Getting a lot of pelvic pain in the last few days...very swollen belly. Any tips?
Tried heat but that didn't seem to do anything. Making me feel weak and drained. Seems to be a flare up. Certain foods make me worse too like bread...
Was going to take buscopan in case some sort of IBS bloating, or it could be the cyst acting up...
Worried. Had dull pain all the time but this is a lot more. Very sore.
Poor you Ova104, being in pain is no fun at all. You are worried, which probably isn’t helping either, so I would suggest you reach out to your GP or oncologist and get some advice. I do think it helps to let the medics know because it gives them a fuller picture of what we deal with as patients.
Hope you feel better soon xx
I am supposed to be looking for carers and I just about make lunch for mum. Feel rotten it seems to be be pelvis and whole area bloated and sore midriff as well now. It started out as just pelvis but now seems to be the whole area. I also have waves where I feel hot from discomfort. I will probably have to ring my doctor. But he wanted to send me for endoscopy and colonoscopy last flare up I had 3 months ago and I don't have a carer to mind mum so I cancelled it as stomach settled. It seem like if I eat anything I swell.
thanks so much for your response I forgot to say, I rang gynae oncology to see if anyone will get back to me.
Hi Ova104. Most of the pain I get is upper & lower abdomen. Heat often aggravates it. Sometimes De-Gas works. Sometimes a reflux med helps. Sometimes I just have to find a position (yoga Child's Pose) that helps. Drs don't really help. They put it down to the two ops I've had. It's very frustrating. Definitely talk to your team in case there's a simple fix. I wish I had a straightforward answer for you. Good luck. 💜
Heat seemed to aggravate it, seems to be all the belly area now not just pelvis. Dr wanted to send me for endoscopy and colonoscopy before but I have no carer now so I can't do it at the moment. I had flare up 3 months ago and it went away just hoping this will go away. I feel I am doing nothing fit for nothing.. I rang the hospital to see if anyone can advise. Probably tell me to go to doctor first for assessment. thanks a mill for your answer
Hi Ova104The pain could be distention in your tummy therefore the bloated pelvis. It could be fluid or an obstruction. But it needs to be checked. So please see your consultant or GP to check your tummy 🙏🏽
Are you able to have a bowel movement? I would contact your onc I take protonix in the morning Gerd med and probiotic at night helps alot
yes not constipated. I had been taking iron so I am wondering could that have flared up my stomach - ferrograd.
Iron can constipate good sign you're not but can be hard on the stomach I would reach out to your onc.
yes bowels fine but I am wondering could iron have set me back?
I started a probiotic last night on your advice. What is protonix. I have hiatal hernia I had to take a ppi years ago... Is protonix like a ppi.
So glad hoping it helps yes protonix is a PPI I take it on an empty stomach in the morning 30 minutes before breakfast worked like a charm.
had lanzoprazole here before it's a ppi too. I think I still have some hopefully not out of date. I think I will try this had to before. Just feel so drained I will take it first thing in morning. I would try anything at this point. Buscopan did nothing, anti spasmodic didn't help. It is rotten to have feeling like I am going to get a period all the time, cramps then swollen belly so uncomfortable and draining. Thanks so much. Monday doc apt a long way off..
It's awful feeling like that so hoping you can get some relief until you see your doctor
I had a look I found some and not out of date..def will try that empty stomach I took it a year ago had flare up. I forgot about it but it did help bloating and settled down gastritis I had flare up.
So hoping it helps you please keep me posted,
I wouldn't delay I would contact your team/GP. Its not nice being in pain. They are there to help you x Keep us posted on how you get on x
it's so draining, I will have to make apt doc, thanks so much for response. Feel rotten
you don't think it could be just an ibs state in the absence of anything else? Or the cyst getting worse or doing something to ovary?
