Hi, there! i was writting before, my mom had ovarina cancer 2b stage and 6 chemotheraphy in 2017, now in may 2021, cancer is back with a lot of matastaes all around stomach and lymph ( probably outside liver) there is no organs inside as we understand. Her Ca 125 was 220 when they found situation, after 1st chemo it goes up to 236, but after 2nd it went down to 116, is it good singn? i am just affraid as waiting her new blood control results, Leikocit is goo more than 7 , but hemoglobin go down to 105, what u use to take it up?
Tomorrow she is going to hospital to have CT scan and 4th chemo... affraid a lot
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hi - has your mum had pet scan and mri yet? my hospital goes through a series of tests to work out what's wrong. i'm worried i may be in a similar position. am sorry i cannot help but just send a hug to you both. try to be brave for your mum. xx
Sounds like the chemo is actually doing the job her CA125 is coming down. The scan tomorrow will hopefully give a clearer picture. Stay strong for your dear Mum sending love to you both and hoping for good results for her. SheilaFxxx
Hi, certainly sounds like the chemo is doing it’s job. I was diagnosed 3b in 2007 and despite 2 recurrences I am still here with current remission of 8 years this month albeit on a Parp inhibitor. I know from experience how frightening and scary it is watching yr mum going thru treatment but she is receiving the best care. Big hug to you both. Kathy xx
2007 wow just what we all need such marvellous news, your an inspiration thank you for sharing. And your so right it is a frightening journey but we can lead a normal happy life.
H Katmal. That’s lovely to hear of your remission of 8 years. Is that 8 years on a PARP inhibitor and if so, which one please? I am on PARP but have to come off it after 2 years which will be very scary.
Wow, thats great. And no side effects…….are you still on full dose? How often are your bloods and any scans (what type?) done may I ask? Its brilliant to hear this, thankyou. X
I do have side effects but over times these have reduced. I have been on 600mg per day since Jan 2014. I follow the trial protocol so have bloods done every 12 weeks and scans every 24. Kathy xx
It’s below 3 . on recurrence it was 65. mine has never been high but it is a good indicator for me. At diagnosis it was only about 365 and I am stage 3b.
It looks like the chemotherapy is working, hopefully the ct scan will show a reduction. Maybe when she has finished treatment she can go on a PARP inhibitor, you could ask her Oncologist.
As far as the haemoglobin is concerned they will intervene when it’s too low.
I understand it’s all scary I found it harder to deal with when my mother had cancer than me having cancer. But the treatments get better all the time. Sending you a big hug 🤗 Mish xx
Hello, praying for your mum and you to stay strong and positive, I’m agreeing with other ladies here we all have had reoccurrence and bounced back let the chemo finish working sweetheart. Give your weakness to God and He’ll give you His strength. Praying for both of you!
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CA125 dropped after 1st chemo
Update on Mum after advice on here re second opinion 
Second opinion?
She’s nearly 60!!! 
is falopian tube cancer the same as ovarian cancer?
