The waiting game: Hello ladies. Hope you are all... - My Ovacome

My Ovacome

18,349 members20,425 posts

The waiting game

Leeds2015 profile image
3 Replies

Hello ladies. Hope you are all having a good day. Cold and misty here in Leeds which is not helping my mood. I've had 3 carbo/taxol now, ca125 was 2662 before treatment then to 995 after 1st, 426 after 2nd which I have been told is an excellence response. Had a scan on weds and my team discuss next couse of action next weds. Will it have gone? Will it be debulked enough for them to operate? What if they can't operate? Would I get a 2nd opinion? If they operate will they be able to get it all? Apparently may be difficult due to scarring left from radiotherapy 10 years ago for cervical cancer. So many uncertainties and I feel as if my life is hanging in the balance. The waiting is always the worst part I know, but time seems to be going very slowly even though I am trying to keep myself busy.

Written by
Leeds2015 profile image
Leeds2015
To view profiles and participate in discussions please or .
Read more about...
3 Replies
baxbird profile image
baxbird

Hello, sorry that you have found yourself in this position. You're right you've had an excellent response so far and again you are right in the fact that the waiting is the worst time, it's all the what ifs etc.

I'm currently second line, after my debulking there were still some spots left that they couldn't get, I had 3 more chemo post surgery to help mop up. I'm second line now after 6 months chemo free. Now I don't say this to scare you but to let you know it's not the end of things if they can't get it all, or the chemo can't kill it off. I'm fit ( ha ha) but most of all well, feel good and apparently look good! It is a pain in the posterior to keep doing chemo but for me it's not that bad compared to the opposite option.

You have responded well, don't think negative thoughts yet as they are a waste if time till you get the facts, which won't be long now and then you CAN deal with it.

Dawn xx

AnnieMae profile image
AnnieMae

I remember well how you are feeling and it's quite normal so don't be hard on yourself! You've had a good response so looks good for surgery and it's amazing what surgeons can do. I had surgery after 3 cycles. It was such a relief to be offered the operation. I then had 3 more cycles of chemo. Same as Dawn, I finished 2nd line in April and happy to keep having the treatment when needed for as long as they can keep me going!

Good luck with everything

Annette xxx

thesilent1 profile image
thesilent1

Hi, great response to the chemo so far. I just want to say don't worry if they can't offer you surgery half way through treatment. I know of ladies who completed all 6 cycles of chemo and had surgery after that.

Good luck.

Ann x

Not what you're looking for?

You may also like...

The Waiting Game

Well ladies , 3 month check went as i thought , consultant can't be sure what the pains are in my...
Shazican profile image

WAITING GAME

I'm not really sure what to write or what I am doing, head in a bit of a whirl at the moment, just...
linzilou78 profile image

The waiting game.

Not sure about typing this tbh I feel like a bit of a fraud. I don't have a cancer diagnosis but...
emmarocky profile image

That waiting game....

I'm still awaiting test results - which is frustrating and scary. My story started with early...
Pixiefae profile image

Hi everyone its my first time of posting.

Hi, I was diagnosed with OC in November last year. I had my 3rd chemo on Weds, and having a Cat...
caz54 profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.