Posts - My Ovacome | HealthUnlocked

My Ovacome

17,743 members • 19,981 posts

All posts for August 2021

Angela Gemimablackvelvet

Dear Friends I am very sorry to tell you that Angela passed away in her sleep last night. We will all miss her calm and supportive manner. She became a real...

Dear Friends I am very sorry to tell you that Angela passed away in her sleep la...

JustKBO

•3 years ago

70 Replies

Some Positive News

I joined this group in Jan after a devastating Stage 4 OC diagnosis in Dec. 7 rounds of chemo, an emergemcy op (that resulted in a stoma), debaulking surgery...

I joined this group in Jan after a devastating Stage 4 OC diagnosis in Dec. 7 ro...

suzannebirch

•3 years ago

37 Replies

Recurrence of endometrial cancer in pelvic and para ortic lymph nodes

Hello lovely ladies Hope you you all safe and well xx I just wanted to ask a quick question please… my mums had treatment for a recurrence of endometrial...

Hello lovely ladies Hope you you all safe and well xx I just wanted to ask a ...

PPSCENE

•3 years ago

12 Replies

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Mirasol trial

I have been on this forum for over 5 years now. I feel extremely fortunate to still be checking in to read posts although I haven’t posted in forever. I have...

I have been on this forum for over 5 years now. I feel extremely fortunate to st...

Millie-c

•3 years ago

6 Replies

Does the chemo treatment get easier

Hi am on my second day of my first Chemotherapy treatment I've been given paclitxel and carboplatin, am feeling really bad the worse I've ever felt, just...

Hi am on my second day of my first Chemotherapy treatment I've been given paclit...

OutdoorEscapeelady

•3 years ago

65 Replies

Stable is good!

I had a consultation with my oncologist yesterday, following a scan, and it seems that against all my expectations, the Rubraca is working. I was convinced...

I had a consultation with my oncologist yesterday, following a scan, and it seem...

27-359

•3 years ago

19 Replies

Anyone here had endometrial womb cancer?

Hi all, I don’t know if this community is the right place but i know it from the days when I had ovarian cancer in 2016/17. Today I was given the shocking...

Hi all, I don’t know if this community is the right place but i know it from the...

Lollie2016

•3 years ago

11 Replies

Niraparib dosage

I have now had two doses of Niraparib. Survived so far! However I don’t want to take my recommended dose of 200mg and am only taking 100mg. I asked my...

I have now had two doses of Niraparib. Survived so far! However I don’t want to ...

bluepeterella

•3 years ago

36 Replies

My break from chemo was fantastic!

Good News! I had a break from Paclitaxel (supposed to be weekly Feb to end of August) and had an amazing holiday! Hubby, mutt, and I went off in our campervan...

Good News! I had a break from Paclitaxel (supposed to be weekly Feb to end of A...

Irisisme

•3 years ago

25 Replies

High grade serous ovarian cancer

Hi does anybody know what maintenance you can have with this cancer niraparib stopped working in the uk. Many thanks xx

Hi does anybody know what maintenance you can have with this cancer niraparib st...

Aliollie

•3 years ago

5 Replies

Latest telephone Appointment

I had a telephone appointment yesterday with a dr from Addenbrookes. No big surprises. I have already been taken off treatment for oc in the spring , as they...

I had a telephone appointment yesterday with a dr from Addenbrookes. No big sur...

Di16

•3 years ago

11 Replies

Online Ovacome Events This Week

Hi everyone We wanted to share details of our upcoming online events with you all . There are a range of support groups and activities throughout the week...

Hi everyone We wanted to share details of our upcoming online events with you al...

OvacomeSupport

Partner•3 years ago

Be the first to reply

Stomach problems with Olaparib

I would be interested to hear people's experience of Olaparib - especially stomach discomfort. I've had several "bouts" of discomfort, but not all the time. I...

I would be interested to hear people's experience of Olaparib - especially stoma...

cherrysews

•3 years ago

10 Replies

Experiences please.

After Rucaparib failed me I have decisions to make after my next scan in September.My choices are - if no change watch and wait , if changes either hormone...

After Rucaparib failed me I have decisions to make after my next scan in Septemb...

fendweller

•3 years ago

26 Replies

Maintenance after chemo

Maintenance after carboplatin Hi lovely ladies I’m going with mum tomorrow to see oncologist she has just finished six months of chemo and her ca125 has...

Maintenance after carboplatin Hi lovely ladies I’m going with mum tomorrow to s...

Aliollie

•3 years ago

4 Replies

Going on holiday…during chemo

Was wondering if anyone went on holiday during a course of chemo? I have holiday with my immediate family booked and don’t know wether to cancel. It’s a big...

Was wondering if anyone went on holiday during a course of chemo? I have holiday...

Smileeveryday2021

•3 years ago

36 Replies

Ascites and chemo cycle

I am on day 13 of a 28 day cycle of chemo (1st of 6). I had my ascites drained 3.5 weeks ago. The fluid began building straightaway and is still building as I...

I am on day 13 of a 28 day cycle of chemo (1st of 6). I had my ascites drained 3...

