niraparib

[Curry55]

I just wondered on this group how people get on with Niraparib

[Skyeplus]

Hi, I took Niraparib for just under a year and didn’t have any problems at all. Unfortunately for me it stopped working so I no longer take it. I have read other posts where our fellow sisters take it and have asked for the dosage to be reduced to help with side effects. The key thing is to monitor yourself and if issues arise make sure the team looking after you know. Sending a hug xxxx

[Ydaff]

Hi Curry55, as with just about every aspect of this horrible disease, everyone is different and their response to treatments is different too, so I can only speak for my own experience. I was diagnosed with stage 4b ovarian cancer in 2020. I started taking Niraparib in February this year after completing partially successful chemotherapy, following a first recurrence. I was very nervous about it, having read all the possible side effects, but 10 months on, I have not really had any problems. My oncologist suggested that I should take it with food just before going to bed, and I have found this works well for me (though never having been a supper eater, it’s not doing a great deal for my figure 😆). If I don’t eat with it, or if I don’t go straight to bed, I sometimes feel nauseous, but I have been lucky enough never to have been sick, nor had any other issues apart from perhaps not sleeping as well as I used to. I feel that while I’m taking it I am hopefully fighting back and feel reassured by the monthly blood tests that you have to have when on Niraparib. I had my first CT scan since starting it last month, but won’t get the results till early January. I hope and pray that the scan shows it is working everything is stable, but whatever the results, I am glad to have been offered the opportunity to take Niraparib. For me it has been easy to take and worth any slight inconveniences to know that I am having help to slow down (or even stop 🤞🏼) any progression. Hope my experiences are helpful.

[Mintybiscuit]

I finished chemo for stage 3 high grade serous ovarian cancer in September after a total hysterectomy and debunking surgery in March. I started Nariparib (200mg) just over 5 weeks ago . It made me feel quite nauseous at first but now not so much.

However, my last blood test showed that my neutrophils were very low. Also, my blood pressure has gone up, luckily it was naturally very low so is still in the normal range, but I am having to check it every day myself. My oncologist said she may have to lower my dose if I continue to be neutropenic. I had a blood test on Monday so am waiting to hear…

[BallyMacfan]

HiI started taking Niraparib in September 22 I was told I might not be able to tolerate it at first I did have trouble sleeping but after a couple off months it settled down .My blood pressure was high I now monitor it at home and its going well.

For the first month I had bloods once a week then once a month now my bloods are done once every two months .I am so grateful to be on niraparib it has given me hope and at the moment I feel well.

Good luck on your journey . Jaynex

[Tealgirl7]

I have been on Niraparib for one and a half years. After 1 year I showed a small progression of disease so now I am on study adding avastin to it every 3 weeks. I have had five treatments of that together. I'm feeling very tired a lot of the time but not ill. So far it seems to be showing good results so fingers crossed. I have been lucky as I am a long-term survivor diagnosed stage 4 over 17 years ago. I have never been NED. Wishing the best for you

[Pianoplayer731021]

I took niraparib for 3 years, but had side effects on and off. I am now seeing an hematologist because of some blood issues that this parp can cause. My iron was making me severely anemic and now I am having blood tests every 4 weeks. This drug has made me cancer free, but it can cause blood issues sometimes.