Only on this forum since august and have learnt so much from all of you.
I finally asked for a name of my cancer and this is what they called it.
Metastatic undifferentiated stromal sex cord tumour.
After 18 months with two rounds of chemo treatment and letrosol
Given a time frame of 6/12months and handed over to palliative care team.
Went for second opinion and this is what she has suggested, Goserelin injections.
Anyone else had these?? M told the side effects are joint pains mood swings, but mostly flare-ups which can cause the tumour to bleed.
Thanks to everyone for all the information and support so far. Long may it continue.
Ann Nora 🍀