Smileeveryday2021

•3 years ago

6 Replies

MIRRORS Study - Survey on Robotic Surgery

Hi everyone This post is to let you all know about a University of Surrey research study survey. The MIRRORS study is looking at whether Robotic keyhole...

Hi everyone This post is to let you all know about a University of Surrey resear...

TheOvacomeTeam

Partner•3 years ago

4 Replies

Sneezing after chemo

Just recently when had my carboplatin i started sneezing and get a block nose it only last little while but makes me feel all block up is this one of the side...

Just recently when had my carboplatin i started sneezing and get a block nose it...

Bobbyo1

•3 years ago

4 Replies

end of mom's remission

Hi, there! i was writting before, my mom had ovarina cancer 2b stage and 6 chemotheraphy in 2017, now in may 2021, cancer is back with a lot of matastaes all...

Hi, there! i was writting before, my mom had ovarina cancer 2b stage and 6 chemo...

Inguc_is

•3 years ago

21 Replies

Cisplatin and Caelyx treatment.any experience to share please.

I’ve been cancer free for 17 months but the beast returned. I m on the above cocktail for 6 months at one monthly intervals. I was wondering what are most...

I’ve been cancer free for 17 months but the beast returned. I m on the above coc...

Erinna72

•3 years ago

4 Replies

Granulosa cell tumour - chemo advice

Hi all, I've recently been diagnosed with granulosa cell tumour, after a large 'cyst' was found on my left ovary. I had a full hysterectomy, omentectomy and...

Hi all, I've recently been diagnosed with granulosa cell tumour, after a large '...

pachacuti

•3 years ago

11 Replies

Hot!!!!

Anyone else on Olaparib plagued with hot flushes (flashes- never been sure which is right ! ) mine seem to be increasing. Don’t think it’s the cancer...

Anyone else on Olaparib plagued with hot flushes (flashes- never been sure which...

Rankij11

•3 years ago

17 Replies

I am on olaparib and doing well have been told after 2yrs I will come off olaparib and it will be watch and wait has this happened to other

Iam on olaparib and doing well have been told after 2years I will come off olaparib and it will be watch and wait Has this happened to any other ladies Many...

Iam on olaparib and doing well have been told after 2years I will come off olapa...

1946val

•3 years ago

23 Replies

Ascites discomfort

Hi everyone I have had a recent scan which shows there the fluid is rebuilding along with slight thickening of the stomach lining... although shows no tumors...

Hi everyone I have had a recent scan which shows there the fluid is rebuilding a...

Suds0812

•3 years ago

2 Replies

Any advice please

Hi I’m looking for a bit of advice , I have an adnexal cyst which ultrasound showed as being 7cm but MRI showed it was 3cm so discharged with repeat scan next...

Hi I’m looking for a bit of advice , I have an adnexal cyst which ultrasound sho...

Cathhunt

•3 years ago

6 Replies

Dental Treatment

May need to have extractions soon, and i am a total coward and usually have sedation even for fillings . Wonder if anyone has been to the dentist while on...

May need to have extractions soon, and i am a total coward and usually have seda...

rosebine

•3 years ago

11 Replies

Anyone using Turkey Tail mushroom supplement?

Hi ladies, I was watching the wonderful documentary Fantastic Funghi where Turkey Tail mushroom was used to support chemotherapy. Has anyone had experience...

Hi ladies, I was watching the wonderful documentary Fantastic Funghi where Turke...

Riverflo

•3 years ago

17 Replies

Doctor issues

Can anyone tell me if they have had to ever change doctors? Because the doctor I have had so many people who see me it can get really confusing. And I can tell...

Can anyone tell me if they have had to ever change doctors? Because the doctor I...

andyfay

•3 years ago

6 Replies

What exactly is staging

Does the stage of your initial diagnosis ever change? For instance I was diagnos ed with stage 2 five years ago. They still have that on my records even though...

Does the stage of your initial diagnosis ever change? For instance I was diagnos...

andyfay

•3 years ago

3 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for August 2021

Angela Gemimablackvelvet

Some Positive News

Recurrence of endometrial cancer in pelvic and para ortic lymph nodes

Mirasol trial

Does the chemo treatment get easier

Stable is good!

Anyone here had endometrial womb cancer?

Niraparib dosage

My break from chemo was fantastic!

High grade serous ovarian cancer

Latest telephone Appointment

Online Ovacome Events This Week

Stomach problems with Olaparib

Experiences please.

Maintenance after chemo

Going on holiday…during chemo

Ascites and chemo cycle

MIRRORS Study - Survey on Robotic Surgery

Sneezing after chemo

end of mom's remission

Cisplatin and Caelyx treatment.any experience to share please.

Granulosa cell tumour - chemo advice

Hot!!!!

I am on olaparib and doing well have been told after 2yrs I will come off olaparib and it will be watch and wait has this happened to other

Ascites discomfort

Any advice please

Dental Treatment

Anyone using Turkey Tail mushroom supplement?

Doctor issues

What exactly is staging

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