Posts - My Ovacome | HealthUnlocked

My Ovacome

17,739 members • 19,979 posts

All posts for September 2017

False hopes

Went to see consultant about my scan results after two times previous seeing her under study I actually saw my own consultant I also ask her what to put on my...

Went to see consultant about my scan results after two times previous seeing her...

Bobbyo1

•7 years ago

15 Replies

Great day at work. Sod cancer.

Hi all. I’ve had a great day at work. I work in a college with students with learning difficulties. We went to a park today and then back to lessons then the...

Hi all. I’ve had a great day at work. I work in a college with students with le...

Suzanne333

•7 years ago

80 Replies

Mum with low grade ovarian and limited treatment options

Ladies, My Mum was diagnosed nearly seven years ago now with low grade ovarian cancer. Following 9 rounds of chemo (which never worked), she was prescribed...

Ladies, My Mum was diagnosed nearly seven years ago now with low grade ovarian c...

CharlotteSo_UK

•7 years ago

10 Replies

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IP6 gold

Has anyone tried IP6 gold, my hubby sent away for it. It's a powder you mix with water and it helps with your immune system. Someone told us about and she got...

Has anyone tried IP6 gold, my hubby sent away for it. It's a powder you mix with...

Juliette35

•7 years ago

1 Reply

Hats off hair coming back.

On a good note, my hat is gone and hair coming back after 2nd line chemo finished in June. It seemed to ne aback lot slower coming back this time. So here's...

On a good note, my hat is gone and hair coming back after 2nd line chemo finishe...

Hidden

•7 years ago

17 Replies

Importance of having a very full bladder for a pelvic ultrasound

Hi Ladies, While undergoing an ultrasound last Thursday the person doing the scan could not get a clear view of my left ovary so he sent me away to drink 4...

Hi Ladies, While undergoing an ultrasound last Thursday the person doing the sca...

Mguilfo

•7 years ago

14 Replies

Hi lovely ladies.

Hi all. I usually pop on here more regularly but I’ve been very busy at work which I find great as it gives me no time to think of the obvious. I hope...

Hi all. I usually pop on here more regularly but I’ve been very busy at work wh...

Suzanne333

•7 years ago

26 Replies

Grumbling

Had 2 cisplitin been ok Just sick and feeling sick my question is had a bowel obstruction 3 weeks ago everything seems to be working fine now it was because of...

Had 2 cisplitin been ok Just sick and feeling sick my question is had a bowel ob...

Friscok12

•7 years ago

2 Replies

Goserelin injections

Hi all, Only on this forum since august and have learnt so much from all of you. I finally asked for a name of my cancer and this is what they called it....

Hi all, Only on this forum since august and have learnt so much from all of you....

Hidden

•7 years ago

23 Replies

Put my check up ogg

Put my 4 month check off a month because I want to go away for November. Feel great, but of course, now worried I am being stupid & over confident! We have a...

Put my 4 month check off a month because I want to go away for November. Feel gr...

Sherrym

•7 years ago

15 Replies

CT Scan results

Saw my oncologist yesterday and he told me that it shows a few spots round my liver and pelvis area. He is keeping me on tamoxifen tablets for now, but putting...

Saw my oncologist yesterday and he told me that it shows a few spots round my li...

Juliette35

•7 years ago

17 Replies

Caelyx as maintenance

Has anyone in the UK had experience of this and how did it go? Niraparib has not worked for me! Hope everyone is determined ++ this autumn! xx

Has anyone in the UK had experience of this and how did it go? Niraparib has not...

chrissapam

•7 years ago

20 Replies

Odyssey

I've just come back from Odyssey. If you get a chance to go, do. Ask your Macamillan nurse about it. www.odyssey.org.uk

I've just come back from Odyssey. If you get a chance to go, do. Ask your Maca...

Rachael47

•7 years ago

3 Replies

Deflated

I'm sitting in the oncology unit after a second allergic reaction to paclitaxel despite enough steroids to help me pull a tractor with my teeth. They did a...

I'm sitting in the oncology unit after a second allergic reaction to paclitaxel ...

Melongirl

•7 years ago

31 Replies

Hi

I'm Alix, 40 and living in the north east of England. Finally plucked up the courage to see my gp yesterday about my worrying symptoms (no appetite, tummy...

I'm Alix, 40 and living in the north east of England. Finally plucked up the cou...

Soupy76

•7 years ago

21 Replies

Completion of second line chemo - hurrah!

Hello everyone, a little update on my progress ... I've had a very positive outcome from my second line of 8 treatments of carboplatin. My CA125 ha dropped...

Hello everyone, a little update on my progress ... I've had a very positive outc...

Hidden

•7 years ago

26 Replies

Brilliant service from my hospice

I just thought I would share this with you as I am so pleased. last month I was talking to a nurse at the hospice and happened to mention I didn't have a blue...

