Posts - My Ovacome | HealthUnlocked

My Ovacome

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Caelyx side effects

Evening I am struggling with eating most meals feeling sick and/ bloated half way through or straight after. Been having smaller portions and avoiding rich...

Evening I am struggling with eating most meals feeling sick and/ bloated half ...

Tallulah55

•3 hours ago

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Absolutely fed up

Hello Peewee here just an update. Today I heard finally from Royal Marsdenbthat they will NOT take me on as a patient. I am so upset their excuse being I am...

Hello Peewee here just an update. Today I heard finally from Royal Marsdenbthat...

Peewe

•5 hours ago

2 Replies

Residual detection

Hi everyone. My daughter has recently had a NED scan but CA125 is rising by very small numbers. She is currently on Niraparib 100mg but this may be having an...

Hi everyone. My daughter has recently had a NED scan but CA125 is rising by ver...

BrandyHorse

•8 hours ago

6 Replies

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MRI shows pedunculated fibroid and what they think is an endometrioma on my ovary. Is this problematic or require surgery?

After a CT scan and ultrasound which couldn't be positive if there was a mass on my ovary or not, an MRI last week shows what they think to be a 3.2 cm...

After a CT scan and ultrasound which couldn't be positive if there was a mass on...

starrynight5626

•12 hours ago

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Saturday 27th July - Newcastle Health and Wellbeing Day

Good morning all. I'm here with the details for our next Health and Wellbeing Day in Newcastle, taking place on Saturday 27th July. We are pleased to...

Good morning all. I'm here with the details for our next Health and Wellbeing Da...

OvacomeSupport

Partner•15 hours ago

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Do you work for Schuh shoe company?

Hello All We are posting to ask if anyone works for Schuh shoe company? We would like to make an application to their charitable trust for funding towards our...

Hello All We are posting to ask if anyone works for Schuh shoe company? We woul...

TheOvacomeTeam

Partner•1 day ago

2 Replies

profile is tomato

hello everyone I do read a lot of things, I haven’t had operation,had 6 chemos could not remove all the cancer to much in peritoneal area, had second option ,...

hello everyone I do read a lot of things, I haven’t had operation,had 6 chemos ...

Balliol15

•2 days ago

5 Replies

struggling after surgery

Hi I had debulking surgery 25th June, good outcome all visible cancer removed which is great news, Post surgery it’s been so tough. Really sick with green yuk...

Hi I had debulking surgery 25th June, good outcome all visible cancer removed wh...

Sunsetime

•2 days ago

12 Replies

Avastin V Niraparib-clear cell cancer

Morning all Still got my head in the clouds after finding out I have no evidence of disease this week after 1st line treatment for stage 4 clear cell! 😊 Had a...

Morning all Still got my head in the clouds after finding out I have no evidence...

Kazzh

•3 days ago

20 Replies

cisplatin

Hi, I was on Carboplatin, Avastin and Zem, but I got an allergic reaction from Carboplatin. My oncologist told me he will replace Carboplatin with Cisplarin...

Hi, I was on Carboplatin, Avastin and Zem, but I got an allergic reaction from...

Green999

•4 days ago

6 Replies

MRI results came back. Do you think I will need surgery?

So my MRI results came back today. This is after a CT and ultrasound couldnt really tell what it was. The results came back as the pedunculated fibroid, which...

So my MRI results came back today. This is after a CT and ultrasound couldnt rea...

starrynight5626

•4 days ago

3 Replies

has anyone done laparoscopic for removing tumor partly in the pancreas tail and stomach?

I was told that I needed a surgery instead of laparoscopic because of the sensitive location of my 3.1 cm tumor. It’s actually in my pancreas tail and part of...

I was told that I needed a surgery instead of laparoscopic because of the sensi...

marmay88o

•4 days ago

3 Replies

Wondering what to do

Hello I have not posted for a while but I wondered if any had any thoughts to help me with my dilemma. I have had 18 rounds of chemo and rucaparib all of which...

Hello I have not posted for a while but I wondered if any had any thoughts to he...

BadgerBright

•5 days ago

14 Replies

What's on at Ovacome next week? (week starting Monday 1 July 2024)

Good afternoon everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next......

Good afternoon everyone, This is our weekly post to let you know about the di...

OvacomeSupport

Partner•6 days ago

1 Reply

laparoscopy

Anyone have experience laparoscopy to remove mass on one ovary, removal of one ovary and Fallopian tube. Would like to know if you had this surgery and how you...

Anyone have experience laparoscopy to remove mass on one ovary, removal of one o...

Ova104

•6 days ago

3 Replies

Low platelets advice

Hi all, Mum has just had her 4th cycle of chemo but her platelets have been at their lowest so far and a little concerned. Chemo was delayed by almost a week...

Hi all, Mum has just had her 4th cycle of chemo but her platelets have been at...

Fourbytwo93

•6 days ago

10 Replies

Tomorrow is finally the day of my MRI after waiting 3 1/2 months since the ultrasound and CT scan couldn't be sure of a mass or not.

After having to postpone my original MRI appt last month due to the death of my mother, I am finally getting it done tomorrow. Those who haven't read my...

