Posts - My Ovacome | HealthUnlocked

My Ovacome

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Planning a holiday? You can support Ovacome at the same time!

Plan your dream holiday with Not Just Travel to support Ovacome! 💙✈️ We’re so excited to partner with Amy at Not Just Travel. She's a personal travel...

Plan your dream holiday with Not Just Travel to support Ovacome! 💙✈️ We’re so ...

OvacomeSupport

Partner•2 days ago

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Niraparib

Hi everyone, started on Niraparib in September. My Ca125 levels were 15, now they have gone up to 25. Does that mean it isn’t working? My oncologist said it’s...

Hi everyone, started on Niraparib in September. My Ca125 levels were 15, now th...

Angeldust123

•3 days ago

6 Replies

Advice please on Anastrozone v Letrozole

I have to decide on which Aromatase Inhibitor My Oncologis suggested I try hormone blockers mentioning Anastrozone. I’m interested to know which works best...

I have to decide on which Aromatase Inhibitor My Oncologis suggested I try hor...

Towergirl

•3 days ago

5 Replies

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reoccurrence.

I was diagnosed in August with a reoccurrence of my breast cancer (2004) and an abdominal tumour in August after have OC in 2017/18. I’m pleased to say the...

I was diagnosed in August with a reoccurrence of my breast cancer (2004) and an ...

Sheena13

•3 days ago

15 Replies

post De-bulking Pain?

Good morning! I had my debulking surgery three weeks ago and it included my appendix. I have not taken any pain medication since week 1. I am feeling fine. Up...

Good morning! I had my debulking surgery three weeks ago and it included my app...

coop1969

•4 days ago

6 Replies

Weekly paclitaxel

Hi ladies,I've just been diagnosed with my second recurrence and have been told that I will have weekly paclitaxel this time, starting next week. I can't have...

Hi ladies,I've just been diagnosed with my second recurrence and have been told ...

Kjpip

•5 days ago

12 Replies

Good news update

Hello dear ladies, I wanted to give you an update about my mother, sharing some good news. My mum was diagnosed with ovarian cancer stage 4a in December...

Hello dear ladies, I wanted to give you an update about my mother, sharing some...

Uniquem

•6 days ago

23 Replies

Odd tummy sensations 6 months post-debunking surgery?

I am 6/7 months post debulking/cytoreductive surgery and have just had a clear scan so know that is okay. But I have been feeling uncomfortable under my rib on...

I am 6/7 months post debulking/cytoreductive surgery and have just had a clear s...

DMP-H

•6 days ago

5 Replies

Caelyx treatment

hi all , I have had lots of chemo since diagnosis and ultra radical debulking op 4 years ago but now have few options left . I was just started on Caelyx...

hi all , I have had lots of chemo since diagnosis and ultra radical debulking op...

Lookingahead

•6 days ago

12 Replies

What's on at Ovacome next week? (week beginning 2 December 2024)

Hello All This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Monday 2...

Hello All This is our weekly post to let you know about the different support...

OvacomeSupport

Partner•6 days ago

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Life after Niraparib

Is there anyone who has taken Niraparib stopped and continued to be in remission? It would be nice to hear your story. I know it is relatively new treatment...

Is there anyone who has taken Niraparib stopped and continued to be in remission...

Jingles6

•7 days ago

2 Replies

Niraparib

I have been on niraparib for two and a half years, has been fine but now developed a lot of joint and muscle aching. Does anyone else suffer with this or is it...

I have been on niraparib for two and a half years, has been fine but now develop...

Tabby13

•7 days ago

9 Replies

Nominate Ovacome to win £1000!

Good morning everyone, The Movement for Good Awards are back and in full festive swing. We need your help to secure £1,000 for Ovacome! 🌟💸 As part of...

Good morning everyone, The Movement for Good Awards are back and in full festiv...

OvacomeSupport

Partner•7 days ago

4 Replies

Hello to all of you

I’m keen to support this group as keeping the conversation is really so helpful at a stressful time. We all need to feel we’re not alone.

I’m keen to support this group as keeping the conversation is really so helpful...

Moominalong

•8 days ago

5 Replies

Hello all

I was diagnosed with grade 4 High serrous ovarian cancer in Jan of this year. I did 3 chemo sessions at RUH, who were brilliant, kind and informative. Then up...

I was diagnosed with grade 4 High serrous ovarian cancer in Jan of this year. I ...

Moominalong

•8 days ago

10 Replies

Running Out of Time and Ideas

Hi allWell I was told in June that I have less than 12 months so off u pop! That's pretty much been it. I asked if there were any trials and was told they...

Hi allWell I was told in June that I have less than 12 months so off u pop! That...

Kouyate

•9 days ago

11 Replies

Helpful You Tube Videos

I've just revisited some of the Ovacome videos (accessed by a You Tube search or on their website) and there's a range of them that help explain things like...

