Leo 2327: Hi to all the ladies on this journey I... - My Ovacome

My Ovacome

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Leo 2327

Leo2327 profile image
15 Replies

Hi to all the ladies on this journey I am 3c ovarian cancer since May 2022 had 8 lots of chemo and debulking surgery and stoma then been on avastin for over a year last one next Friday and also take olaparib I am NED at the moment but I am suffering realy bad with hot sweats and tiredness is anyone else feel the same I do have anxiety I am 63 yrs old I just need some energy sending best wishes to you all

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Leo2327 profile image
Leo2327
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15 Replies
Morini profile image
Morini

Hi, I finished Avastin around April last year and I have found that tiredness has gradually reduced and my energy levels increased since stopping it. Hope you have a similar experience.

Leo2327 profile image
Leo2327 in reply to Morini

Thank you for your reply I will keep my fingers crossed that when my avastin that my energy will slowly come back have a lovely day Morini

Cheka123 profile image
Cheka123 in reply to Leo2327

what is avastin treatment

Leo2327 profile image
Leo2327 in reply to Cheka123

Avastin is a infusion ever 3 wks it's part of my maintenance program if you goggle ot it explains what it does

Cheka123 profile image
Cheka123 in reply to Leo2327

i did thanks

Wirralian profile image
Wirralian

Has HRT been discussed with you?

Leo2327 profile image
Leo2327 in reply to Wirralian

I was on hrt for alot of years before been diagnosed with ovarian cancer I had to stop it because it feeds my sort of cancer haven't been the same since they took me off it thank you for your reply

blackcat29 profile image
blackcat29

Ive just read your story an d though I have been through exactly the same am recovering quite well, do not seem to have your hot sweat symtoms but wanted to send you love and strength as this journey is not easy. Have you reduced the dosage of olaparib and are you taking vitamin D and C? Also is your B12 level good. This may cause excess tiredness.

Im doing gentle yoga every morning this may help you? Good luck from Blackcat29

Leo2327 profile image
Leo2327 in reply to blackcat29

Thank you for your reply the journey is realy hard cancer is always in the back of my mind the tiredness is terrible I have no go in me I do take vitamins but maybe worth getting my b12 checked thank you for your advice it means alot Blackcat29 xx

delia2 profile image
delia2

Hi. I felt the same as you on Olaparib and I did not have Avastin with it. I ended up on 300 mg a day but I still had fatigue and bad hot flashes. It was worth it though. The Olaparib got rid of the cancer I had remaining after chemo and I’m still ned a year after finishing it. Ask about a dose reduction.

Leo2327 profile image
Leo2327 in reply to delia2

Thank you for your reply I am taking 600mg a day and on avastin last one on Fri I get so down cause I have no energy I will ask when I go and see my consultant thank you take care

Leniko profile image
Leniko in reply to Leo2327

I was also thinking, some antidepressants can give mood improvement and energy.

PaumicB123 profile image
PaumicB123

Stay brave really feel for you good luck xx

Leniko profile image
Leniko

ask if you can be on a low dose of steroids. They helped me get through fatigue.

Leo2327 profile image
Leo2327 in reply to Leniko

Yes I will ask my consultant thank you for the reply xx

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