Enlarged para aortic node: Hi lovely ladies I’ve... - My Ovacome

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Enlarged para aortic node

Hota profile image
Hota
9 Replies

Hi lovely ladies I’ve just had a call from my CNS with the results of a CT scan I had earlier in the week.

It showed everything was clear apart from an para aortic node was enlarged. It had been noted on a previous scan in October , but had grown slightly. I think it is about 14mm.

She said she is not quite sure what they will do as it is quite unusual to find just a solitary node.

Has anybody else experienced this.

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Hota profile image
Hota
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9 Replies
ruthg55 profile image
ruthg55

Hi Hota,

Yes I had a solitary para aortic LN, but mine was about 2.5cms. A PET scan confirmed it was recurrence of OC plus my CA125 increased to 125 (it's usually around 10) and I was experiencing a strange ovary pain (even though ovaries had been removed). That was in 2018. I had surgery to have it removed (but it was in a very tricky position so had to have specialist surgeon). No further treatment after surgery and touchwood keeping well since. Perhaps your LN is enlarged for other reason. I think only PET scan is the reliable test. Hope all goes well. Love, Ruth

Beatbigc profile image
Beatbigc in reply toruthg55

I had an enlarged para aoetic node on Ct and mri at first diagnosis

When they opened me up to remove it they took 6 other lymph nodes all had cancer cells when I was treated but they got all visible cancer in the surgery stand my bloods suggest I’m responding to chemo

ruthg55 profile image
ruthg55

Forgot to add that I only learned later (after the surgery), from another oncologist, that I could possibly have had radiotherapy treatment on the LN instead of surgery. Just something to ask if it turns out you do have recurrence.

Hota profile image
Hota in reply toruthg55

Thank you for your reply. My CNS did mention radiotherapy.

It’s really good to hear you have been good since x

ruthg55 profile image
ruthg55 in reply toHota

I also forgot to say I ended up with hernia due to that operation (but that was my 2nd major open cut one) and I had mesh repair done about 2yes ago. Xx

delia2 profile image
delia2

I agree about a PET scan. I had a 3 cm iliac node but it turned out to be benign. Good luck with it!

TeddyC profile image
TeddyC

I had an enlarged para aortic node, they couldn’t get it during surgery. It remained enlarged for 2 years and then decreased in size. They’ve no idea why.

Saintgermain profile image
Saintgermain

Hi Hota, I'm in the states but a fellow survivor Friend of mine had targeted radiation on her para-aortic node which she pushed for node she just had a second PetScan its clear.

Hota profile image
Hota

Thank you for that. It is so good to hear positive news

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