5 years: Today is a milestone for me. 5 years ago... - My Ovacome

My Ovacome

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5 years

JayGeeCee profile image
48 Replies

Today is a milestone for me. 5 years ago today I had my last round of chemo-Avastin continued until January 2019.

As I was diagnosed stage 4b I am well aware just how lucky I am.

No recurrence so far and I am feeling positive that my CA125 blood test (tomorrow) will remain below 10.

I know so many ladies on here have had a very different journey to mine but know how much I benefited from positive stories when I was newly diagnosed.

Sending you all hugs and positive thoughts.

Joy 💗

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JayGeeCee profile image
JayGeeCee
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48 Replies
ZenaJ profile image
ZenaJ

That is such fantastic news Joy. xx

Frenchhouse3 profile image
Frenchhouse3

Hi Joy,

Thank you for sharing your wonderful news, it ‘s so uplifting and offers hope to those newly diagnosed or along their journey.

I’m three and a half years clear since my last chemo and I am beyond grateful.

All the very best to you for a healthy future xxxxx

JayGeeCee profile image
JayGeeCee in reply to Frenchhouse3

Thank you.

I was living in France at that time. Very fortunate to have excellent treatment.

Back home now and hoping that should I need it the care here will be just as good.

Glad you’re doing well. Stay positive and strong xx

Ropni profile image
Ropni in reply to JayGeeCee

Hi Jaygee, hope you are doing well! My wife has just had a debunking surgery and was diagnosed stage 4b. Do you mind sharing the treatment that you had ?

Lizz49 profile image
Lizz49

wow this is such wonderful news!! You will surely give hope to all on here especially those newly diagnosed, that you can beat the odds and live a great life! I’m sending prayers that you’re bloods will be perfect tomorrow and I hope your remission lasts forever 🥰

JayGeeCee profile image
JayGeeCee in reply to Lizz49

thank you. That’s so kind of you.

X

Frenchhouse3 profile image
Frenchhouse3

Hi Joy,

My friend was treated in France and also said how good the standard of treatment was. I must say I’ve been well looked after too, though our wonderful NHS is struggling.

Thank you for your good wishes too. My bloods are in two weeks. Still get so nervous every time!

Denise Xxxxx

JayGeeCee profile image
JayGeeCee in reply to Frenchhouse3

I know what you mean Denise. I try not to let the cancer gremlin have a voice but sometimes it’s hard.

Good luck xx

Frenchhouse3 profile image
Frenchhouse3 in reply to JayGeeCee

Thank you! I’ll keep you posted! Xxxxx

Lovedogs41 profile image
Lovedogs41

wonderful news! Can I ask what treatment you had in France please out of interest? xx

JayGeeCee profile image
JayGeeCee in reply to Lovedogs41

carbplaitin and Taxotere plus Avastin for the last three infusions which then continued. X

Caleda4 profile image
Caleda4

That is such good news. Long may this continue x

Bettyxxx profile image
Bettyxxx

fantastic news Joy xx long may it continue positive stories are so important

Love

Diane

Xx

0462County profile image
0462County

Brilliant news, you give me hope.

Love and hugs Beth xx

Pianoplayer731021 profile image
Pianoplayer731021

That is wonderful news! Just wondering when your diagnosis was and if you ever had any parp or maintenance treatment after chemo and surgery ? Donna 🥰

JayGeeCee profile image
JayGeeCee in reply to Pianoplayer731021

hi Donna

I had my first chemo in November 2017 finished April 2018.

My tumour was BRCA positive although I don’t carry the gene. No other treatment except Avastin. My French oncologist who was fully expecting a recurrence ( apparently my response to treatment is quite rare) always said she would give Olaparib should I need further treatment.

I hope you’re doing well.

Joy x

Motiva profile image
Motiva

Many congratulations that is wonderful news and very inspiring. I have had my diagnosis of stage 4a ovarian cancer but waiting impatiently to see an oncologist after 2 months of investigations.

Hope you get a very low CA-125,

😊

JayGeeCee profile image
JayGeeCee in reply to Motiva

There was a 2 month gap between my debulking surgery and seeing the oncologist in my case which did mean I was fully recovered from the surgery.

I hope you are seen very soon. Try and stay positive- that advice was given to me at the start of the journey and I think it really helped.

Joy x

Goodgirl98 profile image
Goodgirl98

This is brilliant to hear. May this continue, Joy ❤️

Riverflo profile image
Riverflo

What a wonderful milestone Joy!And yes, so inspirational that it's possible with your (and my) diagnosis.

Long may your blessings continue.

Martine xxx

AuntyOrange profile image
AuntyOrange

Fabulous post. We thrive on hope here.I finished chemo in Mar 2022 for 2nd recurrence of stage 4 & now 3 weekly Avastin only since then.

I feel blessed every day. I'm in Australia & treatment here has been wonderful.

