Posts - My Ovacome | HealthUnlocked

My Ovacome

18,404 members•20,447 posts

Sort posts by:

Good news to share

I recently saw my gyn-oncologist for routine follow up, and she has released me back into the wild. She says my chance of recurrence is very small, and I can...

I recently saw my gyn-oncologist for routine follow up, and she has released me ...

Django123

•9 hours ago

1 Reply

Could my involuntary incontinence be a sign that my endo cyst is more worrisome than the doctors think?

I'm 53 and having my third follow up US in two weeks (having one every 3 months for a year) to monitor a 3.2 cm endo cyst that was found incidentally last...

I'm 53 and having my third follow up US in two weeks (having one every 3 months ...

starrynight5626

•3 days ago

10 Replies

Mirvetuximab soravtansine - your experiences needed

Dear All We have been asked by the National Institute of Health and Care Excellence (NICE) to make a submission as part of their assessment for Mirvetuximab...

Dear All We have been asked by the National Institute of Health and Care Excell...

OvacomeSupport

Partner•5 days ago

2 Replies

Want to take advantage of all our features? Just log in!

Sweet taste

I am experiencing a very sweet taste in my mouth and cannot get rid of it any ideas

I am experiencing a very sweet taste in my mouth and cannot get rid of it any id...

Harryroberto1

•6 days ago

1 Reply

Relationship

Hi ladies My partner of 3.5 years has ended our relationship... By WhatsApp message I am devastated but so mixed up. I need a hug and you ladies are the only...

Hi ladies My partner of 3.5 years has ended our relationship... By WhatsApp mess...

Emcee71

•6 days ago

21 Replies

Update on previous post a ref results on CT scans.

I posted before Christmas as I’d had a CT colonoscopy and a CT on my pelvis, abdomen & thorax and I’d asked not to be given the results until after Christmas...

I posted before Christmas as I’d had a CT colonoscopy and a CT on my pelvis, abd...

Sheena13

•7 days ago

10 Replies

3MRI scan yesterday - results devastating

Three metastases were found in my liver on MRI .My Radiologist is my best friend and she told me. She was crying too. She says she will get me the best...

Three metastases were found in my liver on MRI .My Radiologist is my best friend...

blackdhalia

•8 days ago

10 Replies

Flying solo!

Morning everyone. I’ve finished chemo for first recurrence and my scan shows stable disease. Previously on Niraparib. Plan now is to have another scan in 3...

Morning everyone. I’ve finished chemo for first recurrence and my scan shows st...

Kamloops

•10 days ago

4 Replies

icing during and after chemo UK

Hi, I am interested to know how many people ice their feet either during chemo or after it in the UK? Specifically during Caelyx? I have never seen anyone...

Hi, I am interested to know how many people ice their feet either during chemo ...

Rosado22

•10 days ago

13 Replies

Private Treatment advice

I was wondering if anyone had experience of paying for private treatment with any of the immunotherapy drugs either in UK or in US and where you had treatment...

I was wondering if anyone had experience of paying for private treatment with an...

Mariej2021

•10 days ago

13 Replies

3rd line Carpoplatin & Paclitaxel.

My story is I’m back on tread mill again. Started Chemotherapy again after Avastin didn’t work as maintenance. Disappointing especially as Olaparib also...

My story is I’m back on tread mill again. Started Chemotherapy again after Avas...

Towergirl

•11 days ago

6 Replies

Liverpool Health and Wellbeing Day - Tuesday 28th January

Dear all, Our first Health and Wellbeing Day of 2025 is taking place in Liverpool on Tuesday 28th January. Speakers include: Mr Mohamed Mehasseb MBBCh MSc...

Dear all, Our first Health and Wellbeing Day of 2025 is taking place in Liverpo...

OvacomeSupport

Partner•11 days ago

Be the first to reply

New to group MOC dx

I've been dx with Mucinous Ovarian cancer and I am feeling somewhat doomed.I hear the prognosis is poor and the chemo Carboplatin and Pacitaxol have limited...

I've been dx with Mucinous Ovarian cancer and I am feeling somewhat doomed.I he...

blackdhalia

•14 days ago

12 Replies

new to group

Hello, I’m new to the community. My wife was diagnosed March 23 with stage 4b OC. surgery right away six rounds of chemo and just about to complete her 24...

Hello, I’m new to the community. My wife was diagnosed March 23 with stage 4b OC...

Lanie2024

•15 days ago

9 Replies

kieran2018

Hi everyone, I’m on weekly taxol and two weekly avastin. I was told I will be on this now until I can no longer tolerate it or until it stops working. I had...

Hi everyone, I’m on weekly taxol and two weekly avastin. I was told I will be...

Kieran2018

•15 days ago

20 Replies

SABR radiotherapy on a liver tumor.

I have just completed Carboplatin Caelyx, had CT scan and the results show 1 cm tumour placed under the liver which initially was 4 cm. My consultant...

I have just completed Carboplatin Caelyx, had CT scan and the results show 1 cm ...

Ted26

•16 days ago

4 Replies

Olaparib and vomiting

Hi everyone. My lovely mum started Olaparib 3 weeks ago and all seemed well for the first couple of weeks (apart from fatigue which we knew to be expected)....

Hi everyone. My lovely mum started Olaparib 3 weeks ago and all seemed well for ...

georgiageorgia182

•19 days ago

12 Replies

Platinum resistant Metastatic ovarian cancer

My mum has been under treatment for metastatic ovarian cancer since 3 years. She had caeboplatin 4 cycles, then olaparib for 2 years, then debulking surgery in...

