Posts - My Ovacome | HealthUnlocked

My Ovacome

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Ovarian

Hello beautiful ladies, Has anyone been on Avastin or Elahere maintenance after chemo? If so can you share your experience. What were your side effects? How...

Hello beautiful ladies, Has anyone been on Avastin or Elahere maintenance after...

Pianoanddisco

•12 hours ago

6 Replies

Patient and Public Involvement and Engagement (PPIE) Representative for the ACTOv clinical trial

Dear All We have received the following information to share with you from the ACTOv trial team: We are looking for an enthusiastic and committed...

Dear All We have received the following information to share with you from the...

OvacomeSupport

Partner•2 days ago

3 Replies

OC3C survivor since 2009

Hi, I first joined this forum shortly after I was belatedly diagnosed in 2009. It was a very small place then, and I dejectedly detected a whiff of...

Hi, I first joined this forum shortly after I was belatedly diagnosed in 2009. ...

Lizzy-joined2009

•3 days ago

5 Replies

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Heartburn/indigestion

Hi everyone, I've been on naraparib for 6 months and just recently, last month or so, I've been experiencing indigestion and heartburn. I was fine beforehand...

Hi everyone, I've been on naraparib for 6 months and just recently, last month o...

Gerontious

•4 days ago

8 Replies

Ovarian Cancer Awareness Month is here! 🎗️✨

Ovarian Cancer Awareness Month is here! 🎗️✨ If you haven’t made OCAM plans yet, don’t stress! It’s still not too late to do your own thing this March and...

Ovarian Cancer Awareness Month is here! 🎗️✨ If you haven’t made OCAM plans y...

TheOvacomeTeam

Partner•4 days ago

6 Replies

Scar tissue lu🤔🫣

Hi everyone, I'm just checking in and hope everyone is as well as cam be expected and looking forward to Spring! I'm updating as I've been quiet since...

Hi everyone, I'm just checking in and hope everyone is as well as cam be expecte...

Newbery3

•4 days ago

2 Replies

High ALT, ALP & GGT & fatty liver!

Hello ladies! I was wondering if anyone else has had really high liver enzyme levels? I was diagnosed with HGSOC 3c in December 23, started chemo (paclitaxel...

Hello ladies! I was wondering if anyone else has had really high liver enzyme le...

DevonPaddleboarder

•4 days ago

8 Replies

Irinotecan

Hello,My mum is now tried on irinotecan ( first dose) for metastic ovarian cancer. She is resistant to caelyx. Anyone else has experience with it. Thank you...

Hello,My mum is now tried on irinotecan ( first dose) for metastic ovarian canc...

Mford786

•5 days ago

2 Replies

CA125

hello ladies. I had full hysterectomy and large cyst removed last July… was advised I had atypical hyperplasia but no cancer… just had bloods done as I am...

hello ladies. I had full hysterectomy and large cyst removed last July… was adv...

Nikki_55

•6 days ago

3 Replies

Join Ovacome at the London Marathon to cheer for our runners!

🎡Join Ovacome at the London Marathon to cheer loud and proud! 🙌🎉 On Sunday 27 April 2025, we’re coming together to celebrate and support our...

🎡Join Ovacome at the London Marathon to cheer loud and proud! 🙌🎉 On Sunday 2...

TheOvacomeTeam

Partner•7 days ago

Be the first to reply

Do you work for Brabners Law Firm?

Hello All, We are posting to ask if anyone works for the law firm Brabners https://www.brabners.com ? Their Foundation donates grants, however, in order to...

Hello All, We are posting to ask if anyone works for the law firm Brabners htt...

TheOvacomeTeam

Partner•8 days ago

Be the first to reply

Hair growth

In the scheme of things regarding ovarian cancer this question might seem trivial. My hair has grown back following chemo but after growing about 2 inches on...

In the scheme of things regarding ovarian cancer this question might seem trivia...

Gerontious

•8 days ago

11 Replies

ca125

I am about to start chemo carbo/taxol for a first recurrence HGOC. Please could you tell me how quickly Ca125 starts to come down. Is it from the first cycle...

I am about to start chemo carbo/taxol for a first recurrence HGOC. Please could ...

Hjsr2

•9 days ago

15 Replies

Run for Ovacome! Women's Run Series - London - 3 days left to sign-up

✨ THREE DAYS LEFT TO JOIN US! ⏰ Don’t miss your chance to be part of the first ever Women’s Run Series event in London on 8 March, kicking off Ovarian Cancer...

✨ THREE DAYS LEFT TO JOIN US! ⏰ Don’t miss your chance to be part of the first ...

OvacomeSupport

Partner•10 days ago

Be the first to reply

Niraparib alternative

Hi lovely ladies Can anyone explain the difference between Niraparib and Olaparib please? I have been on Niraparib since April last year following 2nd lot of...

Hi lovely ladies Can anyone explain the difference between Niraparib and Olapar...

Barmycharm

•10 days ago

6 Replies

what to do next?

I was initially diagnosed May 22 HG3OC. I had debulking surgery. I then had 6 rounds of carbo/taxol. I am BRAC1 and was on Olaparib. I was just going through...

I was initially diagnosed May 22 HG3OC. I had debulking surgery. I then had 6 ro...

KelOC38

•11 days ago

15 Replies

Re-occurrence

Hi Everyone, I’m needing some hope and advice right now if anyone can help. I was diagnosed with OC back in May 2019. I had Paclitaxol and Carboplatin with...

