Carbo/caelyx 2nd line: Hi all, I am about to... - My Ovacome

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Carbo/caelyx 2nd line

Lochawe profile image
10 Replies

Hi all,

I am about to start my 2nd line of chemo, carbo/caelyx, having done carbo/taxol/avastin first time round. I was hoping to just get to immunotherapy tbh but it looks like you need to do at least 2 series of chemo first to be eligible... so, anyone else had a similar treatment plan?

Did it work for you? Shrink tumours? Keep things at bay for a bit?

And what were your next stages after these chemo combos?

Have a lovely christmas everyone if you canx

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Lochawe
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10 Replies
Lyndy profile image
Lyndy

Hello, I am doing carbo/Caelyx third line and it does seem to be acting on my lung mets as breathing is easier now. I am hoping to get a maintenance trial on finishing xx

Lochawe profile image
Lochawe in reply toLyndy

Thanks Lyndy.. good to know it appears to be working.. wishing you luck with it and the maintenance trial🤞x

Pooshon profile image
Pooshon in reply toLyndy

Hi Lyndy

What is the maintenance trial you mentioned and where is it being done please?

Thanks Lesley

win_56 profile image
win_56

Personally this chemo combo was a walk in the park for me. Hardly any side affects at all and I managed to work too whilst having the treatment. When you have the caelyx ensure you wear those ice gloves as it stops your hands cracking ( so chemotherapy dept and oncologist told me) . I think my feet were iced up too but can't be 💯 My oncologist also prescribed me Corsydl which I used four times a day which prevented me getting mouth ulcers. This was second line treatment for me. I know we are all different to the way our bodies react to different treatments but this was really a walk in the park for me. Also I had great results with this combo and it shrunk the lymph nodes by 85%. Wishing you all the very best.x

Lochawe profile image
Lochawe in reply towin_56

Great news you had good shrinkage! and that it was an easier combo.. and thanks somuch for ice gloves and mouth wash advice.. I havent had any information like that! thanks again and have a good xmas!x

Towergirl profile image
Towergirl in reply towin_56

Hi, I’m due to start carbo/Caelyx on January 8th, 3rd line. Great news it worked well for you. Thanks for advice re ice gloves, just wondering if you lost your hair? X

win_56 profile image
win_56 in reply toTowergirl

No, no hair loss or even thinning....Wishing you all the very best going forward.xxx

Towergirl profile image
Towergirl in reply towin_56

Thank you you’ve made my day. Hopefully I wil keep mine, just grown after last chemo with toxal, finished April.

Oncology can’t fit me with cold cap unless I wait another 3 weeks! Best wishes x

N-A-58 profile image
N-A-58

My mum used this for 2nd line treatment. Radiologist and oncologist quoted excellent response. NED and ca125 14 after 4 cycles. She did struggle with this and nausea and her platelets took a battering which is why they stopped after 4 cycles.

Lochawe profile image
Lochawe in reply toN-A-58

Thank you for this information.. its good your mum had good response.. sorry she took a battering re platelets and nausea.. I am hoping this combo produces less nausea for me than the last lot of chemo fingers crossed.. but i guess it will be as it will be..

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