Is anyone living in Kent?

[Emcee71]

Hello

This is possibly the worse time to be asking as I am about to start 1st line chemo* this week, but is anybody based in Kent (UK)?

I'm being treated at Maidstone Hospital. I live in West Kent.

Holla if you are close by. It'd be good to compare notes by message (especially if you have Clear Cell OC) but also maybe we could meet up in person at some point?

Emily X

(or, perhaps it's a good time?? Who knows!)

[SuffolkJen]

Hi Emcee71

Unfortunately I don’t leave nearby but just wanted to wish a fellow CCOC sister good luck for you first chemo xx Jen

[Emcee71 in reply to SuffolkJen]

Thank you Jen xx

[Lyndy]

Hi Emily, I hope you find some locals on here (I am N Essex so a bit too distant). I eventually found others nearby partly due to checking out local support networks like Macmillan and through Facebook etc. Maybe your CNS if you have one could help too? xx

[Emcee71 in reply to Lyndy]

Thanks Lyndy

There isn't much around here but I have contacted a local charity re alternative therapies and they have said to come down x

[Doglover1410]

Hi, also in N Essex but hope you find someone close. Good luck with the chemo x

[Emcee71 in reply to Doglover1410]

Thank you 😊x

[Gonewith]

I met a lovely lady at hospital where Ive done my chemo last year and she had a the same OC. We are still in contact and share information. You might also meet someone there.

Good luch with your chemo. Xx

[Emcee71 in reply to Gonewith]

Hi yes you're right. The nurse did mention a lady in a similar situation recently, she may still be in treatment x

[Nus38]

Hello Emily

I wish i lived near to your but unfortunately i am very far. You can always message me i will be happy to chat or message you. Btw i am also cocc.

Wishing you well with your first treatment.

Kind regards

Nus x

[Emcee71 in reply to Nus38]

Thanks Nus and glad you are NED xx

[NewtonEmma1900]

Try looking at the fb page of Target Ovarian Cancer. I live in South Bucks and I have met 3 other ladies. We meet exchange messages, meet for coffee or lunch and generally support each. X

[Emcee71 in reply to NewtonEmma1900]

Thank you Emma will do that x

[Jud15]

Hi Emcee, I live in East Kent, but am treated by the Maistone team as because it's a specialist centre it provides care for all of Kent and parts of E Sussex. I'm HG and currently not able to drive, not directly cancer related. Maybe likely you're treated by Dr W. I've been under his care since diagnosis in 2018 and so just coming up to 6yrs.As someone said there are some specialist groups, perhaps someone on here with Clear cell can give you any links?

You can always DM me if you'd like

Judith

[Emcee71 in reply to Jud15]

Hi JudithNice to hear from you and sorry to read about your diagnosis and recurrences.

I'm being treated by Dr J. It will be 10 weeks since surgery before I start chemo. This concerns me but Christmas delayed things as well as the onco needing more histology.. maybe.

To make it worse 2 days before my 1st session I think I have a tooth infection. Will see dentist tomorrow and possibly have to delay chemo... Might DM you soon thanks for getting in touch!

Emily x

[VillageWalker in reply to Emcee71]

Hi.Don't panic about the tooth. I too had 10 weeks between surgery and start of chemo and I also got a tooth infection a couple of days before starting chemo. My team didn't want me to delay chemo and so gave me antibiotics. The tooth settled down and limped through chemo until I could have it extracted. I was told that if it hadn't have settled they would have delayed one of the later chemos by a few weeks to allow dental treatment. Apparently this is not uncommon.

My dentist was surprisingly knowledgeable about chemo and about what could and couldn't be done safely. They gave me advise and as an added benefit they gave me a prescription for high Floride toothpaste to last me the duration of chemo. So it was quite a beneficial trip to the dentist!

Good luck with the chemo.

[Emcee71 in reply to VillageWalker]

Oh thank you VW, that is very reassuring indeed! X

[Jud15 in reply to Emcee71]

Sorry to hear about your tooth, but some good advice on here and you'll have seen your dentist by now. I had a long delay with restarting chemo as I had a wound infection and it was OK. Judith

[Realistic]

Hi Emcee l hope you get someone in your area, not that lm wishing cancer on others lm most certainly not. But l have found a truly lovely friendship on here. She really brightens my day and l hope l do the same for her. We truly understand the ups & downs we all have being in the same boat. But we manage to have a laugh she's a true godsend to me. And we only live a few miles from each other. God bless keep wellIm on one of my holidays again. After havingva bad week didn't get great results last Monday and got our brand new 3 day old car bashed by a young driver oh dear. But hopefully lve had my 3 pieces if bad luck in a week results, car & then ld done click & collect at airport for all my heavy toiletries because we only carry hand luggage

And left that in the overhead locker if the plane.

Anyhow bad luck over positive thoughts & sunshine hopefully oh and as usual a little retail therapy in the mix. Love & hugs to each and every one of you there us light at the end of the tunnel we just have to find it . SheilaFxxx

[Leniko]

I’m in US, but also have CCOC, there’s only 6% of us. Will they start you on Carbo/Paxil?

[Emcee71 in reply to Leniko]

Hi LenikoYes 6 x Carbo / Taxol which is the same as Paxil isn't it? X

[Leniko in reply to Emcee71]

Yes. Carboplatin and Paclitaxel.

[wendydee]

I’m in South Essex, I volunteer at a support group that we run from Southend Hospital. We have a coffee morning/support group on the first Saturday of every month. It’s all free. Anyone with any Gynae cancer diagnosis (no matter where or when) is welcome. We work in partnership with the Gynae oncology team there and often have a CNS at our coffee morning. It’s all peer to peer support, very informal and light hearted. Our members sometimes travel from the London boroughs in the east and Colchester in the north. We’re at copescharity.com

[bananayo]

Hi Emcee71

I’m not that close to you either (I’m South East London/Kent border) but would be happy if you wanted to message me/chat, my diagnosis was also clear cell (Dec 21).

Good luck with your chemo and hope all goes well with your first one xx

[candyapplegrey]

I'm like banahayo, live in SE London but also in Kent. Sidcup. Maybe too far to meet up? No longer have a car because of ULEZ. Would like to meet other ladies. Was diagnosed 2020. Have clear cell & endometrioid OC and had one recurrence.

[Emcee71]

I'd love to candyapplegrey . I'm only 1 chemo in (and it's not hit me yet, still on the steroids) but maybe we can time it so it works for all of us. I'm in Tonbridge so SE London is minutes away on the train.

We can msg each other. And bananayo !

[candyapplegrey in reply to Emcee71]

Hello Emcee, Are you also on Twitter as Emily Cee? I'm following you if so. Banana and I have already met and will do so again. And we'd love to meet you too. We are inclusive - you don't need to be named after a fruit to meet us. xx

[Emcee71 in reply to candyapplegrey]

Hello yes I am! I thought it was you!

Great please let me know when you two meet again as I'd love to join you thank you.

I have 2 more chemos to go (frontline) last one in 4 weeks time x