Completion of second line chemo - hurrah! - My Ovacome

My Ovacome

17,594 members19,873 posts

Completion of second line chemo - hurrah!

26 Replies

Hello everyone, a little update on my progress ... I've had a very positive outcome from my second line of 8 treatments of carboplatin. My CA125 ha dropped from about 1600 in April prior to chemo to normal range in July and down to 10 now. The tumours have shrunk considerably, by about 60%, and I don't have any cancer symptoms at the present.

Next step is a scan in 6 weeks time and testing of the tumour to identify whether the BRACA gene is present (it's not present in the blood). If so I would be eligible for oliaparib on the public health system here in Australia. Not sure what happens if the test is negative, but trying not to worry about that for now. Meanwhile enjoying an absence of visits to the hospital, my parents visiting from the UK, and some lovely sunshine on the farm.

with best wishes to you all, Dawn

Read more about...
26 Replies
Lyndy profile image
Lyndy

Well done you! You deserve a lovely rest and relax after that lot! Have fun xx

in reply to Lyndy

Thanks Lindy, it's a nice feeling not having a diary full of treatment days!

Katmal-UK profile image
Katmal-UK

Great news! Enjoy the visit from yr parents and absence of hospital visits!! xx

in reply to Katmal-UK

Thanks - definitely enjoying time with folks - except they keep beating me at cards!

Tesla_7US profile image
Tesla_7US

Dawn, so glad to hear your positive news. Your tumors can keep shrinking after chemo complete. Hoping the buggers disappear!

in reply to Tesla_7US

That's interesting - I hope they've got a terminal dose of those nasty chemicals. My oncologist did say that at the end of chemo the mass on a ct scan can be dead cells - I thought he was just trying to be encouraging, I should know after the next scan.

Tesla_7US profile image
Tesla_7US in reply to

Your oncologist is telling you the truth. My scan came back with 2 node like masses that were actually clumps of dead cells. When I had my colostomy reversed the doc biopsied those two masses plus four more. All six showed no signs of malignancy. So, that second surgery to take down the colostomy allowed him to biopsy many "little clumps" none of which had any living cancer cells. I would not have gotten that "second look" if I hadn't had the colostomy. Silver linings. So, I am in radiological remission (NED on scans), Clinical remission (Blood CA low normal), and pathological remission (biopsy directly from tissue). Anything can happen! Focus on whatever brings you joy and do not let go!

in reply to Tesla_7US

Thank you so much for sharing your positive story ... all power to you!

Cheers, Dawn

Hi Dawn . Great news I hope it continues, I'm in Australia also I had the BRACA test and was negative, if you do need further treatment their are options I'm on my 5 line treatment in 3 years.

I live in the Blue Mountains NSW I read one of your post about your cradle mountain trip in Tasmania do you live there? a lovely part of the world.

Enjoy your treatment free time and your parents visit .

Best wishes Lorraine xx

1032 profile image
1032 in reply to lorraine71-Australia

What are BRACA test???

lorraine71-Australia profile image
lorraine71-Australia in reply to 1032

Hi, the BRCA test is a blood test to check for mutations in genes called BRCA1 and BRCA2 this test can then help you know if it is hereditary and can also help in future treatments. I am negitive so this is good for my two daughters.

When you see your oncologist ask about the test, I was asked if I would sign up to have it done , you can have it done Privately about $900 here in Australia but if your oncologist can arrange it for you all the better.

I'm glad you have found this site the ladies on here will always be happy to help with any advice or just encouragement..Take care Lorraine xx

1032 profile image
1032 in reply to lorraine71-Australia

thank you for that. My oncologists has given me brochures on genetic testing and I’m going to say yess to it.

lorraine71-Australia profile image
lorraine71-Australia in reply to 1032

Hi, Good idea hope all goes well with your treatment..Lorraine xx

in reply to 1032

In addition to Lorraine's reply ... it is possible to be negative for the gene mutation in your blood but to be positive in the tumour cells. The former is important to assess the hereditary risks but the latter can offer additional personal treatment options i.e. the PARP inhibitors.

Cheers, Dawn

in reply to lorraine71-Australia

Hi Lorraine - thanks for the encouraging words, there does seem to still be a few treatments in the kit bag.

I live on the north coast of NSW, south of Coffs Harbour - when I lived in Sydney we would go hiking in the Blue Mountains often, so I know it quite well - another very beautiful part of Australia.

I hope your treatment in going well at present

Best wishes Dawn

Great news! Enjoy your parents' visit.

Juliet x

in reply to

Thanks Juliet - having a nice relaxing time at present.

1032 profile image
1032

Congrats! CA124 down that far is fantastic. Enjoy the visit from family. I am also in Australia, Sunshine Coast Hinterland Qld.

in reply to 1032

Beautiful part of Australia - we're just south of Coffs Harbour. Could do with some rain at present!

antheamary profile image
antheamary

Braca testing is a blood test to look at genetics & whether your relatives are positive or not to a chance of getting this disease.

1032 profile image
1032 in reply to antheamary

thank you, am going to get it done.

Westawake profile image
Westawake

Well done and long may it last. Great to get good news. Enjoy the outdoor life and hospital free days.

Stay well

in reply to Westawake

Thank you - as soon as I've got some energy back I've got a few hikes that are on my bucket list!

1032 profile image
1032 in reply to

lots of great walks round your way too. I have a few good friends that way that I visit..

Guess we all live in a beautiful part of the country. Hugs. 🌺

Cropcrop profile image
Cropcrop

Hi Dawn, g'day from the UK.

Well done on completing your chemo, you must be thrilled with the results.

Enjoy the freedom from hospital visits and have a fabulous visit with your parents. Keep well and let us know how you get on. Take lots of care ❤️Xx Jane

in reply to Cropcrop

Thank you for the good wishes Jane. I'll post once I get the next scan done.

I'm waiting for the iron infusion and B12 injection that I had with my final chemo treatment to kick in and increase my energy levels.

Cheers, Dawn x

You may also like...

1st lot of second line chemo completed

Last chemo (second line)

cisplatin so I’ll be platinum sensitive therefore eligible for olaparib. It’s a bugger not being...

Caelyx and Carboplatin for second line Chemo: Any tips?

with Caelyx alone and Caelyx combined with Carboplatin. I thought I read some posts over the past...

Second line chemo “choice”

surgery which has gone really well with only one tumour and no other spread. Feeling well 2 weeks...

Second Line chemo - Avistan

they were. My ca125 only went down to 44 after operation the went up steadaly on carboplatin to 75...