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My Ovacome

16,706 members • 19,219 posts

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How to cope with fear of cancer returning

Hi! I’ve now received the “all clear”, but the fear is still there. Has the cancer really gone? Will it come back? When will it return? Will I catch it in...

Hi! I’ve now received the “all clear”, but the fear is still there. Has the can...

•2 days ago

PARP inhibitor Zejula

Has anyone had an itchy scalp with this? If yes have you got any suggestions solutions?

Has anyone had an itchy scalp with this? If yes have you got any suggestions so...

•3 days ago

Chemo delayed

Hi , just had a phone call to cancel my chemo today as white blood cell have not recovered, has anybody else had this !!! It was going to be my second one so...

Hi , just had a phone call to cancel my chemo today as white blood cell have not...

•3 days ago

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Mammagram recall

Hi everyone, I have only posted a couple times on here so will give you a bit of background. July 2021 I found a lump in my stomach , went to GP and referred...

Hi everyone, I have only posted a couple times on here so will give you a bit of...

•4 days ago

just home after the debulking surgery…

Hi everyone I had keyhole surgery as planned which I’m relieved about! It took place on Thursday morning, and I was discharged today (Saturday morning). To...

Hi everyone I had keyhole surgery as planned which I’m relieved about! It took...

•4 days ago

brain tumour and and caelyx

hi ladies, just to let you know I had my first chemo on Wednesday and despite feeling tired today am feeling ok, so far! Looking at the lovely weather and...

hi ladies, just to let you know I had my first chemo on Wednesday and despite fe...

•5 days ago

ca 125

My mom have 3rd recurrance she start again carboplatin and palitaxel but after 2nd influsion there was terrible reaction and they stoped it and cleaned out,...

My mom have 3rd recurrance she start again carboplatin and palitaxel but after 2...

•6 days ago

Carboplatin, caelyx.

Hi I'm starting carboplatin & caelyx today due to 1st recurrence, I'm interested to know how others have found this, any tips etc., My last chemo I took...

Hi I'm starting carboplatin & caelyx today due to 1st recurrence, I'm interested...

•6 days ago

chemotherapy followed by maintenance avastin

I am getting carbo/taxol and my CA125 is 114. After 6 cycles the doctor wants to start avastin as maintenance. I am afraid that stopping the chemo and having...

I am getting carbo/taxol and my CA125 is 114. After 6 cycles the doctor wants t...

•7 days ago

Paying For Genomic Testing

Has anyone paid privately for Foundation One genomic testing? My mum is more than likely in her first recurrence after a short NED. I don't want to put her...

Has anyone paid privately for Foundation One genomic testing? My mum is more th...

Worrieddaughter95

•7 days ago

hair thinning

Hi , round one of chemo done second on Monday , side effects I’ve managed the sickness just about but it’s the fatigue that floored me . But day by day as you...

Hi , round one of chemo done second on Monday , side effects I’ve managed the si...

•7 days ago

Paclitaxel not working

hello everyone, I wondered if anybody had a similar experience and could offer some advice. I started on weekly Paclitaxel in January (second line treatment...

hello everyone, I wondered if anybody had a similar experience and could offer s...

•7 days ago

artistry 7 clinical trial

I will begin the artistry 7 trial in the next few weeks. Standard chemo has stopped working after. 4 reoccurrences , 7 different chemo/combos . Last Scan...

I will begin the artistry 7 trial in the next few weeks. Standard chemo has sto...

Lovetodiscodance57

•8 days ago

SASHAY …..My good friend and wonderful supportive true lady of the South

She is an iconic caring always positive person whose light is starting to dim quickly. We speak almost daily and is one of the classiest women, stoic and so...

She is an iconic caring always positive person whose light is starting to dim qu...

•8 days ago

clinical trial recommendations please

Good morning lovely ladies, I have just become platinum resistant and am meeting my onc later this morning to discuss scan results and possibly look at...

Good morning lovely ladies, I have just become platinum resistant and am meetin...

