was

Recurrence in neck/shoulder...... anyone?

I'm new here... My partner was diagnosed with Ovarian Cancer aged 30-31 / I'm trying to find a support network for Men?

Niraparib

Anyone on Lynparza?

Really Down

Bless you all.

Lumps in arm from Chemo

About pregnancy

Pleurodesis?

Why the CT scan?

Volunteers needed in N. Ireland and Eire for research study on exercise

Hair has gone straight despite no hair loss

Will I get a PARP

Conception after cancer.

Breast Cancer

CT scan spread but CA125 down?

Denise

Pendle99 : Farewell to Penny

ANYONE ON LYNPARZA?

Supra-clavicular node

Bowels misbehaving!

Chemotherapy advice

Pre op assessmentl

In focus: stomas - travel

Disappointed ☹️

HRT

Laura Update on the Dice Trial - Cycle 5

Discovery of an immune cell that destroys 'most cancers

Depressed after NED.

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