Latest telephone Appointment

[Di16]

I had a telephone appointment yesterday with a dr from Addenbrookes. No big surprises. I have already been taken off treatment for oc in the spring , as they said they couldn't give me any more treatment, so the scan I had shows further growth. So the advice was

1 Get in touch with them if I need to

2 Keep in touch with GP & hospice as necessary

My family & I have obviously been very disappointed. It had seemed for a long time that every time a treatment ended or stopped working, there was something else they could try, but now....... I need to make the most of the time I have left. My husband & I have had 2 short breaks in the past couple of months, & kept in touch with our daughters & grandchildren. At the beginning of next month we go to a concert at the local theatre. I'll see what else we can do.

[Di16]

I meant to add that today is our 48th wedding anniversary, & we were planning to go out for a meal, but my husband's not feeling well today, so we'll have a belated meal another day. We like to go for a pub lunch occasionally too. And I spent the weekend before last in our local hospital, as I had become very anaemic, & needed 2 units of blood, which has made me feel much better than I was. The trial that was being suggested in the spring wasn't mentioned yesterday, but I didn't bring it up, as I know I'm not well enough for it.

[Lovedogs41]

I am so sorry to hear this,have you considered arranging second opinions? Enjoy your trips and breaks away xx

[Lyndy]

I am really sorry to read this Di16, and that you found out by phone and missed your anniversary meal! You are a very courageous and pragmatic person not to feel a bit sorry for yourself. I hope you have a really lovely time out to celebrate the anniversary and some trips away now chemo is finished. Maybe you will feel a little better in time and able to ask about that trial? Sending you a big hug 🤗

[Irisisme]

Hello Di16.

All I can do is send virtual hugs 🤗🤗🤗You are being very stoical about your position and I admire you for that. I just hope you are well enough to indulge in some wonderful times now there is no more treatment.

Perhaps there will be a trial in the future, or perhaps a second opinion would come up with something else, but perhaps the most important way forward now is to enjoy as much life as you can.

I wish you Good Luck and send more hugs.

Iris 🤞🍀🤗🍀🤗

[Jacky5]

Dear Di16I'm very sorry to hear this.

You must have been so disappointed after that telephone conversation yet you are dealing with everything so sensibly.

You are a brave and inspiring lady.

Im glad you're feeling better after the transfusion. I imagine it may feel like an energy boost...like a dose of steroids?

Hopefully you will feel well and strong enough to really enjoy your belated anniversary, lunches and concert and spending time with your family.

All the very best and a big hug to you .

Liz xx

[Madmarilyn]

Di, have you looked on the get forum at radiotherapies, specifically Cyberknife? Worth asking about? I wish you strength, courage and a promising second opinion. Don’t give up, doctors know little!

[SopSinger]

Definitely get in touch with hospice - they are not just a place to go to die, they are all about quality of life and can help you access support. As far as is possible in the current climate, find nice things to do with your family and enjoy them while you feel well enough. Sending hugs!

[SASSY196]

Di, I am so very sorry to read this. It must take a huge amount of courage to accept that there is no further options available. I hope you are at peace with this decision, if you are that's great if not maybe get a second opinion. I watched a program recently on Netflix about some children living with cancer. Three of these children died, after their deaths their parents reflected that pursuing treatment to the end of their lives had probably diminished their health and prevented more pleasurable time with their families. Every one must make their own choices but it made me think more is not always better, although it takes a massive amount of courage to accept this

I hope that you are comfortable, enjoy spending time with your husband and family and have a lovely anniversary meal when you are ready. Sending you lots of love, Sara

[delia2]

Hi. Thank you for sharing your news despite its being disappointing for you. You might want some counseling or support through palliative care. I hope you can enjoy the time you have. Enjoy your belated anniversary celebration! Xx

[Permafrost]

Hello, I hope you get to enjoy planned treats you are dealing with such difficult news. I am in a very similar position all treatment stopped and I’m feeling very restricted, however I did spend 2weeks in local hospice. It was beneficial they sorted my medication and gave me a break from responsibility. It’s a positive link if you want to use it. Best wishes and fingers crossed for your anniversary meal xx

[Summergold2]

Di It is heartbreaking to hear what your doctors told you ..........anyway a second opinion can help? This cancer is so frustrating. I wish I could send you more than virtual hugs. Please let us know how you are getting on and if you can find anything to give you happiness and peace do it! Fingers crossed and hoping you have an amazing anniversary meal. If you can't make it out how about getting an in home Chef for the day? they can tailor a meal just for you two make it and clean up like they weren't even there! Maybe an option. Hugs Debbie