My mum has been under treatment for metastatic ovarian cancer since 3 years. She...

Mford786

•21 days ago

3 Replies

Ovary vs bowel

I had my ovary removed during a c section because it had a cyst as big as the ovary. Pathology came back clear. Five years later I’m being seen for heavy...

I had my ovary removed during a c section because it had a cyst as big as the ov...

Healthanxious123

•22 days ago

1 Reply

Neuropathy made much worse by Covid Jab, anyone?

4b HGS, BRCA 2. On chemo and then 2 years of Olaparib, I developed peripheral motor neuropathy from knee to ankle and needed to use walking stick for heavy...

4b HGS, BRCA 2. On chemo and then 2 years of Olaparib, I developed peripheral m...

Trickysite

•22 days ago

10 Replies

Reaching out to Clear Cell Patients

I have been diagnosed with Stage 1, C3 clear cell ovarian cancer. I went to the GP on 6th Sept 2024 and by the 16th September I had CA125 test and an ultra...

I have been diagnosed with Stage 1, C3 clear cell ovarian cancer. I went to ...

JOY202452

•22 days ago

19 Replies

stage 4 now in lungs and breathless.

hi all. , I was first diagnosed in 2020 and have managed to get here with various chemotherapy’s . Unfortunately , Avastin and Olaparib didn’t work for me. As...

hi all. , I was first diagnosed in 2020 and have managed to get here with variou...

Lookingahead

•25 days ago

14 Replies

Christmas wishes 🌲 a good news post of hope X

Firstly, "Merry Christmas" 🥰. My storyso far: I was diagnosed after a blood test in April 22 for minimal symptoms just needing to wee alot! With a CA 125 of...

Firstly, "Merry Christmas" 🥰. My storyso far: I was diagnosed after a blood tes...

Newbery3

•25 days ago

17 Replies

What to believe

Hello dear ladies I’m Lone from Denmark and I’m so thankful for being af part of this community. I have just finished my calyx and carboplatin treatment after...

Hello dear ladies I’m Lone from Denmark and I’m so thankful for being af part o...

nunnilove

•25 days ago

3 Replies

Best Wishes

Merry Christmas for all of us, rest, hope and power for New Year. See You all next Christmas 🎄🎁

Merry Christmas for all of us, rest, hope and power for New Year. See You all ne...

nordic5

•26 days ago

1 Reply

Ovacome support service festive opening hours

Hello All This is to let you know that Ovacome support services will close at 1pm on Tuesday 24 December 2024 and will reopen at 10am on Thursday 2 January...

Hello All This is to let you know that Ovacome support services will close at 1...

OvacomeSupport

Partner•26 days ago

Be the first to reply

Chemotherapy didn’t work and my oncology team gave up on me, anyone advice where I could turn outside Netherlands ?

Dear ladies, last Thursday I was taking 8th weekly carbo/taxol chemo when I got severe reaction to carboplatine (red skin and feeling nauseas, in pain)....

Dear ladies, last Thursday I was taking 8th weekly carbo/taxol chemo when I got...

Beatyourself

•26 days ago

45 Replies

Bowel obstruction.

HGSOC stage 3C. Debulking surgery September 2023 followed by 6 platinum based chemotherapy sessions. Negative for BrCa 1/2 and HRD. Started on maintenance...

HGSOC stage 3C. Debulking surgery September 2023 followed by 6 platinum based c...

MrsCoole

•26 days ago

9 Replies

Any relief for acid reflux

just curious to hear what’s worked for anyone that has had painful acidity and reflux after and during chemo

just curious to hear what’s worked for anyone that has had painful acidity and r...

Lita5

•27 days ago

5 Replies

OC and Polycystic Kidney Disease and potential reoccurrence

Hi all, Wondering if anyone here has a kidney condition/impairment of kidney function as a pre-existing condition to OC. My lovely mum has managed her kidney...

Hi all, Wondering if anyone here has a kidney condition/impairment of kidney fu...

Fourbytwo93

•28 days ago

1 Reply

Write a post or ask a question

Posts - My Ovacome | HealthUnlocked

My Ovacome

Good news to share

Could my involuntary incontinence be a sign that my endo cyst is more worrisome than the doctors think?

Mirvetuximab soravtansine - your experiences needed

Sweet taste

Relationship

Update on previous post a ref results on CT scans.

3MRI scan yesterday - results devastating

Flying solo!

icing during and after chemo UK

Private Treatment advice

3rd line Carpoplatin & Paclitaxel.

Liverpool Health and Wellbeing Day - Tuesday 28th January

New to group MOC dx

new to group

kieran2018

SABR radiotherapy on a liver tumor.

Olaparib and vomiting

Platinum resistant Metastatic ovarian cancer

Ovary vs bowel

Neuropathy made much worse by Covid Jab, anyone?

Reaching out to Clear Cell Patients

stage 4 now in lungs and breathless.

Christmas wishes 🌲 a good news post of hope X

What to believe

Best Wishes

Ovacome support service festive opening hours

Chemotherapy didn’t work and my oncology team gave up on me, anyone advice where I could turn outside Netherlands ?

Bowel obstruction.

Any relief for acid reflux

OC and Polycystic Kidney Disease and potential reoccurrence

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive