Posts - My Ovacome | HealthUnlocked

My Ovacome

17,677 members • 19,942 posts

All posts for January 2019

Athena Trial- Advice and help please?

Hi Ive had some good news is that ive shown a good response to 1st line chemo and my diaphragm tumour has shrunk to 1cm (after 4 rounds) from 3 cm after 2....

Hi Ive had some good news is that ive shown a good response to 1st line chemo an...

NIKKibailie

•5 years ago

9 Replies

Another new approach!!

I just wanted to let u all know I'm still fighting!! After Avastin, and 2 platinum chemos in addition to all the rest and olaparib, which was great for 18...

I just wanted to let u all know I'm still fighting!! After Avastin, and 2 platin...

ingrid48

•5 years ago

10 Replies

Olaparib - Another ClearScan

Hard post to write when I know so many are having such a rough time and believe me when I say I think of all you ladies regularly and that I appreciate how...

Hard post to write when I know so many are having such a rough time and believe ...

Katmal-UK

•5 years ago

81 Replies

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Braca testing and Parps

Hi Ladies, I requested a braca test from my Oncology Nurse by phone and she told me that there was no point in me having the test because my type of Ovarian...

Hi Ladies, I requested a braca test from my Oncology Nurse by phone and she told...

Hidden

•5 years ago

23 Replies

R.I.P barbara3

Sorry to report ladies that my wife’s battle came to it’s inevitable conclusion on Sunday 27th January. She had been fighting this horrible disease for 7 years...

Sorry to report ladies that my wife’s battle came to it’s inevitable conclusion ...

barbara3

•5 years ago

51 Replies

Infusion port

Hi lovely ladies, today is my last chemo (2nd line) of Gemcitabine and Cisplatin. I am so looking forward to having a break from the chemo; must say it was...

Hi lovely ladies, today is my last chemo (2nd line) of Gemcitabine and Cisplatin...

Grace-53

•5 years ago

13 Replies

Third chemo, ct scan results

Hope everyone is doing well, my mom went in for her third session of chemo today. With that came her ct scan results. The pa said everything was positive but...

Hope everyone is doing well, my mom went in for her third session of chemo today...

Lind58

•5 years ago

2 Replies

Raising Awareness?

I recently wrote to a popular weekly womens magazine regarding Ovarian Cancer, in a hope that they would publish an article about possible symptoms and what to...

I recently wrote to a popular weekly womens magazine regarding Ovarian Cancer, i...

Hidden

•5 years ago

30 Replies

Ovarian Cancer Stage 4

I'm relatively new here so I hope I'm posting correctly. I was diagnosed with stage 4 ovarian cancer on December 26, 1017. Underwent a six hour surgery on...

I'm relatively new here so I hope I'm posting correctly. I was diagnosed with s...

Darbost

•5 years ago

46 Replies

Recurring ovarian cancer?

Hi I’m new on here. Has anyone had a unilateral salpingo-oopherectomy and had the cancer recur? I was diagnosed with Stage 1a Adeno carcinoma at 26, in 2008....

Hi I’m new on here. Has anyone had a unilateral salpingo-oopherectomy and had th...

Brunette82

•5 years ago

8 Replies

Further research evidence of benefits of aspirin or ibuprofen etc in preventing cancer recurrence

See the link below. There have been several articles today in various newspapers including Telegraph about this research, recently reported in the Journal of...

See the link below. There have been several articles today in various newspape...

drdu

•5 years ago

27 Replies

Sorry I have not been able to post , how is Kyssy and lily Anne..Lorraine

Hi ladies I.m sorry I have not been able to post I do try and read when potable' Not too well but still here I would like to know about Kyssy and Lilly Anne...

Hi ladies I.m sorry I have not been able to post I do try and read when potable'...

lorraine71-Australia

•5 years ago

32 Replies

Oesteopenia and medications - update

For IrishMollyO and others Saw my doctor today re. oesteopenia. She said my lastDEXA scan reported low fracture risk even though my Tscore for my spine is -2 -...

For IrishMollyO and others Saw my doctor today re. oesteopenia. She said my last...

thomas62

•5 years ago

8 Replies

Stage 1A Mucinous Borderline Ovarian Tumor, 27 and don't know what to do.

I have 4 kids, so that part of my life is over. I am incredibly happily married and Id never dream of remarrying and wanting more children. That chapter has...

I have 4 kids, so that part of my life is over. I am incredibly happily married ...

Hidden

•5 years ago

18 Replies

Niraparib

Hi I haven't posted for a while but keep up with your posts. I have been on Niraparib since October. Started on 300mg but as platelets took a dive after 2...

Hi I haven't posted for a while but keep up with your posts. I have been on Nira...

Angie1412

•5 years ago

19 Replies

Alternative therapies - reminder

Dear All Following some recent replies to posts on the forum, this is a reminder regarding alternative therapies. We do not want to prevent your discussion of...

Dear All Following some recent replies to posts on the forum, this is a reminde...

