Breathlessness and headaches update!!

[Purplepansies54]

Thank you to everyone who shared their thoughts and experience on my last post. Just to let you know that I saw my oncologist today and he has booked me a CT scan -should be within the next two weeks. I am stopping Niraparib for three weeks as well just to check the symptoms are not side effects. He did say that Niraparib can scar the lungs. I had not heard of this. Anyone else heard this or had lung scarring as a side effect of Niraparib? Thanks again, the support from this group is brilliant!!

[Purplepansies54]

So a quick Google search and I think the oncologist was referring to pneumonitis when he talked about Niraparib scarring the lungs as mentioned by Lyndy in the previous post.

[Kjpip]

Good luck with your scan, let us know the outcome won't you? I hope you manage to recover a bit in the next few weeks and start feeling more like yourself again xx

[delia2]

Good luck with your scan. I hope the breathlessness can be improved. I know it’s not pleasant. Xx

[Atai]

Best of luck ! Keep us posted! X