Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for May 2023

How to cope with fear of cancer returning

Hi! I’ve now received the “all clear”, but the fear is still there. Has the cancer really gone? Will it come back? When will it return? Will I catch it in...

Hi! I’ve now received the “all clear”, but the fear is still there. Has the can...

Hailun

•2 years ago

34 Replies

PARP inhibitor Zejula

Has anyone had an itchy scalp with this? If yes have you got any suggestions solutions?

Has anyone had an itchy scalp with this? If yes have you got any suggestions so...

Wirralian

•2 years ago

5 Replies

Chemo delayed

Hi , just had a phone call to cancel my chemo today as white blood cell have not recovered, has anybody else had this !!! It was going to be my second one so...

Hi , just had a phone call to cancel my chemo today as white blood cell have not...

Cazy1010

•2 years ago

18 Replies

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Mammagram recall

Hi everyone, I have only posted a couple times on here so will give you a bit of background. July 2021 I found a lump in my stomach , went to GP and referred...

Hi everyone, I have only posted a couple times on here so will give you a bit of...

Weeworrier

•2 years ago

5 Replies

just home after the debulking surgery…

Hi everyone I had keyhole surgery as planned which I’m relieved about! It took place on Thursday morning, and I was discharged today (Saturday morning). To...

Hi everyone I had keyhole surgery as planned which I’m relieved about! It took...

Atai

•2 years ago

22 Replies

brain tumour and and caelyx

hi ladies, just to let you know I had my first chemo on Wednesday and despite feeling tired today am feeling ok, so far! Looking at the lovely weather and...

hi ladies, just to let you know I had my first chemo on Wednesday and despite fe...

Joanie12

•2 years ago

4 Replies

ca 125

My mom have 3rd recurrance she start again carboplatin and palitaxel but after 2nd influsion there was terrible reaction and they stoped it and cleaned out,...

My mom have 3rd recurrance she start again carboplatin and palitaxel but after 2...

Inguc_is

•2 years ago

4 Replies

Carboplatin, caelyx.

Hi I'm starting carboplatin & caelyx today due to 1st recurrence, I'm interested to know how others have found this, any tips etc., My last chemo I took...

Hi I'm starting carboplatin & caelyx today due to 1st recurrence, I'm interested...

1821

•2 years ago

25 Replies

chemotherapy followed by maintenance avastin

I am getting carbo/taxol and my CA125 is 114. After 6 cycles the doctor wants to start avastin as maintenance. I am afraid that stopping the chemo and having...

I am getting carbo/taxol and my CA125 is 114. After 6 cycles the doctor wants t...

Alex29

•2 years ago

15 Replies

Paying For Genomic Testing

Has anyone paid privately for Foundation One genomic testing? My mum is more than likely in her first recurrence after a short NED. I don't want to put her...

Has anyone paid privately for Foundation One genomic testing? My mum is more th...

Worrieddaughter95

•2 years ago

8 Replies

hair thinning

Hi , round one of chemo done second on Monday , side effects I’ve managed the sickness just about but it’s the fatigue that floored me . But day by day as you...

Hi , round one of chemo done second on Monday , side effects I’ve managed the si...

Cazy1010

•2 years ago

3 Replies

Paclitaxel not working

hello everyone, I wondered if anybody had a similar experience and could offer some advice. I started on weekly Paclitaxel in January (second line treatment...

hello everyone, I wondered if anybody had a similar experience and could offer s...

Narna1

•2 years ago

11 Replies

artistry 7 clinical trial

I will begin the artistry 7 trial in the next few weeks. Standard chemo has stopped working after. 4 reoccurrences , 7 different chemo/combos . Last Scan...

I will begin the artistry 7 trial in the next few weeks. Standard chemo has sto...

Lovetodiscodance57

•2 years ago

2 Replies

SASHAY …..My good friend and wonderful supportive true lady of the South

She is an iconic caring always positive person whose light is starting to dim quickly. We speak almost daily and is one of the classiest women, stoic and so...

She is an iconic caring always positive person whose light is starting to dim qu...

Summergold2

•2 years ago

45 Replies

clinical trial recommendations please

Good morning lovely ladies, I have just become platinum resistant and am meeting my onc later this morning to discuss scan results and possibly look at...

Good morning lovely ladies, I have just become platinum resistant and am meetin...

Riverflo

•2 years ago

9 Replies

reccurence in axillary node

has anyone recurred in this area? My mum has a suspicious lesion and a suspicious lymph node thanks!

has anyone recurred in this area? My mum has a suspicious lesion and a suspicio...

Formydearmum

•2 years ago

4 Replies

g tube

I have stage 4 ovarian cancer. I was recently diagnosed with a bowel blockage. Ng tube did not work so I now have a g tube for stomach drainage and tpm for...

I have stage 4 ovarian cancer. I was recently diagnosed with a bowel blockage. N...