I am not 100% sure. But if it is IBS maybe your meds need to be changed. I'm hoping nothing bad happened to your cyst. A hot water bottle might help xx
they told me I could get ovarian torsion hope it's not the start of that...but I heard this is real severe pain. Mine is dull and draining and just look like I am 7 months pregnant during the day. I don't wake with stomach swollen.
most likely bloating from gas, but always check up with your oncologist with that. I have been bloating since surgery in 2019 , it comes with constipation and simply feeling nervous, I do believe it has a lot to do with ibs now. Our tummies took a whack! So maybe try miralax and try to be mindful of greasy or a lot of bread , we have the tendency to worry so that creates the gas if it’s bloated. But always check with your doctor on that.
omg when you said bread....bread is a killer. Can you become ceoliac overnight? I ate a rich tea with a cup of tea this morning.... not worth it. I should be looking for a carer and I am fit for nothing...get waves of feeling hot with the discomfort and just want to put my head on a cool pillow. Oh I am worried about a lot of things.. thanks for your response
Honestly, the worry doesn’t go away but will get less, I was told that by a good friend who was diagnosed with breast cancer over 20 years ago, she wrote a book and now she and her husband travel all the time. My best advice is keep living your life do the things you used to do for enjoyment, I garden so some days I pull weeds and other days I hold a hose and water, it’s important to not let cancer define you and stay hopeful . I still eat flour and crappy food and pay for it . But if you can stay up on your laxatives and keep moving it might be okay and I’m sure the tea could just be acid reflux, like I said we a nervous mostly but find your peace. Survive my friend and fight for your joy and just be mindful what you eat it works havoc on our guts.
I’m trying to deal with mum’s kidney infection and giving her loads of drinks and all I want to do is lie down with knees up to stomach. These flare ups rotten. I haven’t ounce of energy. Bread is the worst omg I’ve paid for that Rich tea biscuit and cracker with humous. I started day empty stomach dull pain, as I had breakfast, lunch then day got worse. Maybe some fasting to calm it down. Feel flattened and incompetent. Worried about mum she still has burning urine and nearly third day antibiotics. God pain is flattening and depressing.
Your worry for your mom probably has you in a flare up , sounds like fasting might be a good thing to do. My mom went into the hospital a month ago and sent my stomach issues into a whirlwind. Please take care of yourself as well as your mum .
I wish I knew what it was whether IBS, whether pelvic pain causing the whole thing or something else. So draining to feel like period pain all the time and having had endometriosis for years nothing worse than to be left like this. Yes loads of stress with my mum and she was up a lot at night so don't know when i last slept as I get up with her as well as afraid of falls. I suffered a concussion a few weeks ago low blood pressure and have no recollection. Stress always went to my stomach... Eating just hurts. It's ok when I do it but after a while after eating not worth it...
As HappyGoLucky66 points out, your stress over your mum is not helping your situation. My 96 yo mum is in hospital at the moment and I realised (with the help of a counseller) that my stomach pain issues have flared up during this time & previous times that she's been suffering from the loss of my father (4 years ago) & my brother (2 years ago). She doesn't mean to upset me but she does tend to make her problems mine & she forgets that I'm going through problems of my own. I love her & want to help her but I have to make my health journey a priority. I would be no good to her if I was dead! I do think Ova104 that you are a prisoner of your own making by putting your mum first. Yes you have an obligation to look after her but not at the detriment of your own health. There IS help out there and you have to seek that out quickly especially as you don't seem to have anyone else in your life to count on. Looking back on your history, I can see that this is not a new problem for you. You really do need to take control of your life now & work toward understanding not just the physical triggers (like bread) but the stress triggers as well. Can I suggest a counsellor for you & a neighbour or friend to sit with mum for an hour or two while you look after yourself. Everyone on here is on your side but we can't give you the miracle answer you are looking for. You will have to get help from the doctors for yourself and aged care professionals for your mum. Sending love 🙏
I don't really know how to respond to this because you only have a fraction of my story. My health suffered the biggest blow I think minding my Dad with Parkinson's Lewy Body 2017-2020 when he passed away. Mum helped me, killed herself but became also a casualty of that level of care at home. My mother doesn't make her problems mine she suffered a stroke in 2022. I stayed at my parents to help my Dad because neurology said keeping at home was the best solution given nursing homes and hospitals are the worst place for Parkinson's. I worked full time and had been working from home since 2017 way before the pandemic. We had carers all the time and the house was like a train station and I paid for full time carers privately at night for him, he was only entitled to 23 hours care a week which was nothing under the public system. We didn't sleep for 3.5 years because he had a huge amount of agitation and developed delerium due to a hospitalisation where they changed his meds and he never came out of it. They destroyed him changing neurology meds without consulting his neurology team like he was a lab rat. I have post traumatic stress from dealing with public health nurses - tried to bully him into a nursing home and some carers (the good, the bad and the useless). They even made my Dad not palliative despite neurology saying he was the last few months and he had no palliative care at the end. I wanted to complain after it but I was too exhausted and didn't bother so I got a private carer for mum this time who helped me out with mum from time to time. That was all fine until this mass was found and this carer let me down which is why I have no carer now and need carer(s).
