Bit of a blow, advice needed: A couple of weeks... - My Ovacome

My Ovacome

18,247 members20,377 posts

Bit of a blow, advice needed

Skyeplus profile image
5 Replies

A couple of weeks ago, I ended up having an urgent CTscan because my GP had sent me for an ultrasound, then called my to say I had cancer in my stomach and bowel. Long story short, she did me a favour doing the ultrasound as the CT scan showed that it has come back, in the peritoneum, however not the bowel of stomach. I wasn’t due for a scan until June so it’s been caught sooner rather than later.

I was taking Niraparib but my oncologist who I do have great faith in said it wasn’t working for me. He has taken me off it and wants me to have a treatment break of 4/5 weeks. I’m the subject of a MDT and he is going to contact me towards end of April with a plan. It might be surgery and chemo or just chemo.

I know many of you lovely ladies have been through this. How likely is it that I will get surgery and chemo? I am hoping for both. He did say it’s up to what the surgeons think.

thankyou and love to all

Di

Written by
Skyeplus profile image
Skyeplus
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Caleda4 profile image
Caleda4

Hi, Sorry that you are in this position, but if I were you I would wait for the results of the MDTmeeting firstly. You could always have a second opinion. As your Oncologist said it will be up to the surgeon as to whether it is feasible or not. I have got high grade serous ovarian,and have so far had 2 recurrences in 8 years. However I feel fine at present and live a good life and take each day as it comes. I hope all turns out well for you whatever the decision.x

Skyeplus profile image
Skyeplus in reply toCaleda4

Thankyou so much. I think I had such faith in the Niraparib that it was a shock to find it back, a year to the day from my debulking surgery. I also have high grade serous ovarian cancer and was stage 4 grade a at diagnosis. I am staying positive, thanks to all the support via this site and all of you. ❤️❤️❤️❤️❤️

Maya2016 profile image
Maya2016 in reply toSkyeplus

The same happened to me, now on 6 rounds 3 weekly Cisplatin and 15 days Etoposide tablet. 1 week off and then start the next round for a further 3 weeks. When I last saw the Oncologist who was a different one to normal, she didn't give me any positivity but reading the other ladies articles is so helpful and gives you hope. She kept handing me tissues eventhough I was not crying,, just rather dazed.

Good luck stay positive.

Jingles6 profile image
Jingles6

When I was diagnosed with ovarian cancer I had operation then they said I would have to have a further op to remove my spleen. Fortunately the first 3 months of chemo killed what was there and I didnt have to go ahead with the second op, just had a further three months of Chemo. Have been on Niraparib for a year now and so far so good but you are always in fear of it returning. I hope all goes well with what your oncologist advise. Try to keep positive I know it must be hard, I haven’t experience a re occurrence but you have been strong when first diagnosed and you can beat it again. Good luck💕

Maya2016 profile image
Maya2016

That's great progress, try not think of reoccurrence (easier said than done). Thank you for your encouragement always needed. X

Not what you're looking for?

You may also like...

Advice needed recurrence

Dear ladies, I just need to share as feel very anxious and no one understands like those who are on...
Skyeplus profile image

Surgery- failed

I've posted here few weeks ago. I had surgery booked for Tuesday. When he operated surgeon said...
Leopard2018 profile image

A bit of advice needed please

Hello ladies, I apologise if I have posted this incorrectly in the wrong place. I am hoping for...
Ray74 profile image

Hernia repair advice

Hi hoping you lovely ladies can advise/tell me your experience please. I was diagnosed May 2020...
Robbo16 profile image

Well , it's all been a bit of a winder !

Quick call CH up . Six lots of chemo since 2011 , one trial on pembrolizumab ....and since November...
angeladale profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.