Hi Everyone, I’m needing some hope and advice right now if anyone can help. I...

Frenchhouse3

•12 days ago

19 Replies

Clear cell - CA125

Hope the above chart might help others. The Oct 2022 number was the result of a test as tummy was bloated following 3 weeks of a very nasty food...

Hope the above chart might help others. The Oct 2022 number was the result o...

JOY202452

•12 days ago

4 Replies

Raised Ca125 level, 15 month waiting list?

Hello all, I'm so sorry to bother you all, I am in the UK AND AM 36 years old. I have been having some awful problems for the last two months. Originally...

Hello all, I'm so sorry to bother you all, I am in the UK AND AM 36 years old...

Mamma12345

•12 days ago

24 Replies

Clear Cell Carcinoma

Hey All, I'm a newbie here posting on behalf of my mum, who has just been diagnosed with stage 1A ovarian clear cell carcinoma (OCCC). She had her debulking...

Hey All, I'm a newbie here posting on behalf of my mum, who has just been diagn...

Bettyb87

•13 days ago

15 Replies

Trials for first recurrence

Hi all, Does anyone have experience of any of the following currently running in the UK: DDriver Trial Gloriosa Soprano Piccos Any thoughts or feedback...

Hi all, Does anyone have experience of any of the following currently running i...

PyjamaDay

•14 days ago

5 Replies

gynaecology cancer study, get paid for a 60 minute “interview”

hi everyone, I have in the past completed an IQVIA survey for an ovarian cancer based study and have now been told of another research study that they are...

hi everyone, I have in the past completed an IQVIA survey for an ovarian canc...

Catfeeder

•15 days ago

Be the first to reply

ÇA 125 : 115

Hello again , I posted previously about my CA125 level rising ; I have just received my latest blood test results and it is at 115 . I am due to finish...

Hello again , I posted previously about my CA125 level rising ; I have just re...

Norelo8

•17 days ago

29 Replies

Research at the University of Liverpool with partners of those having cancer treatment

Hello All We've been contacted by researchers at the University of Liverpool who are looking for participants to take part in research. This is the...

Hello All We've been contacted by researchers at the University of Liverpool w...

OvacomeSupport

Partner•21 days ago

Be the first to reply

Topotecan

Hi, I am so wondering if someone received Topotecan as a treatment 3x 21 days.I have ovarian cancer plus pleural effusion and lymph nodes metastasis .

Hi, I am so wondering if someone received Topotecan as a treatment 3x 21 days.I ...

Green999

•21 days ago

1 Reply

pericardial effusion

Hi Ladies I am currently being treated for first recurrence and are getting Carbo/Doxil and Keytruda. I recently had an echocardiogram and it showed a lot of...

Hi Ladies I am currently being treated for first recurrence and are getting Ca...

Hockeymom52

•21 days ago

6 Replies

Hair loss

Hi to all you brave and resilient ladies I finished 6 treatments of carboplatin/paclitaxel in the summer of 2024. I had almost total scalp and body hair loss....

Hi to all you brave and resilient ladies I finished 6 treatments of carboplatin...

Caboodle

•21 days ago

18 Replies

Lymphoedema: Is it a risk after pelvic cancer treatment? - British Lymphoedema Society webinar

Dear all, Our friends at the British Lymphoedema Society have contacted us regarding an upcoming webinar that they are hosting as part of Lymphoedema...

Dear all, Our friends at the British Lymphoedema Society have contacted us reg...

OvacomeSupport

Partner•23 days ago

1 Reply

Laparoscopy for large possibly borderline cyst, frozen section

I’ve been diagnosed with a large (now 17cm) mucinous cyst - most likely benign or borderline. Has anyone had a similar or larger cyst (plus ovary) removed via...

I’ve been diagnosed with a large (now 17cm) mucinous cyst - most likely benign o...

SazzaLou

•24 days ago

1 Reply

Vagifem Pessaries and borderline ovarian tumours

I cannot find a definitive answer in any research. I have used Vagifem for 5 years for vaginal/bladder atrophy. I’m post menopausal by 16 years. I recently had...

I cannot find a definitive answer in any research. I have used Vagifem for 5 yea...

JustMeOK

•24 days ago

20 Replies

Write a post or ask a question

Posts - My Ovacome | HealthUnlocked

My Ovacome

Ovarian

Patient and Public Involvement and Engagement (PPIE) Representative for the ACTOv clinical trial

OC3C survivor since 2009

Heartburn/indigestion

Ovarian Cancer Awareness Month is here! 🎗️✨

Scar tissue lu🤔🫣

High ALT, ALP & GGT & fatty liver!

Irinotecan

CA125

Join Ovacome at the London Marathon to cheer for our runners!

Do you work for Brabners Law Firm?

Hair growth

ca125

Run for Ovacome! Women's Run Series - London - 3 days left to sign-up

Niraparib alternative

what to do next?

Re-occurrence

Clear cell - CA125

Raised Ca125 level, 15 month waiting list?

Clear Cell Carcinoma

Trials for first recurrence

gynaecology cancer study, get paid for a 60 minute “interview”

ÇA 125 : 115

Research at the University of Liverpool with partners of those having cancer treatment

Topotecan

pericardial effusion

Hair loss

Lymphoedema: Is it a risk after pelvic cancer treatment? - British Lymphoedema Society webinar

Laparoscopy for large possibly borderline cyst, frozen section

Vagifem Pessaries and borderline ovarian tumours

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