Brain metastasis on Ovarian Cancer

[selosh16]

Hello everyone,

I'm writing this post on behalf of my mother. My mother, aged 48, was diagnosed with OC back in Feb '21. Since then, she has undergone several surgeries and chemotherapy rounds. I know everyone here has either faced these challenges or witnessed a loved one going through them, so you understand how difficult it is.

The main reason I wanted to write here is that her oncology team monitored a brain metastasis in June '2023. After that, she underwent a circle of chemo and radiotherapy. Two months later, her scans showed that the metastasis had almost halved in size. Unfortunately, in her latest scan two days ago, we learned that it's back and has spread to multiple places in the brain. It's truly saddening that this disease can spread so much in just a few months, despite her undergoing chemo all that time.

My kind request from you is, if you or anyone you know has been through an OC brain metastasis, could you please share what kind of treatments they underwent? I understand every person and their disease is different, but I want to learn from your experiences as literature about brain metastasis is very limited.

My mother and I are looking forward to hearing anything you can share with us about this issue. I wish you all very healthy and happy days. xx

[Anhlover]

hi selosh16,

My wife had OC with brain Mets. Unfortunately for her she had Mets in many other places. So I don’t think your mother’s situation would be helpful. I wish your family strength and luck in battling this disease.

Much love.

[Kaitlinsmum]

I'm sorry that I don't have any information to help you. Just wanted to send my love and positive thoughts. Good luck! X

[SopSinger]

Wishing you and your mum the best. Brain mets are rare in OC and unfortunately not good news. Hope her team can come up with something.

[lesleysage]

hello selosh16, I appreciate you are in Austria but it could be worthwhile to contact the Ovacome Support team to ask if the members of the Ovacome Medical Advisory Board have European contacts who may be able to offer help/advice? I know, before Brexit, many worked closely with European colleagues. Warm wishes x

[NanB12]

Hi:

I am in Canada and would highly recommend that you join the Facebook group “Keytruda and I”. Ask this question there, also ask the oncology team if the immunotherapy drug: Pembrolizumab (Keytruda) is an option for her. It can be given with chemo. It has been a miracle drug for many.

Praying and wishing your mom the best of health.

[Supermary]

one frontal

Lone brain tumor from stage 4b endometrial cancer

Had 3 days of high intensity radiation

Hasn’t shrunk yet

On dexamethssone high dose

I’ll keep

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