I was diagnosed with 2b ovarian Cancer in May 22 I consequently had a hysterectomy, salpingo-oophrectomy laprascopically. NED after my surgery followed by 6 cycles of Chemotherapy, which I completed in December.
My post treatment scan was clear and my CA125 was 10. I’ve been doing really well getting back to some normality.
A week ago I started to get frequency. Which disturbed me slightly as that was one of the symptoms I had when first diagnosed .
I’ve been in touch with my team who are not concerned as they have run my bloods again and they are normal. Urinalysis was clear. My CA125 was 11 so all good.
Has anybody else experienced these issues .
It would be lovely to hear from you.
I’m awaiting to see gynaecology team to see if I need uridynamics
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Hota
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Yes ever since my hysterectomy in 2020 I have experienced this due to the surgical menopause. I sometimes don't even make it to the toilet as I'm sure my pelvic floor muscles don't work how they used to work. I got rediagnosed 2022 and since that operation I feel I've got worse so I'm def putting mine down to menopause and op
Hi yes after chemo I had a lot of bladder problems, constant UTIs urgency. Had a terrible time until I read on a forum about probiotics, I now take a 500 billion probiotic easy to buy at well known health store, been so much better and UTIs have stopped. I have to be careful not to have acid food and drink eg wine, fizzy drinks, vinegar etc. Worth a try good luck x
Hi. You didn’t mention what your CA 125 was at diagnosis. If it’s a good marker for you I wouldn’t worry. However it’s not for me; I would need a scan if I had symptoms. Give it a month and see if it persists, but hopefully it’s not a recurrence.
what an annoying feeling. They can give you meds. Stress the importance to them so they don’t blow you off. Squeaky Wheel. I learned I have to be my own advocate!
yes I suffer the same too, It got a bit better over the years since my hysterectomy but now 5 years on i've had another abdominal surgery and now my bladder is even weaker that cos I'm on chemo again, I got the hot sweats at night but now I wondered if I had wet myself although it didn't smell like I had, it's definitely weaker and I am trying to do poor pelvic floor but it doesn't help the fact that I now have a stoma bag that needs to be more emptied than my bladder but everytime you sit on loo to empty bag you 'can't help' but 'go' either so surely that will make me weaker still. I'm so worried about wetting the bed and happening outside when I'm already anxious about the stoma leaking.. as it has done now 4 times although now it's been a month with no leaks so that's great....
Thank you for your reply. I'm so sorry to hear that you've been experiencing these difficulties. You mentioned having a stoma bag and that this has been causing you some anxiety. I just wanted to let you know about Ovacome's friendly monthly online stoma support group that you would be warmly welcomed to attend. The group is a safe, relaxed and informal environment space for anyone living with a colostomy, ileostomy or urostomy to chat with others in similar circumstances. There will be also be a stoma nurse available to speak to during most sessions. To learn more about the group and to sign up, please visit: ovacome.org.uk/event/stoma-... .
Please don't hesitate to get in touch if you have any questions or if there's anything we may be able to support you with. You can message us directly through this forum, call us on 0800 008 7054, or send us an email via support@ovacome.org.uk. We're here Monday - Friday, 10am - 5pm, to help with questions, provide information or just have a chat about anything on your mind.
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