Hot!!!!: Anyone else on Olaparib plagued with hot... - My Ovacome

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Hot!!!!

Rankij11 profile image
17 Replies

Anyone else on Olaparib plagued with hot flushes (flashes- never been sure which is right ! ) mine seem to be increasing. Don’t think it’s the cancer re-appearing yet as Ca125 ok ???

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Rankij11 profile image
Rankij11
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17 Replies
Jacky5 profile image
Jacky5

Me too!I always have a fan in my bag and

I have a big fan by my bed .

The duvet is constantly being flung off and dragged back. My husband moans about my "thrashing about" and we're both exhausted some days from the lack of sleep.

I never really took hot flushes...or flashes (as Mrs Doubtfire would say) seriously before but they are just so intense aren't they?

Hopefully other ladies will come along with some great tips.

Liz x

Rankij11 profile image
Rankij11 in reply toJacky5

Relentless ! I’m sorry for yours , but maybe it is side effect then ???

Good job it’s a cool summer

Take care

Jennifer

Jacky5 profile image
Jacky5 in reply toRankij11

Think mine is mainly due to the menopause after the hysterectomy but I have often wondered if the Olaparib has made it worse. All the best

x

bamboo89 profile image
bamboo89

'Flashes' is American, 'flushes' is English... I was on a different PARP, Niraparib and yes I got more hot flushes, but I found the earlier carboplatin also increased the flushes. I'm 71 but my flushes had never really stopped completely since menopause, though they were fairly mild and probably only a couple a day, until Carboplatin and Niraparib, when they became more frequent. Including the reappearance of the ghastly 'inferno' ones, where you're quite suddenly so hot the temptation to rip off all your clothes wherever you are is overwhelming ... luckily, being at home most of the time,, that's exactly what I did, but otherwise, yes, the duvet's thrown off about every two or three hours at nights, unless I don't wake up when one starts, and then I wake up because both me my pyjamas are soaking wet. Kind of got used to them again now...

Miriam

Rankij11 profile image
Rankij11 in reply tobamboo89

Thanks Miriam . No pain no gain I guess. I’m glad I get to have flushes not flashes 🤣Hope you’re well

Jennifer

bamboo89 profile image
bamboo89 in reply toRankij11

'Flashes' irritates me a bit because the word implies something that comes and goes in a flash. a second or two - I wish they did, my hot flushes last around 5 minutes😳😉

Ruebacelle profile image
Ruebacelle

My experience all chemos and cancer bless us with hot flashes. Aren't lucky

Rankij11 profile image
Rankij11

They are like roller coasters but I never liked those either. And I’m too old ! At least I’m not alone.Thanks for answer

Jennifer

delia2 profile image
delia2

Yes I am! Especially at night! I think they intensified before diagnosis and with chemo and then again with Olaparib. The gift that keeps on giving!

Rankij11 profile image
Rankij11 in reply todelia2

Thing is when I looked ,I don’t think I saw them on the side effect list ?? But then they don’t mention that with chemo either ??? Just was curious to know if others were afflicted , they certainly are spectacular!!! So thank you for response.

Best wishes

Jennifer

Summergold2 profile image
Summergold2

I have them so bad for the first three days ! I wake up drenched and then freezing cold . So cold I stand up n the shower as hot as I can stand to t for 10 min or until I start to feel drowsy and then go to bed only to wake up two more times and start the process over….. it recedes around the third day and pretty normal for the next days until chemo Carbo and Doxil the next time. But numbers have dropped so happy for that

Rankij11 profile image
Rankij11 in reply toSummergold2

Just hope things get better for you . Those numbers dropping good incentive! Keep going

Jennifer

Summergold2 profile image
Summergold2 in reply toRankij11

how are things going for you? I believe Onc will put me Oliparib too hope my body can take themDebbie in San Diego

Rankij11 profile image
Rankij11 in reply toSummergold2

Hi Debbie They are magic pills . Honestly I was stage 1V, inoperable, started them jan 2020, still going strong . And you can have a life . I do everything I was doing before this monster descended and more . There are side effects , but you can find ways to manage these, they can often fix dosage . And they do improve with time .Worse thing is if your bloods act up but I think these mostly settle for people unless you’re unlucky . I really hope things go well for you with ongoing treatment .

Best wishes from UK

Jennifer

Summergold2 profile image
Summergold2 in reply toRankij11

Thank you Jennifer for the pep talk I was diagnosed in December 2019 stage 3 c remission for a year and now it’s back finished 3 rd session on chemo now ct scan but ca is at 19 so seems to be working we all have to fight and live our lives as we choose! Fight on teal sister!

FlowerRose profile image
FlowerRose

I just wrote up my flashes to the fact that i was already 51 when debulking surgery put me in medically induced menopause! Taking olaparib too, but that provides the nausea. Every single evening like clockwork i get very hot and bothered, regardless of the season. Usually a cold shower makes it go away. Ugh.

Rankij11 profile image
Rankij11 in reply toFlowerRose

At the moment they are constant for me , noticed can just be hot cuppa that trigger. They are tiring. Anyway life is liveable and I guess just manage them and carry on . I’m much to old for these , but I do know of people with ‘normal’ menopause who’ve flushed for ever !!!! Aaaargh ! Best wishes

Jennifer

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