ca125 up from last reading

[Southernsas]

I’m 49 and in 2019 was diagnosed with stage 1c2. It was found in pathology after having ovaries removed prophylactically due to finding out I was BRCA1 positive.

I had 3 rounds of taxol and carboplatin. I might mention that my ca125 was 8 so never indicated cancer. During chemo my number rose to 9. Then afterwards it came back down and has hovered in the single digits for 4 years. I just got results from my 6 month follow up. My number was 10.7 which has alarmed me bc last two times it was 8 and my oncologist said there’s an upward trend. I had a Ct scan 6 months ago and it was fine. My doc told me that’s the only thing he wud hav asked for had I not already had one. I got to him on May 1st. I’m not sure what he will say. I have no symptoms at all. I have started some new hormone pills. I also got a testosterone/estrogen pellet inserted. Does anyone know if there’s a possible link with that causing the increase in my numbers? My oncologist isn’t aware of this yet but I will b telling him. Another doc prescribed the pellet. Any thought or suggestions are appreciated!

[Heart12345]

Hi Southernsas I definitely think you should tell your oncologist about the hormone pellet. I know some cancers are hormone sensitive. Maybe they have information if your tumour was. I think it’s possibly a good idea to check with oncologist before embarking on any new medication unless an emergency.

Also some infections can increase your ca125.

Wishing you speedy answers X

[Southernsas in reply to Heart12345]

thank you! I was in the hospital in January with sepsis due to kidney infection/stones. I don’t know if that has raised it or not. I also had a Ct scan then. To me, it looked clear although they were looking for kidney stones. My oncologist will be able to look at that as well.

[carrotmunch5]

Hiya. You need to have chat with your oncologist, especially if you start any new meds or supplements even. Some interfere. If there's a tumor growing and CA 124 if creeping up, they need some photos ( scan) to prove also. Good luck 🤞

[Southernsas in reply to carrotmunch5]

thanks for your reply. Yes I probably should have mentioned the pellet and supplements to him first. I did call and let them know yesterday about it. So at least he will be able to have that in mind when he sees my ca125 number. I also did hav a Ct a Al in January bc I was in the hospital with sepsis due to kidney infection/stones. They weren’t looking for cancer then but at least I have the pictures my oncologist can look at.