Following on from Nikki’s question about how to get on a drugs trial, I wonder when is the best time to go on a drugs trial. I realise that each trial has different critera for its intake, but I was wondering in more general terms.
I told my oncolosgist’s registrar at a recent check-up that I was interested in taking part in the PARP inhibitor trial, but he dismissed this giving the same reason as they have given for me not having chemo just yet; that the treatment could be worse than the disease at the present time. (Although I have active disease I am relatively symptom free.)
However there is another layer to the ‘delaying treatment’ argument and that is that they do not know how long I will remain platinum sensitive, but presume that I will become resistant at some point in the future. So, they don’t want to use platinum on me now, when I might really need it later on. So, to my mind this would be the perfect opportunity to go on a drug trial.
However this doctor pretty much suggested to me that you would only take part in a drug trial when nothing else was working, and I wanted to know if this is the case for those of you who are currently on drug trials.