Posts - My Ovacome | HealthUnlocked

My Ovacome

17,715 members • 19,966 posts

All posts for June 2020

Dedicate a butterfly and raise funds for Ovacome

Hello With every donation to the Ovacome virtual meadow page, a new butterfly will appear, especially for you or your loved one. Dedicate a butterfly here to...

Hello With every donation to the Ovacome virtual meadow page, a new butterfly wi...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Hello is there a way I can send another member my email address privately. Is there Thank you

Hello is there a way I can send another member my email address privately. Thank you

Hello is there a way I can send another member my email address privately. Than...

carolesuz

•4 years ago

3 Replies

Still Ned.

I've been Ned since December 2019 ,three month blood tests ,my phone consultation with my oncologist was good ,still OK ,I asked what my ca125 was ,never...

I've been Ned since December 2019 ,three month blood tests ,my phone consultati...

fendweller

•4 years ago

44 Replies

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Rucaparib, info and experiences please

I've had 4 doses of carboplatin - this knocked down my CA125 from 1190 to 90 after the third, don't know if its gone down again since my last infusion 10 days...

I've had 4 doses of carboplatin - this knocked down my CA125 from 1190 to 90 aft...

bamboo89

•4 years ago

18 Replies

Virtual support from Ovacome this week

Hello This is to let you know about the online events on our programme this week. Managing cancer-related fatigue - Monday 29 June, 2-3pm...

Hello This is to let you know about the online events on our programme this we...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Sun sensitivity

Am probably about to go on Taxol but I like to sit outside and go on the sea. My list of side effects does not list sun sensitivity but I have read on the net...

Am probably about to go on Taxol but I like to sit outside and go on the sea. My...

juliamillen

•4 years ago

8 Replies

Spreading awareness in my neighborhood

Hi all. I pray & hope that you’re all holding on strong . I’d like to start spreading awareness to those around me about Ovarian cancer. Where i am in...

Hi all. I pray & hope that you’re all holding on strong . I’d like to start spre...

Irene2020

•4 years ago

7 Replies

Diet with a colostomy

Hi everybody I was interested to see if anybody had any idea of how to eat a controlled diet with a stoma. [Edited by moderator] Greens I’m unable to eat with...

Hi everybody I was interested to see if anybody had any idea of how to eat a con...

Emma-Jane87

•4 years ago

5 Replies

New Member

Hi everybody. Feeling a little nervous as this is the first time I’ve reached out since my diagnosis in 2015. I’ve always found burying my head in the sand has...

Hi everybody. Feeling a little nervous as this is the first time I’ve reached ou...

Emma-Jane87

•4 years ago

15 Replies

1 year in remission (LGOC)

An awesome update, I had a CT at Christie’s a week last Saturday and it’s still all clear. So phew I’m now a year in remission. I will now just have a blood...

An awesome update, I had a CT at Christie’s a week last Saturday and it’s still ...

Flower2011

•4 years ago

16 Replies

Any tips for stiff, aching limbs on Avastin?

I am on Avastin only, at present, and have developed aching legs and arms that are very stiff - walking like a robot when I get up in the morning or have been...

I am on Avastin only, at present, and have developed aching legs and arms that a...

Sukidu

•4 years ago

12 Replies

Just saying Hi!

Just wanted to say hi to the group.

Lolotango

•4 years ago

20 Replies

Peritoneal cancer wanting second opinion

Hello I haven’t posted before but would be grateful for your advice. In sept 2019 I was diagnosed with FIGO stage 111C/IV high grade serous carcinoma of...

Hello I haven’t posted before but would be grateful for your advice. In sept 20...

carolesuz

•4 years ago

6 Replies

Bowel blockage

Hello ladies, I'm so scared right now, my mum is having a reoccurance after 6 years in remission, she has been quite unwell since March, this last month her...

Hello ladies, I'm so scared right now, my mum is having a reoccurance after 6 ye...

Holdingontohope

•4 years ago

9 Replies

Cancer 52 patient survey

Hello All Cancer 52 is an organisation which represents nearly 100 patient support group cancer charities working with rare and less common cancers. They are...

Hello All Cancer 52 is an organisation which represents nearly 100 patient suppo...

OvacomeSupport

Partner•4 years ago

Be the first to reply

A little advice if possible

Hi lovely people, I saw my consultant yesterday who said that the CAT scan I had last Friday showed activity in three lymph nodes. She is happy to wait a...

Hi lovely people, I saw my consultant yesterday who said that the CAT scan I ha...

Tay100

•4 years ago

8 Replies

Had surgery on June 22nd and I have stage 4 OC that doc described as aggressive

I asked doc if this a situation for palliative care and she responded that she wants to cure me. She said the OC has not invaded my bladder, but it was growing...