After having to postpone my original MRI appt last month due to the death of my ...

starrynight5626

•6 days ago

6 Replies

Best news today!......🙌

So happy & relieved to hear the news I've been waiting for today - I'm NED, no evidence of disease 👏 This stage 4 clear cell cancer, often resistant to chemo,...

So happy & relieved to hear the news I've been waiting for today - I'm NED, no e...

Kazzh

•7 days ago

57 Replies

Consider the options?

Post total hysterectomy, etc., one cycle of carboplatin (couldn't tolerate paclitaxel) and now on Avastin i/v and Olaparib. CA 9, which is fantastic. Side...

Post total hysterectomy, etc., one cycle of carboplatin (couldn't tolerate pacli...

Pawpaw22

•8 days ago

11 Replies

Gynaecological cancers support service - Hereford

Dear all, We have been in touch with a local support service for anyone affected by gynaecological cancers, which takes place in Hereford. Yeleni Support and...

Dear all, We have been in touch with a local support service for anyone affecte...

OvacomeSupport

Partner•8 days ago

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Travel insurance

I am finally in a position to go abroad after 18 since my diagnosis. I’m halfway through my chemo after a reoccurrence. Can anyone recommend a good insurance...

I am finally in a position to go abroad after 18 since my diagnosis. I’m halfway...

Tallulah55

•11 days ago

18 Replies

not sure what’s going on

hi. I’m Jennie. Hope it’s ok to post here as I’ve not been diagnosed yet. I’ve been to my GP about 12 times over the last 5 months. Also been to aA&E several...

hi. I’m Jennie. Hope it’s ok to post here as I’ve not been diagnosed yet. I’ve ...

MillieEllie

•11 days ago

44 Replies

Last chance to sign up! Birmingham Health and Wellbeing Day - 29th June

Good morning all, Please sign up as soon as possible if you would like to join our Health and Wellbeing Day next Saturday 29th June at The Genting Hotel,...

Good morning all, Please sign up as soon as possible if you would like to join ...

OvacomeSupport

Partner•12 days ago

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Hernia surgery

Hi lovely ladies hope you're enjoying the sun ☀️. I'm having hernia surgery soon and just wondered If anyone has any experience of this. Recovery time etc. I...

Hi lovely ladies hope you're enjoying the sun ☀️. I'm having hernia surgery soon...

verityann

•12 days ago

8 Replies

raise ca125

hey , I had the ca125 blood tests and results came back at 57. Have my scan tomorrow. I am a mum of 3 young children and I’m terrified that it will be...

hey , I had the ca125 blood tests and results came back at 57. Have my scan to...

Nazzy14

•12 days ago

5 Replies

ovarian cysts

Hi everyone. I’m new here and hope it’s ok to post my particular circumstances to see if anyone here has any advice or insights they can share? I am 54...

Hi everyone. I’m new here and hope it’s ok to post my particular circumstances t...

daintees

•12 days ago

3 Replies

Bone Marrow

Hi everyone. I am seeking your helpful advice once again. My daughter was diagnosed with High Serous Grade 3 Ovarian Cancer in June 2023 with full...

Hi everyone. I am seeking your helpful advice once again. My daughter was diag...

BrandyHorse

•12 days ago

5 Replies

What's on at Ovacome next week? (week starting Monday 24 June 2024)

Good afternoon everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next......

Good afternoon everyone, This is our weekly post to let you know about the di...

OvacomeSupport

Partner•13 days ago

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Ascites issues

I have recently been diagnosed with stage 4b womb cancer spread to ovaries and abdomen. My worst symptoms have come from ascites. I have had 2 chemo cycles...

I have recently been diagnosed with stage 4b womb cancer spread to ovaries and a...

Pinkranger1

•13 days ago

4 Replies

Anyone used tamoxifen for recurrence of ovarian cancer?

Hi dear ladies, I had CA125 check after 2,5 months and it jumped from 12 to 88 (since debulking surgery in April 2023, it was max 8). I had some minor...

Hi dear ladies, I had CA125 check after 2,5 months and it jumped from 12 to 8...

Beatyourself

•14 days ago

21 Replies

Write a post or ask a question

Posts - My Ovacome | HealthUnlocked

My Ovacome

Caelyx side effects

Absolutely fed up

Residual detection

MRI shows pedunculated fibroid and what they think is an endometrioma on my ovary. Is this problematic or require surgery?

Saturday 27th July - Newcastle Health and Wellbeing Day

Do you work for Schuh shoe company?

profile is tomato

struggling after surgery

Avastin V Niraparib-clear cell cancer

cisplatin

MRI results came back. Do you think I will need surgery?

has anyone done laparoscopic for removing tumor partly in the pancreas tail and stomach?

Wondering what to do

What's on at Ovacome next week? (week starting Monday 1 July 2024)

laparoscopy

Low platelets advice

Tomorrow is finally the day of my MRI after waiting 3 1/2 months since the ultrasound and CT scan couldn't be sure of a mass or not.

Best news today!......🙌

Consider the options?

Gynaecological cancers support service - Hereford

Travel insurance

not sure what’s going on

Last chance to sign up! Birmingham Health and Wellbeing Day - 29th June

Hernia surgery

raise ca125

ovarian cysts

Bone Marrow

What's on at Ovacome next week? (week starting Monday 24 June 2024)

Ascites issues

Anyone used tamoxifen for recurrence of ovarian cancer?

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