Maintenance after chemo

[Aliollie]

Maintenance after carboplatin

Hi lovely ladies I’m going with mum tomorrow to see oncologist she has just finished six months of chemo and her ca125 has dropped. She’s had niraparib but that stopped working she is not braca positive.

I have the knowledge of asking about hormone therapy as suggested by this forum and avastin was hoping there may be something else as maintenance to ask tomorrow. If we can get her something to keep it stable would be wonderful.

Really appreciate any information.

Much love to all Ali xxx

[Sashay2020]

Hi Ali. Glad the chemo knocked down your mum’s CA125. I finished my frontline chemo in November. Initially, my oncologist was going to add Avastin to my last two chemo sessions and then maintain me on Avastin. But when Niraparib was approved for us BRACA negative ladies, he did not add the Avastin. After chemo, I was offered Niraparib, which I declined because I had grown so weary feeling chemo crappy. Now I am just waiting to see how long I stay in remission. It’s been eight months now. I’m sorry I don’t have more useful info for you, but wanted to wish you and your mum well. Best wishes from Louisiana,

Sashay

[Aliollie in reply to Sashay2020]

Hi thanks for your reply it’s really good news it’s been eight months long may it continue. I can tell you when mum was on niraparib she didn’t have many side effects if that helps best wishes Ali xxx

[OvacomeSupport Partner My Ovacome Team]

Hi there Aliollie

Thank you for your post above and for your other more recent post – ‘High grade serous ovarian cancer’. I see you’ve not had any replies from our forum community yet but I imagine there will be some responses soon.

I’m sorry to hear about your mum’s ovarian cancer diagnosis. I hope the appointment with your mum’s oncologist today was helpful, and your questions about maintenance treatment were addressed? As there are ongoing developments in this field, I hope your mum’s doctor was able to offer tailored advice and guidance considering your mum’s own individual circumstances.

You mentioned above that you may discuss Avastin with your mum’s team today and I hope this was helpful. We have an information booklet on targeted therapies which may be of interest to you: ovacome.org.uk/targeted-the... .

We’re here to support anyone affected by ovarian cancer, including family and friends. If you would like to talk through anything with a member of our support team, please don’t hesitate to get in touch. You can contact us directly her on the forum, via our Support Line 0800 008 7054 or 07503 682311, email us at [e-mail], or via the Instant Chat function on our website. We are also available to talk by booking an individual video call. All our services are available Monday – Friday, 10am – 5pm.

In addition, we run a friends and family support group which provides a safe space to ask any questions that you might have about supporting someone with ovarian cancer, meet others, and share experiences and advice. You would be very welcome to join us; details and instructions on how to sign up are available on our website here: ovacome.org.uk/family-and-f... .

Best wishes

Annie

Ovacome Support

[Aliollie]

Hi thanks for your message it wasn’t really much help today thanks for the phone number I will call tomorrow to see if you can help xxx