TheOvacomeTeam

Partner•5 years ago

5 Replies

Event in Cardiff - 27 March 2019

Dear All We are working with Ovarian Cancer Action and Maggie's Centres to offer a day of research, information and support in Cardiff. The event is free to...

Dear All We are working with Ovarian Cancer Action and Maggie's Centres to offer...

OvacomeSupport

Partner•5 years ago

Be the first to reply

Anxious times

Hi. I am new to the site and this is my first post. I have fourth stage ovarian cancer. I have had two rounds of chemo and now suffer with chronic...

Hi. I am new to the site and this is my first post. I have fourth stage ovarian ...

Hidden

•5 years ago

17 Replies

Rotterdam Regimen- any information please

Hello all. I have just started on the Rotterdam Regimen as my second line treatment. I was having Avastin and had 9 treatments but now my CA125 has increased...

Hello all. I have just started on the Rotterdam Regimen as my second line treatm...

Assamtea

•5 years ago

6 Replies

Olaparib

My Oncologist rang yesterday to say that my blood test for BRCA had still not returned as he hoped, I have now missed the starting criteria required, you must...

My Oncologist rang yesterday to say that my blood test for BRCA had still not re...

Hidden

•5 years ago

13 Replies

Niraparib

I saw oncologist yesterday and got results of me scan. Not very good. Also my CA125 has been rising every time I have a blood test. I have been on...

I saw oncologist yesterday and got results of me scan. Not very good. Also my ...

Katiebairdie

•5 years ago

8 Replies

Talking about death

Did anyone see last night’s BBC programme ‘we need to talk about death’? As someone who was stage 4 and on palliative care from diagnosis, I found it really...

Did anyone see last night’s BBC programme ‘we need to talk about death’? As some...

PhillipandBettykid

•5 years ago

10 Replies

Zejula update

Well after a good start, 4 weeks on Zejula, and feeling quite good apart from insomnia....Sunday hit me like a truck!! Since then exhaustion has taken over,...

Well after a good start, 4 weeks on Zejula, and feeling quite good apart from in...

Samjane

•5 years ago

9 Replies

NED

Just back from skiing the three valleys. I have completed my 18 avastin treatments and my last body ct scan and brain mri are clear. The area they were...

Just back from skiing the three valleys. I have completed my 18 avastin treatmen...

ShazD

•5 years ago

14 Replies

Question about Olaparib after frontline chemo

Dear Ladies, I know there's been a lot of discussion on here about Olaparib which I think is currently licensed to be given as maintenance after second...

Dear Ladies, I know there's been a lot of discussion on here about Olaparib whic...

sticky3006

•5 years ago

8 Replies

Long term Avastin

I’m new here and I have been in remission (2nd time) for 16 months and will have my 32 Avastin infusion next week. Has anyone been on Avastin for a long time...

I’m new here and I have been in remission (2nd time) for 16 months and will have...

Jinbear

•5 years ago

3 Replies

Nervous

I am on Doxil and Avastin I am nervous because my CA 125 was 48 I had a cold has anyone experienced a rise in this number My oncologist says not to worry but I...

I am on Doxil and Avastin I am nervous because my CA 125 was 48 I had a cold has...

Dbslp1985

•5 years ago

6 Replies

Following on from my post on Avastin length of treatment....

Well after a lot of thinking and reading I've decided to stop Avastin, I'm calling my oncologist tomorrow to call a halt. My life is starting to feel like it...

Well after a lot of thinking and reading I've decided to stop Avastin, I'm calli...

Hidden

•5 years ago

45 Replies

Avastin

Hi everyone, Can anyone advise me about Avastin and the criteria for having it in the UK for first line treatment for stage 3 ovarian cancer along with...

Hi everyone, Can anyone advise me about Avastin and the criteria for having it i...

Craftycromwel

•5 years ago

14 Replies

So glad

Wow so glad I read everyone's replies about avastin.my nose is like the Sahara desert!I m very sensitive to smells.but avastin has helped me greatly.so glad...

Wow so glad I read everyone's replies about avastin.my nose is like the Sahara ...

Clarise

•5 years ago

2 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for January 2019

Athena Trial- Advice and help please?

Another new approach!!

Olaparib - Another ClearScan

Braca testing and Parps

R.I.P barbara3

Infusion port

Third chemo, ct scan results

Raising Awareness?

Ovarian Cancer Stage 4

Recurring ovarian cancer?

Further research evidence of benefits of aspirin or ibuprofen etc in preventing cancer recurrence

Sorry I have not been able to post , how is Kyssy and lily Anne..Lorraine

Oesteopenia and medications - update

Stage 1A Mucinous Borderline Ovarian Tumor, 27 and don't know what to do.

Niraparib

Alternative therapies - reminder

Event in Cardiff - 27 March 2019

Anxious times

Rotterdam Regimen- any information please

Olaparib

Niraparib

Talking about death

Zejula update

NED

Question about Olaparib after frontline chemo

Long term Avastin

Nervous

Following on from my post on Avastin length of treatment....

Avastin

So glad

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