Posts - My Ovacome | HealthUnlocked

My Ovacome

17,743 members • 19,981 posts

All posts for August 2021

Ca125 dropping but other symptoms getting worse!

Hi All. This is my first post on here, so forgive me if some of my questions have previously been answered! My mum was diagnosed with ovarian cancer in May...

Hi All. This is my first post on here, so forgive me if some of my questions hav...

•3 years ago

Another blip and dont know which way to go..

Morning everyone.. So my journey continues.. following a recurrence I opted for more chemo which appeared to have shrunk on at least quiten down cancer......

Morning everyone.. So my journey continues.. following a recurrence I opted for ...

•3 years ago

Ca125 went up from 8 to 9 and to 11

My wife CA125 was 8 for almost 1 year but in recent July was 9 and now in August is 11. I am so concerned and stressed now, does anybody have the same...

My wife CA125 was 8 for almost 1 year but in recent July was 9 and now in August...

•3 years ago

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Niraparib

Hello ladies, I have been on Niraparib for four months with little side effects or so I thought. Recently I have been having heart palpitations and racing...

Hello ladies, I have been on Niraparib for four months with little side effects ...

•3 years ago

Upcoming online events with Ovacome

Hello everyone This post is to update you about some upcoming online events with Ovacome . There are a variety of support groups and activities available and...

Hello everyone This post is to update you about some upcoming online events with...

Partner•3 years ago

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Disappointed.

Went for my first scan results yesterday after starting Rucaparib four months ago ,not the results I had hoped for ,it's not working ,so stopped taking it...

Went for my first scan results yesterday after starting Rucaparib four months a...

•3 years ago

Gemzar

Does anyone know about gemzar?

Does anyone know about gemzar?

•3 years ago

Breathless!

I completed six sessions of Carbo/Caelyx in February, and almost immediately noticed breathlessness. Up until then, I had no issues at all, and could walk for...

I completed six sessions of Carbo/Caelyx in February, and almost immediately not...

•3 years ago

Maintenance

Hello lovely helpful ladies. My mum has just finished six months of chemo, this is her third lot in four years, her ca125 was a thousand and something it is...

Hello lovely helpful ladies. My mum has just finished six months of chemo, this ...

•3 years ago

Searching for Ehlers Danlos Syndrome ladies who also have OC

Hi lovely ladies, I would like to know your experience of surgery if you also have Ehlers Danlos Syndrome, as I do. TheEDS causes strong muscle spasms and...

Hi lovely ladies, I would like to know your experience of surgery if you also ha...

•3 years ago

Update on PROMPT trial

Hi ladies. Not been on for a while but thought I may update you. After 3 infusions Pembrolizamab (Keytruda) my scan has not shown any improvement anywhere so I...

Hi ladies. Not been on for a while but thought I may update you. After 3 infusio...

•3 years ago

Any advice on Trametinib? Experiences.

My skin reaction has been awful, my face rash felt like a burn it got so bad . Dr has stopped drug to let it heal, the plan is a lower dose with antibiotics....

My skin reaction has been awful, my face rash felt like a burn it got so bad . ...

•3 years ago

Question re:symptoms and DVT

I have been diagnosed with an unprovoked DVT in my subclavian vein and in my internal jugular vein on the left side. Because there seems to be little...

I have been diagnosed with an unprovoked DVT in my subclavian vein and in my int...

•3 years ago

Avastin/Parps

What is the difference between these. Some ladies seem to be put on Avastin for maintenance and others the PARPs so they must work differently. Avastin was...

What is the difference between these. Some ladies seem to be put on Avastin for ...

•3 years ago

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