Posts - My Ovacome | HealthUnlocked

My Ovacome

18,527 members•20,482 posts

Sort posts by:

gynaecology cancer study, get paid for a 60 minute “interview”

hi everyone, I have in the past completed an IQVIA survey for an ovarian cancer based study and have now been told of another research study that they are...

hi everyone, I have in the past completed an IQVIA survey for an ovarian canc...

Catfeeder

•21 hours ago

Be the first to reply

ÇA 125 : 115

Hello again , I posted previously about my CA125 level rising ; I have just received my latest blood test results and it is at 115 . I am due to finish...

Hello again , I posted previously about my CA125 level rising ; I have just re...

Norelo8

•3 days ago

29 Replies

Research at the University of Liverpool with partners of those having cancer treatment

Hello All We've been contacted by researchers at the University of Liverpool who are looking for participants to take part in research. This is the...

Hello All We've been contacted by researchers at the University of Liverpool w...

OvacomeSupport

Partner•6 days ago

Be the first to reply

Want to take advantage of all our features? Just log in!

Topotecan

Hi, I am so wondering if someone received Topotecan as a treatment 3x 21 days.I have ovarian cancer plus pleural effusion and lymph nodes metastasis .

Hi, I am so wondering if someone received Topotecan as a treatment 3x 21 days.I ...

Green999

•6 days ago

1 Reply

pericardial effusion

Hi Ladies I am currently being treated for first recurrence and are getting Carbo/Doxil and Keytruda. I recently had an echocardiogram and it showed a lot of...

Hi Ladies I am currently being treated for first recurrence and are getting Ca...

Hockeymom52

•7 days ago

6 Replies

Hair loss

Hi to all you brave and resilient ladies I finished 6 treatments of carboplatin/paclitaxel in the summer of 2024. I had almost total scalp and body hair loss....

Hi to all you brave and resilient ladies I finished 6 treatments of carboplatin...

Caboodle

•7 days ago

15 Replies

Lymphoedema: Is it a risk after pelvic cancer treatment? - British Lymphoedema Society webinar

Dear all, Our friends at the British Lymphoedema Society have contacted us regarding an upcoming webinar that they are hosting as part of Lymphoedema...

Dear all, Our friends at the British Lymphoedema Society have contacted us reg...

OvacomeSupport

Partner•9 days ago

1 Reply

Laparoscopy for large possibly borderline cyst, frozen section

I’ve been diagnosed with a large (now 17cm) mucinous cyst - most likely benign or borderline. Has anyone had a similar or larger cyst (plus ovary) removed via...

I’ve been diagnosed with a large (now 17cm) mucinous cyst - most likely benign o...

SazzaLou

•9 days ago

1 Reply

Vagifem Pessaries and borderline ovarian tumours

I cannot find a definitive answer in any research. I have used Vagifem for 5 years for vaginal/bladder atrophy. I’m post menopausal by 16 years. I recently had...

I cannot find a definitive answer in any research. I have used Vagifem for 5 yea...

JustMeOK

•10 days ago

20 Replies

CA125 FLUCTUATING

My mother was on 18 weekly cycle treatment for 3c ca ovary. It's her third time recurrence in last 9 years. Her ca125 had come down to 43 on 16th cycle and...

My mother was on 18 weekly cycle treatment for 3c ca ovary. It's her third time ...

HealthyBeing

•10 days ago

1 Reply

Recurrence 5 months after initial treatment finished

Hi everyone, I am hoping to hear reassuring accounts from others who have experienced a recurrence within a short period after initial chemo and surgery for...

Hi everyone, I am hoping to hear reassuring accounts from others who have exper...

Sewingmaz

•10 days ago

10 Replies

CA125 question

I have stage 1c clear cell cancer. My CA125 marker has been falling. Was 15.4 before third chemo, however it increased 2.5 points before 4th chemo. Now...

I have stage 1c clear cell cancer. My CA125 marker has been falling. Was 15.4...

JOY202452

•11 days ago

11 Replies

Ascites advice

I am currently waiting to have my abdomen drained but it is taking sometime to get the appointment. In the meantime I am in a lot of discomfort and my legs and...

I am currently waiting to have my abdomen drained but it is taking sometime to g...

Swimbuddy

•12 days ago

18 Replies

Can you help us to #TalkTeal and raise £75,000 this Ovarian Cancer Awareness Month?

📢 Let’s Talk Teal this March! 📢 This Ovarian Cancer Awareness Month, Ovacome is on a mission to push for earlier detection and better outcomes by raising...

📢 Let’s Talk Teal this March! 📢 This Ovarian Cancer Awareness Month, Ovacome ...

OvacomeSupport

Partner•13 days ago

1 Reply

hello

I am currently coming to the end of preliminary investigations and have been told I have ovarian cancer. 6 days ago I had radiological drainage of 5.7 litres...

I am currently coming to the end of preliminary investigations and have been tol...

Black-Poppy

•14 days ago

11 Replies

Treatment

I am stage 1a high serous ovarian cancer and I was put in the position to choose between adjuvant chemo or only observation.Feeling confused

I am stage 1a high serous ovarian cancer and I was put in the position to choos...

OanaN

•14 days ago

7 Replies

CA125 rise

Hi. My mum was diagnosed end 2013. 3cHGS. She had Carbo/Taxol which looked promising until a recurrence. Caelyx. Then Carbo/Taxol again. In June 2017 she...

