As many of you know I have been on a trial for recurrent low grade serous ovarian cancer. Two weeks ago my medication was stopped because a recent echocardiogram show some changes to my ejection fraction. The ejection fraction is a measure of how efficiently your heart is working. Normal range is 50-70% (although some disagree and say its 55-75%) at the start of treatment mine was around 60% I think but now it has dropped to 50%.
Those that follow my posts will know that I have been suffering with shortness of breath and sometimes waking up in the night gasping for air with no obvious cause or anything suspicious on my scans.
I had a repeat echo on Monday and it has showed no change to my EF so at least its not got worse but this means I still can't restart treatment. I have another echo in 2 weeks but if it still doesn't improve them I may be off the trial permanently. I may also be referred to a cardiologist.
I have also asked to be referred to a respiratory specialist after a couple of lung function tests showed some confusing results. I received a copy of the referral letter but when I chased it up the hospital had not received the letter. I did mention this yesterday whilst in clinic.
My CA125 is also rising and I have a routine CT scan on Monday