Cancerfree57

•2 years ago

1 Reply

experience with Paxitaxel & Carboplatin combo welcome

hi everyone, I’ve been diagnosed with stage 2A ovarian cancer. Had my surgery about 4 weeks ago. Starting Paxitaxel & Carboplatin this Wednesday. 6 sessions...

hi everyone, I’ve been diagnosed with stage 2A ovarian cancer. Had my surgery ...

Elifebru

•2 years ago

17 Replies

?overreacting

hi have known fixed hiatus hernia which I get a lot of reflux , recently had bloating, stomach pain with increased nausea and vomited, had diarrhoea too ,...

hi have known fixed hiatus hernia which I get a lot of reflux , recently had blo...

Cathhunt

•2 years ago

12 Replies

bladder cancer

my partner has just been diagnosed with aggressive bladder cancer (I already have a rare type of cancer diagnosed in 2020 and now on watch and wait ) he has...

my partner has just been diagnosed with aggressive bladder cancer (I already hav...

Beachesinsummer

•2 years ago

5 Replies

Caelyx shortage

I have grade3c OC and its my second recurrence started caelyx and carboplatin last month due for 2nd lot this morning but yesterday afternoon was told that...

I have grade3c OC and its my second recurrence started caelyx and carboplatin la...

Fizzgirl

•2 years ago

12 Replies

Journalist working on a sensitively handled feature looking to hear voices of those living with a terminal illness

Good afternoon All This is a post to let you know that we have been approached by a journalist who is working on a sensitively handled feature for the weekend...

Good afternoon All This is a post to let you know that we have been approached ...

OvacomeSupport

Partner•2 years ago

2 Replies

A question lovely ladies…

Hello lovely ladies. Could anybody who’s ‘watched and waited’ a recurrence before starting treatment tell me how long it was before things started to change...

Hello lovely ladies. Could anybody who’s ‘watched and waited’ a recurrence bef...

Emmacrispins

•2 years ago

17 Replies

Infrared sauna

Hi all, Just want to see if any of you are using infrared saunas and if so what's your opinion? Just read some interesting info but thought to ask the group X...

Hi all, Just want to see if any of you are using infrared saunas and if so what...

Newbery3

•2 years ago

19 Replies

Update and advice needed!!

Just a quick update and would also appreciate any advice.My lovely mum has met with the Consultant who reviewed her images. Ca 125 was 239. MRI liver normal...

Just a quick update and would also appreciate any advice.My lovely mum has met w...

ORGM

•2 years ago

7 Replies

Genomics England Participant Panel seeking to expand

Good afternoon All We have been approached by the Head of Engagement at Genomics England who has asked us to share details about an opportunity to join their...

Good afternoon All We have been approached by the Head of Engagement at Genomic...

OvacomeSupport

Partner•2 years ago

8 Replies

Ramp 201 Trial

Good evening everyone, hope you all have had a good day, or a better one. Just wondering if any of you may be on the Ramp 201 trial, or Frame. I feel I...

Good evening everyone, hope you all have had a good day, or a better one. Just ...

jsc50

•2 years ago

24 Replies

brain tumour and hospital follow up

hi ladies, just a quick update. Now home from my appointment with consultant and I was absolutely terrified of what was going to be said. Well after...

hi ladies, just a quick update. Now home from my appointment with consultant an...

Joanie12

•2 years ago

11 Replies

Documentary research by film student

Hello All We've been asked to share the following information by a documentary student who is making a film about ovarian cancer. "Hello, I’m Huiju Park and...

Hello All We've been asked to share the following information by a documentary ...

OvacomeSupport

Partner•2 years ago

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New episode of Living with Ovarian Cancer Podcast

“Living with Ovarian Cancer Podcast” has a new episode. Do head over to listen to it wherever you listen to your podcasts or by following the link below. In...

“Living with Ovarian Cancer Podcast” has a new episode. Do head over to listen t...

Levanah

•2 years ago

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Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for May 2023

How to cope with fear of cancer returning

PARP inhibitor Zejula

Chemo delayed

Mammagram recall

just home after the debulking surgery…

brain tumour and and caelyx

ca 125

Carboplatin, caelyx.

chemotherapy followed by maintenance avastin

Paying For Genomic Testing

hair thinning

Paclitaxel not working

artistry 7 clinical trial

SASHAY …..My good friend and wonderful supportive true lady of the South

clinical trial recommendations please

reccurence in axillary node

g tube

experience with Paxitaxel & Carboplatin combo welcome

?overreacting

bladder cancer

Caelyx shortage

Journalist working on a sensitively handled feature looking to hear voices of those living with a terminal illness

A question lovely ladies…

Infrared sauna

Update and advice needed!!

Genomics England Participant Panel seeking to expand

Ramp 201 Trial

brain tumour and hospital follow up

Documentary research by film student

New episode of Living with Ovarian Cancer Podcast

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