I asked doc if this a situation for palliative care and she responded that she w...

Sashay2020

•4 years ago

54 Replies

Getting bloods done prior to chemo

Hello everyone I hope you are as well as you can be, My care as now been transferred 60 miles away which is really inconvenient because my local hospital is...

Hello everyone I hope you are as well as you can be, My care as now been transfe...

dryden1

•4 years ago

26 Replies

Possible Stoma - help!

Hi everyone! I hope you are all well and enjoying this amazing weather. I was diagnosed with stage IIIC ovarian cancer at the end of Feb and, after having...

Hi everyone! I hope you are all well and enjoying this amazing weather. I was d...

LesleyGB

•4 years ago

24 Replies

Petscan

Has my petscan today . Was able to get an earlier appointment Anxious for the results I think tomorrow they should all be in

Has my petscan today . Was able to get an earlier appointment Anxious for the ...

Supermary

•4 years ago

4 Replies

CT scan plus pleural drain

Hello ladies, I am hoping that you are all enjoying this hot spell if possible. Yesterday started well with a CT scan , & I was the only one in the waiting...

Hello ladies, I am hoping that you are all enjoying this hot spell if possible. ...

Caleda4

•4 years ago

21 Replies

left rib pain

I seem to experience a sharp pain on my left rib and upper back when breathing. Feel dizzy, nausea , experience headaches and seem to forget quickly

I seem to experience a sharp pain on my left rib and upper back when breathing. ...

w234

•4 years ago

7 Replies

Bag lady

Thank you for all you wonderful comments and support on my last post, they help so much. Unfortunately things have taken a turn for the worse, hubby took me...

Thank you for all you wonderful comments and support on my last post, they help ...

Samjane

•4 years ago

9 Replies

Trial drug

As many of you know I have been trialling Olaparib for 6.5 years. I was talking to my trial nurse today having visited the Christies for recent scan results...

As many of you know I have been trialling Olaparib for 6.5 years. I was talking ...

Katmal-UK

•4 years ago

46 Replies

Update on rising CA125

Hi ladies. I hope you’re all as well as you can be. My mum had a repeat of her ca125 and it’s gone up again. So in jan it was 10, May it was 15 and now it’s...

Hi ladies. I hope you’re all as well as you can be. My mum had a repeat of her ...

N-A-58

•4 years ago

16 Replies

Nomination of Ovacome supporter Craig for the Pride of Britain Award

Hello everyone One of our members Craig McMurrough has been nominated by his friends for the Pride of Britain Award, for all his incredible fundraising efforts...

Hello everyone One of our members Craig McMurrough has been nominated by his fri...

OvacomeSupport

Partner•4 years ago

7 Replies

Supplements while on chemo

Hi. Does anyone have a comprehensive list of supplements that should not be taken while on chemo? If I ask my onc he says to take nothing, whereas naturapaths...

Hi. Does anyone have a comprehensive list of supplements that should not be take...

27-359

•4 years ago

48 Replies

Preliminary CT Results????

Hi everyone. I just spoke to my oncologist about CT scan results. She told me it was good and it looked like the area of my pelvic lymph nodes had shrunk but...

Hi everyone. I just spoke to my oncologist about CT scan results. She told me it...

yo207

•4 years ago

7 Replies

Virtual support from Ovacome this week

Hello This is to let you know about the online events on our programme this week. Gentle home exercise class with cancer exercise specialist Lizzy Davis -...

Hello This is to let you know about the online events on our programme this wee...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Shorty864 - Anne has lost her last battles

Dear ladies, I am so sorry to have to let you know that Anne, my Ovacome friend from Cornwall, has passed away this Sunday, 21 of June, at her lovely home....

Dear ladies, I am so sorry to have to let you know that Anne, my Ovacome friend...

Lindaura

•4 years ago

45 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for June 2020

Dedicate a butterfly and raise funds for Ovacome

Hello is there a way I can send another member my email address privately. Is there Thank you

Still Ned.

Rucaparib, info and experiences please

Virtual support from Ovacome this week

Sun sensitivity

Spreading awareness in my neighborhood

Diet with a colostomy

New Member

1 year in remission (LGOC)

Any tips for stiff, aching limbs on Avastin?

Just saying Hi!

Peritoneal cancer wanting second opinion

Bowel blockage

Cancer 52 patient survey

A little advice if possible

Had surgery on June 22nd and I have stage 4 OC that doc described as aggressive

Getting bloods done prior to chemo

Possible Stoma - help!

Petscan

CT scan plus pleural drain

left rib pain

Bag lady

Trial drug

Update on rising CA125

Nomination of Ovacome supporter Craig for the Pride of Britain Award

Supplements while on chemo

Preliminary CT Results????

Virtual support from Ovacome this week

Shorty864 - Anne has lost her last battles

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