Good luck with bloods.

xxxxx

Atai profile image
Atai

Fantastic news! ☺️☺️☺️

bananayo profile image
bananayo

Brilliant news so pleased for you xx

Lilyada profile image
Lilyada

that’s just wonderful, Joy, so pleased you have taken the time to post as your story will give so many hope in the dark times. Angela xx

Morini profile image
Morini

So happy for you, what a great outcome. And thank you so much for sharing, it gives me hope that I could have a similar experience. Proof that we are not a statistic and we have individual paths xx💙

Trickysite profile image
Trickysite

I am 4b . Too. And your post is so encouraging! May u

You flourish on and on! Emma x

Newbery3 profile image
Newbery3

Amazing! And like you said just what we need to hear X I'm stage 4b and on avastin and olaparib right now 6months on from chemo. You have made my day and given me more hope X

Lirene profile image
Lirene

Bless you and everyone, such wonderful news. Thank you for sharing and praying for us all Lx

Amazing! We all need to hear these positive stories, thank you x

Kaitlinsmum profile image
Kaitlinsmum

What fantastic news! Thanks for sharing and giving us some hope. Sending positive thoughts your way for your blood results. 😘

Seedlings profile image
Seedlings

So happy for you Joy.Long may it continue for you. it is so encouraging to hear this news and certainly reminds us that we are all individuals not statistics!. Enjoy this day and each day to come.

Ann

Carpediem68 profile image
Carpediem68

Hi Joy. Oh, this is such fantastic news! I think it's so important to share these stories on here to give us all hope. I'm so pleased for you and hope your remission continues indefinitely! Good luck for your bloods tomorrow. xx

LesleyGB profile image
LesleyGB

Wonderful news!

delia2 profile image
delia2

Thank you for sharing your wonderful news and give ng hope to us all!

Ruebacelle profile image
Ruebacelle

Wow. Tell us how you did this

JayGeeCee profile image
JayGeeCee in reply to Ruebacelle

I wish I could say I had done something- I just carried on with life. I’ve never let cancer define me. It happened and I was lucky.

Ruebacelle profile image
Ruebacelle in reply to JayGeeCee

Hi again. I meant what were the protocols where were you treated

JayGeeCee profile image
JayGeeCee in reply to Ruebacelle

I’m afraid I have no idea. My oncologist and I communicated in Franglais. I’m always amazed at how much ladies know on this site.

Ruebacelle profile image
Ruebacelle in reply to JayGeeCee

That's a shame as we all learn from everyone's experience. Are you treated in france?

Ab59 profile image
Ab59

Fantastic news this has given me hope as I was also diagnosed with stage 4b in 2020 had chemo and then Avastin which finished March 2022 also I am BRCA negative. I hope you continue to have many more years to come x

Leniko profile image
Leniko

🙏❤️

A1r1t profile image
A1r1t

Thank you for sharing great positive news ♥.

Mellucy profile image
Mellucy

Thats fantastic Joy! so happy for you! Keep up the positivity and enjoy every single minute. x

PPSCENE profile image
PPSCENE

fab, fab and fab!! Long may it continue xxxxx

FlowerRose profile image
FlowerRose

This is great :) I remember when I was first diagnosed I was so angry at the thought of having to be happy with possibly 5 more years of life when my thoughts were, That doesn't bring me happiness, I should be living so much longer than that!! Now at three years out of chemo I feel just like you - glad, blessed, lucky, grateful. Sigh. The ways we learn to adjust! I'm happy for you.

Newbery3 profile image
Newbery3

I've just read your posts back as I saw your comment on Kathy's post. Lovely to read positive outcomes as I'm the same stage as you. I am determined not to give in 😅💪 . Thanks for posting x

JayGeeCee profile image
JayGeeCee in reply to Newbery3

I was advised early on after my diagnosis by a Cancer Support France volunteer- who became a friend, (I lived in France then), that people who had a positive outlook had better outcomes.

It wasn’t always easy but I was determined that I wouldn’t be crushed by the diagnosis and mostly carried on as I would have had I not been having treatment.

I was prescribed Avastin alongside my last three infusions and carried on with just Avastin for a further 8 months.

My French oncologist was absolutely amazed at my results- she had never told me how long she thought I would have and I never asked.

I’ve been so very lucky, sadly my husband who was diagnosed with esophogeal cancer the month after my treatment finished wasn’t so lucky and he passed away 2 years after his diagnosis.

Today I have shut the cancer gremlin in a box and try very hard not to worry about every twinge.

I’ll keep everything crossed for you.

Stay strong

Joy 💗

Newbery3 profile image
Newbery3

Very true about being positive, I live as normal as I can 😊 I even do forget sometimes now 😅 and that's lovely. I'm sorry to hear about your husband 😔 but I'm glad he had you with him X💞. We are travelling over t France in the spring in our van with 2 hack Russel dogs, and then down to the black forest 😊 I have lots booked in and have no intention of missing a thing X

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