Posts - My Ovacome | HealthUnlocked

My Ovacome

17,687 members • 19,952 posts

All posts for March 2020

Pain! Ovarian ongoing

Just had to colonic bowel stents! Caelyx stopped! Waiting for new biopsy Thursday! To try profiling etc! My butt is painful as is my bowels! What more can I go...

Just had to colonic bowel stents! Caelyx stopped! Waiting for new biopsy Thursda...

jools53

•4 years ago

9 Replies

First recurrence

Hi. Has anyone had a recurrence to the liver? I’ve just been told this after first line treatment ended last July. I’m absolutely devastated. Also, the...

Hi. Has anyone had a recurrence to the liver? I’ve just been told this after fi...

DelilahB

•4 years ago

22 Replies

Let people know how you are doing (Spring 2020)

Hello It's that time of year again in the UK when the clocks change, which means its time for an update post which I will pin to the side bar. If you haven't...

Hello It's that time of year again in the UK when the clocks change, which mean...

OvacomeSupport

Partner•4 years ago

15 Replies

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2 interesting programmes

Did anybody catch the 2 programmes about cancer on radio 4 yesterday? The first was on language and cancer. I heard most of it before being interrupted by a...

Did anybody catch the 2 programmes about cancer on radio 4 yesterday? The first ...

PhillipandBettykid

•4 years ago

7 Replies

Anyone been here?

Dear All, Last night I thought it was the end as i could hardly breathe and was in an incredible weak state. I am not eating very much as have no appetite and...

Dear All, Last night I thought it was the end as i could hardly breathe and was...

Shorty864

•4 years ago

17 Replies

Letrozole

Evening everyone, hope you are all coping in this awful scary time. Just a quick question, after 12 rounds of chemo and a fluctuating CA124 between 30-49, and...

Evening everyone, hope you are all coping in this awful scary time. Just a quic...

Samjane

•4 years ago

18 Replies

Dedicate a butterfly and raise funds for Ovacome

Hello All Until now, we have never posted fundraising content on the forum for Ovacome Ovarian Cancer Charity. However, now more than ever we are relying on...

Hello All Until now, we have never posted fundraising content on the forum for ...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Letrozole causing lung problems?

Letrozole and lung inflamation. Has anyone had problems. I'm on letrozole for high grade serous ovarian cancer. The drug is really working, I started in...

Letrozole and lung inflamation. Has anyone had problems. I'm on letrozole for h...

Lgottenbos56

•4 years ago

3 Replies

Scared newbie

I’m 46 and only Friday found by ct scan that I have a ovarian tumour with ascites 😢 I have been dealing with a dodgy gallbladder so when I started getting...

I’m 46 and only Friday found by ct scan that I have a ovarian tumour with ascite...

Beachesinsummer

•4 years ago

29 Replies

Niraparib very fast pulse rate

At the moment I seem to have lots of questions and need for advice.Have been on Niraparib since mid Nov main side effect high blood pressure and fast pulse...

At the moment I seem to have lots of questions and need for advice.Have been on ...

dryden1

•4 years ago

9 Replies

Ovarian cancer

Not doing well do I’ll did not help virus slowed down possible clinical trial so hopefully I will start a combo ofCisplatin and gemcitabine next week Sally

Not doing well do I’ll did not help virus slowed down possible clinical trial so...

Sallyshuster

•4 years ago

3 Replies

Wonderful recital with an important message!

Turn your volume up. https://youtu.be/ykieEE1j9eA

Hidden

•4 years ago

6 Replies

Niraparib

Hi all my mum has just started Niraparib she has been in them two weeks since starting them she cannot sleep at night and she is really fatigued I know that...

Hi all my mum has just started Niraparib she has been in them two weeks since st...

Aliollie

•4 years ago

14 Replies

APPOINTMENT POSTPONED

I am aged 70, with type 2 diabetes & oc. My husband is 77, also has type 2 diabetes & had his 3rd heart attack last week. We’ve had texts telling us to stay...

I am aged 70, with type 2 diabetes & oc. My husband is 77, also has type 2 diab...

Di16

•4 years ago

8 Replies

CANCER PATIENTS IN LIMBO

I found this article very disturbing, but it does explain the telephone appointments and lack of clinics....

I found this article very disturbing, but it does explain the telephone appointm...

Hidden

•4 years ago

28 Replies

1916 - Ann - (aka Liz)

Hi Al Liz was my guiding light as we first walked this path. She was a few months ahead of me on our journeys. So as I faced my op, then chemo, I always had...

Hi Al Liz was my guiding light as we first walked this path. She was a few month...

JulieP1986

•4 years ago

16 Replies

Niraparib problems.

I started Niraparib February 27th after finishing 6 months of carbo/Caelyx for a recurrence. I still had 3 tumours but they’d had reduced by more than a 1/3...