In terms of being the maker of my problems I didn't ask for my Dad to fracture his hip, I didn't ask for him to be hospitalised and suffer the worst care in hospital that destroyed him..that was thrown on me and I did what I was advised was best. Head of neurology at the time said if you can keep him at home then that is what we advise. Me and my mum took it on and I held down a job at the same time. I think during this time my endometriosis got worse and then I didn't go to doctor in 5 years I didn't have time and I mean that. I existed on a daily basis blended all the food for my Dad and he had to be hoisted daily toileting and constant changing him around because he had a sensation in his head after the hospitalisation leading him to believe he was going to fall all the time, we never knew if it was a hallucination or what but could have been a consequence of giving him contraindicated meds. He lost his walk in hospital I might add so he was full hoist.
I am caring for my mum now she went down a lot after him dying, I want the best for her and she deserves it after how she gave up her life so many years for my Dad. I don't want to see her in some nursing home when she loves her own home. My experience of nursing home respite was bed sores, my Dad left to go to toilet in pad (no dignity), understaffed care and meds not given on time which is critical in Parkinson's. When he came out of hallucinations he was minded well at home and was fed properly. He enjoyed the good carers that came in and being in his own home near his own dog. He came out of hospital 8stone and he gained back the weight to 10.5 stone. I have family but they don't speak to me because they blamed me for my Dad as he was admitted to hospital with a urinary tract infection and was perfect in his head. They said I destroyed him putting him in hospital. I didn't ask the medical profession to change his meds etc. I didn't ask for him to get delerium. I went to the hospital for 3 months (general hospital) to feed him daily and then to a neurology hospital for one month every single day to try and pull him out of it. He was even incorrectly assessed as puree at that time and it should have been mince moist. My siblings didn't help so I am used to taking all the blame. It's easy to blame and not do anything. I don't really care what they think now I did what I could and made huge sacrifices, they didn't just blamed me for what happened.
I don't think doctors have miracle answers and consultants certainly don't. I have seen more consultants over the years and doctors for my parents, I take all with a pinch of salt. I trust the medical profession like I trust fund managers...worked in that industry for years. I have a consultant now who I am warming to because he listens and he knows my faith in the medical profession is non existent. I didn't like him first meeting, he could be a grower..
I enjoy talking to people here, I am not on here looking for some miracle cure I am a big girl. I want to do the best for my mum try to get private carers that won't let me down, don't carry stories outside the house and actually like what they do and want to help the elderly. I have seen enough fake people in my time that do not belong near a caring profession. That may be harsh but I will be careful who comes in the house this time. We want peace.
Oh I dropped a urine sample in this morning to make sure my pelvic pain was not urinary tract and I have apt for doc on Monday to get checked out.
I go on this site because of the kindness some people have afforded me and the tips. When you are caring for someone else you don't think of yourself. I never have it's how I am because you just don't have the time. I am trying though now given my own health concerns. A lot of carers do end up minding people to the detriment of their own health and I think that is hugely common in Parkinson's disease and dementias. My own doctor was caring for his own child who is wheelchair bound all her life non verbal with behavioural issues, his own health has taken a huge hit in terms of lifting etc. I think it is a utopia to think you can manage care without health issues. I interviewed a carer the other day who had a stroke minding her dad, she lost sight in her eye, the sight came back but she didn't go about it until some months later when she had a CT scan and saw she had a TIA. Her Dad was hospitalised at the time and she had no time because he was late stage COPD. It's a call she made but couldn't do any better at the time, support wasn't there for her.