Hi. My mum was diagnosed end 2013. 3cHGS. She had Carbo/Taxol which looked pro...

JanePW1965

•15 days ago

28 Replies

Ovarian

Hi beautiful ladies, I have a general question, after your diagnosis has anyone changed their diet to …for example vegan, keto diet, etc. or just stuck to...

Hi beautiful ladies, I have a general question, after your diagnosis has anyon...

Pianoanddisco

•17 days ago

24 Replies

Results back from 4th U/S in almost a year and cyst still hasn't changed. Still in limbo about what to do.

And my results didn't even state "abnormal" at the top like the others have. The results were: Left ovarian endometrioma measures 3.3 x 2.9 x 2.7 cm,...

And my results didn't even state "abnormal" at the top like the others have. The...

starrynight5626

•20 days ago

15 Replies

Side effects

Hi all I got diagnosed with stage 4b ovarian cancer in May 2023, ive had 6 rounds od carboplatin,paxitaxol and bevacizumab, then I had 15 bevacizumab with...

Hi all I got diagnosed with stage 4b ovarian cancer in May 2023, ive had 6 round...

Minimarigold

•22 days ago

11 Replies

Liverpool well being day.

Good afternoon ladies. I attended this event yesterday and had a great day. Just wanted to encourage you to go to one of these events if you can. Sometimes...

Good afternoon ladies. I attended this event yesterday and had a great day. Jus...

Kamloops

•22 days ago

1 Reply

ovarian cancer spread

Hi, I’ve had ovarian cancer for 15 years. During that time I have had 2 surgeries and 6 separate rounds of chemotherapy. My disease has slowly been working...

Hi, I’ve had ovarian cancer for 15 years. During that time I have had 2 surgeri...

TJ_8868

•22 days ago

1 Reply

Monitoring for recurrance

Morning ladies. Please tell me how you are monitored after 1st line treatment. I've been told nothing over 3mm visible ( as of September 23). Then torture of...

Morning ladies. Please tell me how you are monitored after 1st line treatment. ...

TTbatty

•22 days ago

12 Replies

Recurring Cancer cells

originally diagnosed with Stage1 clear cell ovarian cancer following full hysterectomy and appendectomy and removal of tumour on ovary in February 2020. I had...

originally diagnosed with Stage1 clear cell ovarian cancer following full hyster...

Flower-Lover

•23 days ago

8 Replies

I have today to decided on a full hysterectomy or not

Hi again, I posted in November, in brief a complex cyst was discovered on my ovary last year, I was booked in to have both ovaries and tubes removed last...

Hi again, I posted in November, in brief a complex cyst was discovered on my ova...

Tess74

•23 days ago

22 Replies

Book Club

Hi All Eight of us from this community forum have been meeting regularly as a Book Club since the beginning of Autumn last year. The aim was to read and learn...

Hi All Eight of us from this community forum have been meeting regularly as a B...

MountainSeeker

•26 days ago

7 Replies

Radiation damage

I am seeking advice from those suffering and living with the effects of radiation damage following treatment. A family member who is now cancer free for 3+...

I am seeking advice from those suffering and living with the effects of radiatio...

Sis1234

•28 days ago

11 Replies

Birmingham Health and Wellbeing Day - 15th February

Good afternoon all, Please find here the details (including how to sign up) for our February Health and Wellbeing Day, taking place in Birmingham on...

Good afternoon all, Please find here the details (including how to sign up) for...

OvacomeSupport

Partner•1 month ago

2 Replies

mum doesn’t want maintenance treatment

Dear lovely ladies, My mum finished her first line chemotherapy treatment (she has 3a2 hgsoc; hrd negative); avastin was stopped after the first cycle because...

Dear lovely ladies, My mum finished her first line chemotherapy treatment (she ...

Rosefence

•1 month ago

20 Replies

ovarian

Hi beautiful ladies, This is my first recurrence and I am back on carbo / taxol and now I cannot tolerate the carbo after my 9th cycle so My oncologist will...

Hi beautiful ladies, This is my first recurrence and I am back on carbo / taxol...

Pianoanddisco

•1 month ago

14 Replies

Write a post or ask a question

Posts - My Ovacome | HealthUnlocked

My Ovacome

gynaecology cancer study, get paid for a 60 minute “interview”

ÇA 125 : 115

Research at the University of Liverpool with partners of those having cancer treatment

Topotecan

pericardial effusion

Hair loss

Lymphoedema: Is it a risk after pelvic cancer treatment? - British Lymphoedema Society webinar

Laparoscopy for large possibly borderline cyst, frozen section

Vagifem Pessaries and borderline ovarian tumours

CA125 FLUCTUATING

Recurrence 5 months after initial treatment finished

CA125 question

Ascites advice

Can you help us to #TalkTeal and raise £75,000 this Ovarian Cancer Awareness Month?

hello

Treatment

CA125 rise

Ovarian

Results back from 4th U/S in almost a year and cyst still hasn't changed. Still in limbo about what to do.

Side effects

Liverpool well being day.

ovarian cancer spread

Monitoring for recurrance

Recurring Cancer cells

I have today to decided on a full hysterectomy or not

Book Club

Radiation damage

Birmingham Health and Wellbeing Day - 15th February

mum doesn’t want maintenance treatment

ovarian

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive