You can read my bio but basically, diagnosed 29 years ago when I was 34 years old with OC. I have been very fortunate not to have had any recurrence but recently had a good scare. Preventative lung ct picked up an incidental finding which frightened me for past two years. "Inteterminate soft tissue lesions in presacral space, could be post surgical but can't exclude peritoneal, metastatic seedings." Fast forward - after a repeat CT/contrast last month, to check for stability, there was a minor change in the size of the lesion. At this point it was recommended to get a PET/CT which I finally got the courage to do. I feel so bad for many of you that have to wait and wait for the results. I had my results within the hour on MyChart. No evidence of malignancy. I was thrilled. I point this out and decided to tell this story because I know how you all live test to test, CT to CT. Don't hesitate to push the envelope with your care team, obgyn, oncologist or whatever you need. Peace of mind matters most. I'm always here if you ever need an ear to listen. Just because I had this 29 years ago doesn't mean it's not with me every day. Keep on fighting!
All in this together: You can read my bio but... - My Ovacome
All in this together
Glad you’re still doing OK! I often wonder, too, if I should still be on this group, replying occasionally…after 20 years of being OK 🤞.
However, as you say, there’s always that little voice in the back of your mind, “Is it back?”.
It makes sense to check up whenever that little voice appears.
May you continue to do well.
Love Wendy xx
two amazing ladies!
Please stay on the group, it gives me hope. I was diagnosed with Stage 2b high grade last year.
Love and hugs. Beth x
Amazing both.Such inspirational posts.xx
Thanks for the positive post! 💖
loved to read both your posts. please keep inspiring us! Wendy, it was so good to read your bio and seeing how you are giving back to the community. I am struggling where I live with where to start; now I am determined to try more.
please feel free to message me if you need any support with this xx
Thank you for your post. It gives me hope. I was diagnosed with Stage 2b high grade last year.
Love and hugs Beth x
All the very best, the results for treatment for this are promising 🤞xx
It’s always great to read posts from ladies that are doing so well years after diagnosis, keep them coming 🥰 ! X
You are amazing and inspirational. So happy that all is well
wow 29 years , that’s fantastic & Thankyou so much for posting this , it is appreciated.!So glad too that the scare was unfounded, never able to feel totally clear are we but one day I’m sure science will find a way!! Till then you long time survivors give us hope so a big Thankyou for sharing & keep enjoying life .Hugs Dee X
So relieved......
Diagnostic Frustrations
feeling positive
All clear
What a dreadful journey for my best friend!
