Hello everyone, a little update on my progress ... I've had a very positive outcome from my second line of 8 treatments of carboplatin. My CA125 ha dropped from about 1600 in April prior to chemo to normal range in July and down to 10 now. The tumours have shrunk considerably, by about 60%, and I don't have any cancer symptoms at the present.
Next step is a scan in 6 weeks time and testing of the tumour to identify whether the BRACA gene is present (it's not present in the blood). If so I would be eligible for oliaparib on the public health system here in Australia. Not sure what happens if the test is negative, but trying not to worry about that for now. Meanwhile enjoying an absence of visits to the hospital, my parents visiting from the UK, and some lovely sunshine on the farm.
That's interesting - I hope they've got a terminal dose of those nasty chemicals. My oncologist did say that at the end of chemo the mass on a ct scan can be dead cells - I thought he was just trying to be encouraging, I should know after the next scan.
Your oncologist is telling you the truth. My scan came back with 2 node like masses that were actually clumps of dead cells. When I had my colostomy reversed the doc biopsied those two masses plus four more. All six showed no signs of malignancy. So, that second surgery to take down the colostomy allowed him to biopsy many "little clumps" none of which had any living cancer cells. I would not have gotten that "second look" if I hadn't had the colostomy. Silver linings. So, I am in radiological remission (NED on scans), Clinical remission (Blood CA low normal), and pathological remission (biopsy directly from tissue). Anything can happen! Focus on whatever brings you joy and do not let go!
Hi Dawn . Great news I hope it continues, I'm in Australia also I had the BRACA test and was negative, if you do need further treatment their are options I'm on my 5 line treatment in 3 years.
I live in the Blue Mountains NSW I read one of your post about your cradle mountain trip in Tasmania do you live there? a lovely part of the world.
Enjoy your treatment free time and your parents visit .
Hi, the BRCA test is a blood test to check for mutations in genes called BRCA1 and BRCA2 this test can then help you know if it is hereditary and can also help in future treatments. I am negitive so this is good for my two daughters.
When you see your oncologist ask about the test, I was asked if I would sign up to have it done , you can have it done Privately about $900 here in Australia but if your oncologist can arrange it for you all the better.
I'm glad you have found this site the ladies on here will always be happy to help with any advice or just encouragement..Take care Lorraine xx
In addition to Lorraine's reply ... it is possible to be negative for the gene mutation in your blood but to be positive in the tumour cells. The former is important to assess the hereditary risks but the latter can offer additional personal treatment options i.e. the PARP inhibitors.
Hi Lorraine - thanks for the encouraging words, there does seem to still be a few treatments in the kit bag.
I live on the north coast of NSW, south of Coffs Harbour - when I lived in Sydney we would go hiking in the Blue Mountains often, so I know it quite well - another very beautiful part of Australia.
I hope your treatment in going well at present
Best wishes Dawn
Great news! Enjoy your parents' visit.
Juliet x
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Thanks Juliet - having a nice relaxing time at present.
Well done on completing your chemo, you must be thrilled with the results.
Enjoy the freedom from hospital visits and have a fabulous visit with your parents. Keep well and let us know how you get on. Take lots of care ❤️Xx Jane
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Post second line chemo check up - positive news
2nd line chemo 
1st lot of second line chemo completed
5th line chemo
? Heading for 3rd line chemo