I've just revisited some of the Ovacome videos (accessed by a You Tube search or...

Notage

•9 days ago

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Bevacizumab cycles

Hello, Just wondering if anyone here has been given bevacizumab beyond the 18 cycles after first line treatment? Thank you!

Hello, Just wondering if anyone here has been given bevacizumab beyond the 18 cy...

Alentejo

•12 days ago

6 Replies

What's on at Ovacome next week? (week beginning 25 November 2024)

Hello All This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday...

Hello All This is our weekly post to let you know about the different support...

OvacomeSupport

Partner•13 days ago

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Adhesions

Has anyone had problems with adhesions following debulking surgery? I had my surgery two years ago and I am getting problems now.

Has anyone had problems with adhesions following debulking surgery? I had my sur...

Tabby13

•15 days ago

16 Replies

The Big Give – 2 weeks to go

Good morning all, Only 2 weeks to go until the Big Give 2024 goes live! Don’t miss your chance to double your impact 🔥 Starting midday on Tuesday 3...

Good morning all, Only 2 weeks to go until the Big Give 2024 goes live! Don’t...

OvacomeSupport

Partner•15 days ago

2 Replies

Ovacome ovarian cancer charity - information and support

Hello All We thought we would post a reminder about the information and support that Ovacome ovarian cancer charity offers, in addition to this forum. Please...

Hello All We thought we would post a reminder about the information and support...

OvacomeSupport

Partner•16 days ago

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Help! Overwhelmed

I had my debulking surgery about a week and a half ago. My doctor said the surgery allowed her to take all visible cancer. The frozen section came back with...

I had my debulking surgery about a week and a half ago. My doctor said the surge...

coop1969

•16 days ago

12 Replies

Palliative Care Fatigue

Has anyone got any experience of managing fatigue during palliative care? My mum is struggling so much with fatigue and we are getting conflicting advice....

Has anyone got any experience of managing fatigue during palliative care? My mu...

Star_22

•17 days ago

6 Replies

Ovacome's Seasons Greetings cards on sale

Hello All With the festive season is quickly approaching and December only a few weeks away, Ovacome's range of Seasons Greeting cards available now on the...

Hello All With the festive season is quickly approaching and December only a fe...

TheOvacomeTeam

Partner•19 days ago

3 Replies

no measurable disease

My mum had her end of frontline treatment scan results today - and she was told she has No measurable disease. Her CA125 is around 14. Any ideas what this...

My mum had her end of frontline treatment scan results today - and she was told ...

georgiageorgia182

•20 days ago

3 Replies

Cramp

Just recently I have been suffering from cramp in back of my legs I am now on carbonation/gem .I have been on various treatments over the years experienced...

Just recently I have been suffering from cramp in back of my legs I am now on ca...

Harryroberto1

•20 days ago

4 Replies

Bowel Obstruction

Hi, If anyone has any knowledge/experience on this I would really appreciate it. My Mum has primary peritoneal cancer, diagnosed April 2022. It has recurred...

Hi, If anyone has any knowledge/experience on this I would really appreciate i...

SupportingmyMum

•20 days ago

13 Replies

What's on at Ovacome next week? (week beginning 18 November 2024)

Hello All This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday...

Hello All This is our weekly post to let you know about the different support...

OvacomeSupport

Partner•20 days ago

Be the first to reply

Exhaustion

Hi ladies I'm struggling. I had my op almost exactly a year ago and chemo finished in June. Scan showed NED, but was soooo tired (and bloated, with pelvic...

Hi ladies I'm struggling. I had my op almost exactly a year ago and chemo finis...

Emcee71

•21 days ago

31 Replies

Write a post or ask a question

Posts - My Ovacome | HealthUnlocked

My Ovacome

Planning a holiday? You can support Ovacome at the same time!

Niraparib

Advice please on Anastrozone v Letrozole

reoccurrence.

post De-bulking Pain?

Weekly paclitaxel

Good news update

Odd tummy sensations 6 months post-debunking surgery?

Caelyx treatment

What's on at Ovacome next week? (week beginning 2 December 2024)

Life after Niraparib

Niraparib

Nominate Ovacome to win £1000!

Hello to all of you

Hello all

Running Out of Time and Ideas

Helpful You Tube Videos

Bevacizumab cycles

What's on at Ovacome next week? (week beginning 25 November 2024)

Adhesions

The Big Give – 2 weeks to go

Ovacome ovarian cancer charity - information and support

Help! Overwhelmed

Palliative Care Fatigue

Ovacome's Seasons Greetings cards on sale

no measurable disease

Cramp

Bowel Obstruction

What's on at Ovacome next week? (week beginning 18 November 2024)

Exhaustion

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