LGSOC located in pleura

[Pinks2020]

HiIs there anyone whose lgsoc is located in the pleura?

I was diagnosed in June 2020. My ovaries were removed as part of a hysterectomy in 2008 hence the migration to the pleura. Debulking was to take place but surgeon said there was too much cancer.

I have had chemo for secondaries.

So it's incurable. Sometimes I am okay with this. At the moment I m not despite the fact I am feeling well and latest scan showed no change.

Love to all you courageous ladies. You are amazing x

[Lyndy]

Hello Pinks2020, yes I have had OC problems in the interstitial space ie. In the pleura. Although it was never clear if there was a lesion or if it was mainly pleural effusion.

OC can and does travel…which can be unnerving.

I try to live in the present. As you say, your latest scan shows stable disease. I would take that and get on with something you enjoy, otherwise you can spend energy anticipating it’s return and missing the time when you feel well and up for some adventures.

We have to remember that life is incurable, so we might as well throw caution to the wind! xx

[Pinks2020 in reply to Lyndy]

Hi LyndyThank you for your kind words. My usual take is to live 1 day at a time so am at a loss to explain why I feel so low and anxious at present. Xx

[Lyndy in reply to Pinks2020]

I know what you mean, sometimes you just fall into a trough of anxiety. Hopefully it will pass very soon xx

[panfield62]

Hi Pinka2020. I am low grade on my 10th year. Had plenty going on in the intervening years. But I'm still here in reasonable health at 73 yrs. So one day at a time Pinks - do your research to fond what may help u. Best wishes and chin up. Gwen x

[Pinks2020 in reply to panfield62]

Hi Gwen thank you. I am 61 so hoping for a long innings! Sending you a hug for your words of encouragement x

[panfield62 in reply to Pinks2020]

You're very welcome Pinks 2020. Gwen x

[Motiva]

I have an indwelling catheter to manage my effusion. This helps with ongoing drainage and manages the breathlessness.

My husband has learnt to do the draining which I am very impressed by and grateful for.

Take care,

F x

[Pinks2020 in reply to Motiva]

Hi F I had an indwelling catheter so I understand what you are going through. I think that your husband is amazing for his willingness to learn. Stay well. X

[OvacomeSupport Partner My Ovacome Team]

Hello Pinks2020

I'm sorry to hear you're feeling low and anxious at the moment. We're here to support you so please don’t hesitate to get in touch with us if you would like to talk through anything or just for a friendly chat.

We can also let you know about local counselling and support services if this would be helpful.

You can contact us directly through this forum, email us via [e-mail] or give our support line a call on 0800 008 7054. We’re here Monday – Friday, 10am – 5pm, to help with queries relating to ovarian cancer or have a chat about anything that’s on your mind.

Best wishes

Anna

Ovacome Support