•8 days ago

reccurence in axillary node

has anyone recurred in this area? My mum has a suspicious lesion and a suspicious lymph node thanks!

has anyone recurred in this area? My mum has a suspicious lesion and a suspicio...

•8 days ago

g tube

I have stage 4 ovarian cancer. I was recently diagnosed with a bowel blockage. Ng tube did not work so I now have a g tube for stomach drainage and tpm for...

I have stage 4 ovarian cancer. I was recently diagnosed with a bowel blockage. N...

•10 days ago

experience with Paxitaxel & Carboplatin combo welcome

hi everyone, I’ve been diagnosed with stage 2A ovarian cancer. Had my surgery about 4 weeks ago. Starting Paxitaxel & Carboplatin this Wednesday. 6 sessions...

hi everyone, I’ve been diagnosed with stage 2A ovarian cancer. Had my surgery ...

•11 days ago

?overreacting

hi have known fixed hiatus hernia which I get a lot of reflux , recently had bloating, stomach pain with increased nausea and vomited, had diarrhoea too ,...

hi have known fixed hiatus hernia which I get a lot of reflux , recently had blo...

•11 days ago

bladder cancer

my partner has just been diagnosed with aggressive bladder cancer (I already have a rare type of cancer diagnosed in 2020 and now on watch and wait ) he has...

my partner has just been diagnosed with aggressive bladder cancer (I already hav...

Beachesinsummer

•12 days ago

Caelyx shortage

I have grade3c OC and its my second recurrence started caelyx and carboplatin last month due for 2nd lot this morning but yesterday afternoon was told that...

I have grade3c OC and its my second recurrence started caelyx and carboplatin la...

•13 days ago

Journalist working on a sensitively handled feature looking to hear voices of those living with a terminal illness

Good afternoon All This is a post to let you know that we have been approached by a journalist who is working on a sensitively handled feature for the weekend...

Good afternoon All This is a post to let you know that we have been approached ...

Partner•14 days ago

A question lovely ladies…

Hello lovely ladies. Could anybody who’s ‘watched and waited’ a recurrence before starting treatment tell me how long it was before things started to change...

Hello lovely ladies. Could anybody who’s ‘watched and waited’ a recurrence bef...

•14 days ago

Infrared sauna

Hi all, Just want to see if any of you are using infrared saunas and if so what's your opinion? Just read some interesting info but thought to ask the group X...

Hi all, Just want to see if any of you are using infrared saunas and if so what...

•14 days ago

Update and advice needed!!

Just a quick update and would also appreciate any advice.My lovely mum has met with the Consultant who reviewed her images. Ca 125 was 239. MRI liver normal...

Just a quick update and would also appreciate any advice.My lovely mum has met w...

•14 days ago

Genomics England Participant Panel seeking to expand

Good afternoon All We have been approached by the Head of Engagement at Genomics England who has asked us to share details about an opportunity to join their...

Good afternoon All We have been approached by the Head of Engagement at Genomic...

Partner•15 days ago

Ramp 201 Trial

Good evening everyone, hope you all have had a good day, or a better one. Just wondering if any of you may be on the Ramp 201 trial, or Frame. I feel I...

Good evening everyone, hope you all have had a good day, or a better one. Just ...

•16 days ago

brain tumour and hospital follow up

hi ladies, just a quick update. Now home from my appointment with consultant and I was absolutely terrified of what was going to be said. Well after...

hi ladies, just a quick update. Now home from my appointment with consultant an...

•16 days ago

Documentary research by film student

Hello All We've been asked to share the following information by a documentary student who is making a film about ovarian cancer. "Hello, I’m Huiju Park and...

Hello All We've been asked to share the following information by a documentary ...

Partner•17 days ago

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New episode of Living with Ovarian Cancer Podcast

“Living with Ovarian Cancer Podcast” has a new episode. Do head over to listen to it wherever you listen to your podcasts or by following the link below. In...

“Living with Ovarian Cancer Podcast” has a new episode. Do head over to listen t...

•17 days ago

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