Hi all, I don’t know if this community is the right place but i know it from the days when I had ovarian cancer in 2016/17.
Today I was given the shocking news that I gave endometrial womb cancer. Doc has prescribed provera 100mg 3x per day for 90 days. I hope my body will tolerate it.
I have a million fears , i was wondering if someone here has had womb cancer, and how long were you allowed to stay on the provera? I’m already freaked out at the thought of coming off it .
Thanks. X
Hello Lollie2016
Thank you for your post. I'm sorry you've had this shocking news. You may want to try the Ask Eve forum healthunlocked.com/ask-eve which is for any gynaecological cancer. I hope there will be some members of that forum who are able to share their experience of endometrial cancer with you and reassure you.
Best wishes
Anna
Ovacome Support
Thank you for this x
Sending hugs to you Lollie2016 🤗 So they are saying it’s not a recurrence but a new primary cancer? That’s such bad luck after getting through OC. I can’t say I know anything about the treatment you are on but hopefully someone here or on the other forum mentioned will know more xx
Hi Lyndy thanks for the reply. No they think it’s related because it’s an endometrial estrogen driven cancer, but they aren’t calling it a reoccurrence. X
Hi,So sorry to read about your diagnosis. I had endometrial cancer in 2015,so had a hysterectomy,after which I was told I also has high grade serous in one fallopian tube. Carbo/taxol chemo in four cycles and thankfully so far the endometrial type has been clear for 5 years sofar. However the fallopian tube cancer returned last year on the omentum and left flank. So chemo was given for this followed by the parp rucaparib. At the moment I feel really well but my ca125 has been rising,so trying to hang in there hoping things will stay stable for the moment. Sorry I cannot help with provera, but hopefully it will work for you. Try to stay positive. x
Hiya, thanks for your reply. I’m so sorry to hear what you’ve had to go through. I really hope your current treatment will help and , hope the rise in ca125 can be monitored closely and you get the attention and help from the medical team that you need xx
I was told I had womb cancer and now I'm worrying whether I'm on the right forum. The consultant wouldn't tell me anything else at the time. It was in my ovaries too. They took everything out. Hysterectomy, with omentum, tubes, lymph nodes. I haven't heard of the drug you're on and will look it up. Good luck!
Hiya, really sorry to hear you’ve also had womb cancer. It must have been so hard to go through this with surgery, in a short space of time. At the moment, I’ve been told mine is localised in the womb only. Doctors are talking about a hysterectomy, but I’m in the highest level of fear right now.
I’m on provera 100mg x 3 per day. It’s progesterone. To curtail the effects of estrogen promoted cancer. You are probably safer as you’ve had the hysterectomy. So perhaps that’s why the docs haven’t prescribed it.
Hi, I had womb cancer too but it wasn’t known until I had the pathology back from my op if it was a spread of the OC or two primaries (it was the latter). As I’d had the full monty op the only treatment I had was radiotherapy after I’d done chemo. I’ll admit I’m curious why they didn’t remove your womb the first time however. Sorry I can’t shed any light on the drug but here’s hoping it does its thing xx
They didn’t remove the womb first time because i was young and wanted to keep my fertility and hormones. I don’t have any regrets keeping it. I had 5 years cancer free. The cancer in the womb is a new cancer. Xx
Ah right. Sorry if you felt that too nosy, that wasn’t the intention. Here’s to the drugs doing their job well xx
Anyone had pelvic problems years after dealing with ovarian cancer?
Here we go again, breast cancer link.
Has anyone else had this?
ANYONE HAD THIS ON CARBOPLATIN?
Anyone had chemo without surgery?