I know what I need to do I just want to talk on here because I don't get to meet friends etc now. Plus Ovacome seems to have more of a support than we get over here offering to do zoom call to help me with next apt.. I had a gynae nurse but she seems so stressed out and said one day I had too many questions for the consultant. I said should he be a consultant if he is overwhelmed by my questions... 
Incidentally he is not the opinion I am going with now, he didn't feel like a safe pair of hands which is why I got another opinion.
Anyway thanks for the tough love...I don't know how not to put my mum first, if you met her she is a walking angel. Sorry for the rant. The old dogs for the hard road....
I will probably die after lunch as I added packet white sauce to cauliflower...;)god what is a temporary fix for not feeling like I have period pain all the time. Monday for doc is a long time to wait...grrrhhh. Nurofen kills my stomach. Paracetemol is like taking smarties... no benefit really. I rang the gynae team of other consultant but I don't reckon they will be in a hurry to get back to me..
That's an awful lot for one person to have gone through without the support of your family & I'm sorry that I can't personally be there to just hug you & tell you that you are a wonderful daughter & probably one of the most selfless people I've come across (although I'm sure you don't want or need that praise). I'm glad you at least had the opportunity to have your "rant" which can sometimes be beneficial to your health.
I can understand your lack of trust in the medical profession but I hope that you find someone you can trust soon. Not sure if you've considered alternative treatment but maybe a naturopath, herbalist or acupuncturist might be worth trying.
Please don't let my post turn you off this site. The women (& men) on here are amazing & supportive. Take care 💜
unfortunately I am the bad guy with my family but I am ok with that now. I don't think I am selfless I actually don't really rate myself at all ha... I made a lot of mistakes. I didn't want my Dad to suffer hospitalisation or nursing homes again after it going so wrong and we tried to minimise his suffering by keeping him in his own house and he died at home in his own bed. If that didn't kill me at the time then you can't get rid of a bad thing.. I don't know about the what doesn't kill you makes you stronger I think what doesn't kill you might come back and get you again ! I sort of went straight from my Dad then to my Mum, she was very sad after him going and suffered in her health when she stopped all the going. To be honest the week before he died she said if this keeps up I won't be here. She would never have said that but I really thought she was going to go before my Dad with the stress.
I did homeopathy for a while but there was so many little pills to take and I kept dropping them or forgetting to do the rota. I did acupuncture before, that would probably be good. I have issues with my back lumbar spine just a lot of wear and tear and osteoarthritis neck just over use, it could benefit this and maybe benefit the pelvic pain.
Your post didn't offend me at all. I like tough love and you said what I know deep down and need reminding of. I patch myself up and then get back on the horse all the time, this time it is proving a little harder. Caring can be isolating and my permanent job ended in Dec 2022 redundancy. I was working hard but they wanted someone in the office and it didn't suit them any longer me working from home even though I had done it for years but that was the excuse anyway. But it was getting harder and harder caring for my mum and working. Even though I don't know how I did it for my Dad. He used to call me when I was on zoom calls. They didn't know what was going on in the background really in my job. I never told them. I had been there 9 years and I did want a change but kept it because it was remote. Losing it made me feel just rejected and unwanted for some time and of course you worry all the bills. I felt a failure as I was the only redundancy. That to think of too what will I do next if I survive but focus now is helping my mum stay out of hospitals and nursing homes 
My biggest problem now is I am terrified of hospitals and being left worse off than I am and of course not knowing what is facing afterwards. I saw my Dad go into hospital with a simple urinary tract infection and then get so messed up. One consultant got fired when we were there for giving my Dad haloperidol which is contraindicated in Parkinson's.
People are lovely on here yourself included. I think the consultant is ok I have, he is definitely better than the other two I saw. They were so vague and thinking I didn't need detail.
Nice talking to you, a good dose of cop on and sleep is what I need and to ease up this pain. Constant stress leads to constant release of cortisol and am sure could cause pelvic pain... Pelvic pain causes stress and anxiety but I am sure stress causes pelvic pain too.
One problem at a time....
I hope you are ok and battling on?
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