I just thought I would share this with you as I am so pleased. last month I was ...

Ann87

•7 years ago

6 Replies

Elevated CA125 and Ovarian cyst

High guys, Thanks for all the advice given. I went back to the GP yesterday and he repeated my CA125 which was 96 last march! He also included lots of other...

High guys, Thanks for all the advice given. I went back to the GP yesterday and...

Mguilfo

•7 years ago

8 Replies

Post surgery complications and infection

My surgeon removed the glue after 2 weeks of my surgery, this caused infection and a lot of post surgery complications, should I sue him for causing me all...

My surgeon removed the glue after 2 weeks of my surgery, this caused infection a...

Malak24

•7 years ago

11 Replies

I posted yesterday about the p...

I posted yesterday about the pain being different and more severe. Well I stayed in the ER again last night from 530 pm to 3 am when they admitted me. They...

I posted yesterday about the pain being different and more severe. Well I stayed...

Jessfrogg

•7 years ago

9 Replies

Any hope?

Hello Brave ladies. My mum has now been admitted to hospital again with severe vatigue and tummy pain. They carried out a CT Scan and now the liver and the...

Hello Brave ladies. My mum has now been admitted to hospital again with severe v...

Cilla18

•7 years ago

11 Replies

Seize The Day

As our dear much loved and missed Clare replied to me earlier this year, seize the day and live for the moment. Well that is exactly what I am doing. I'm on...

As our dear much loved and missed Clare replied to me earlier this year, seize t...

111173

•7 years ago

29 Replies

Good Morning from Rainy Manchester

As many of you know I have been on a trial for recurrent low grade serous ovarian cancer. Two weeks ago my medication was stopped because a recent...

As many of you know I have been on a trial for recurrent low grade serous ovaria...

ScardyCat40

•7 years ago

32 Replies

Please offer advise as to who should check CT scan

Hello, this is my first post and I apologise in advance as I am at a crossroads and will be following either the no OC path or the OC path depending on...

Hello, this is my first post and I apologise in advance as I am at a crossroads ...

Kellybonnon

•7 years ago

16 Replies

NOCC 5k Walk/Run

Hey everyone, hope you are doing well! This past Sunday, mum and I attended the National Ovarian Cancer Coalition on a 5k Walk/Run! This was the first time we...

Hey everyone, hope you are doing well! This past Sunday, mum and I attended the...

kristinaapril

•7 years ago

2 Replies

BRCA Guys & St Thomas' or Royal Marsden

Hi ladies Latest dilemma. I was referred for BRCA testing to Guys who were great and having found I'm BRCA 1 positive have sent me info about their BRCA unit...

Hi ladies Latest dilemma. I was referred for BRCA testing to Guys who were great...

Emsymits

•7 years ago

4 Replies

Impatient patient update

Turns out nagging wasn''t needed after all. Chocolate was. I got a call from the appointments office today and have been booked onto the oncology ward for...

Turns out nagging wasn''t needed after all. Chocolate was. I got a call from the...

Melongirl

•7 years ago

4 Replies

Olaparib still working

Latest scan results today, 3 years 9 months on Olaparib, 4 years NED. They don't know why I am responding so well and I for one am not complaining!. Not sure...

Latest scan results today, 3 years 9 months on Olaparib, 4 years NED. They don'...

Katmal-UK

•7 years ago

106 Replies

Good news at last

Good morning lovely ladies, I just wanted to post this here for anyone else who was/is searching for answers and driving themselves nuts like I was, about what...

Good morning lovely ladies, I just wanted to post this here for anyone else who ...

Travelmonster

•7 years ago

35 Replies

Possible Ovarian Cancer

Total hysterectomy scheduled for Oct 5 th. My pain had gone away a few days prior to my diagnosis of mass on my right ovary and elevated CA125. As I'm writing...

Total hysterectomy scheduled for Oct 5 th. My pain had gone away a few days prio...

Jessfrogg

•7 years ago

5 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for September 2017

False hopes

Great day at work. Sod cancer.

Mum with low grade ovarian and limited treatment options

IP6 gold

Hats off hair coming back.

Importance of having a very full bladder for a pelvic ultrasound

Hi lovely ladies.

Grumbling

Goserelin injections

Put my check up ogg

CT Scan results

Caelyx as maintenance

Odyssey

Deflated

Hi

Completion of second line chemo - hurrah!

Brilliant service from my hospice

Elevated CA125 and Ovarian cyst

Post surgery complications and infection

I posted yesterday about the p...

Any hope?

Seize The Day

Good Morning from Rainy Manchester

Please offer advise as to who should check CT scan

NOCC 5k Walk/Run

BRCA Guys & St Thomas' or Royal Marsden

Impatient patient update

Olaparib still working

Good news at last

Possible Ovarian Cancer

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