I started Niraparib February 27th after finishing 6 months of carbo/Caelyx for...

Gemimablackvelvet

•4 years ago

11 Replies

metastatic cancer in the omentum and lungs

Hello Ladies,I hope that you are all keeping as well as can be expected especially with this corona virus. I had womb and fallopian tube cancer in 2015....

Hello Ladies,I hope that you are all keeping as well as can be expected especial...

Caleda4

•4 years ago

7 Replies

New here: about to have TAHBSO, worried about upstaging and menopause.

Hey everyone, I'm new here. I've read about a billion posts trying to find out as much info as possible. I'm only at the beginning of the journey. I've had...

Hey everyone, I'm new here. I've read about a billion posts trying to find out a...

figroll

•4 years ago

4 Replies

Staying up to date with information on Coronavirus Covid-19

Dear All As you'll all be very aware, the situation around coronavirus is changing rapidly. There is a lot of discussion on the forum about coronavirus, and...

Dear All As you'll all be very aware, the situation around coronavirus is changi...

OvacomeSupport

Partner•4 years ago

7 Replies

Updated One Cancer Voice information on coronavirus for people with cancer

Hello, You may have seen that we have been linking to a helpful document written by One Cancer Voice, a group of cancer charities in partnership with NHS...

Hello, You may have seen that we have been linking to a helpful document writte...

OvacomeSupport

Partner•4 years ago

1 Reply

Corona virus a few questions and advice

Dear All I do hope you are as good as you can be in these uncertain times and have the love and support you need.I am on Niraparib had the letter and locking...

Dear All I do hope you are as good as you can be in these uncertain times and ha...

dryden1

•4 years ago

10 Replies

COVID-19 - High-Risk Group self referral link

https://www.gov.uk/coronavirus-extremely-vulnerable If you have not received a text saying you are in the high risk group but you know you are; maybe because...

https://www.gov.uk/coronavirus-extremely-vulnerable If you have not received a...

Hidden

•4 years ago

20 Replies

6 months till first review?

Hello lovely ladies I was due to see my consultant tomorrow following completion of first line treatment for OC. I received a call today from his registrar,...

Hello lovely ladies I was due to see my consultant tomorrow following completion...

Sisterstogether

•4 years ago

22 Replies

Tamoxifen

Hi , hoping everyone is managing to keep as well as they can amid this turmoil. My sympathy to those who have had treatment or ops delayed because of it- it’s...

Hi , hoping everyone is managing to keep as well as they can amid this turmoil. ...

Litchick

•4 years ago

4 Replies

Anyone on Niraparib?

More disappointing news today, my CA125 has doubled in the last two weeks. I am currently taking Niraparib and worried sick that it is not working. My...

More disappointing news today, my CA125 has doubled in the last two weeks. I am ...

Hidden

•4 years ago

7 Replies

Postponement of Treatment

I am having my operation postponed, as I have to stay in isolation for the next 12 days or so, due to a family member having a cough and a grandchild being...

I am having my operation postponed, as I have to stay in isolation for the next ...

dexta2005

•4 years ago

1 Reply

Survey: improve diagnosis of ovarian cancer using information about shopping habits

Hello We posted recently to ask for your help with some research we are helping with, led by a PhD candidate called Elizabeth Dolan. The aim is to improve...

Hello We posted recently to ask for your help with some research we are helping ...

OvacomeSupport

Partner•4 years ago

6 Replies

Shorty

How are you doing .xx

fendweller

•4 years ago

Be the first to reply

COVID-19

Yesterday I received my NHS letter telling me I am "very high Risk" of being seriously ill if I were to contract COVID-19. No S***T sherlock! Sorry! I am to...

Yesterday I received my NHS letter telling me I am "very high Risk" of being ser...

Hidden

•4 years ago

5 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for March 2020

Pain! Ovarian ongoing

First recurrence

Let people know how you are doing (Spring 2020)

2 interesting programmes

Anyone been here?

Letrozole

Dedicate a butterfly and raise funds for Ovacome

Letrozole causing lung problems?

Scared newbie

Niraparib very fast pulse rate

Ovarian cancer

Wonderful recital with an important message!

Niraparib

APPOINTMENT POSTPONED

CANCER PATIENTS IN LIMBO

1916 - Ann - (aka Liz)

Niraparib problems.

metastatic cancer in the omentum and lungs

New here: about to have TAHBSO, worried about upstaging and menopause.

Staying up to date with information on Coronavirus Covid-19

Updated One Cancer Voice information on coronavirus for people with cancer

Corona virus a few questions and advice

COVID-19 - High-Risk Group self referral link

6 months till first review?

Tamoxifen

Anyone on Niraparib?

Postponement of Treatment

Survey: improve diagnosis of ovarian cancer using information about shopping habits

Shorty

COVID-19

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