Carboplatin, caelyx.

[1821]

Hi I'm starting carboplatin & caelyx today due to 1st recurrence, I'm interested to know how others have found this, any tips etc., My last chemo I took steroids on the morning before infusion, that has not been mentioned this time so do we not take them. Thank you in advance for any help! And much love to all.

[Doglover1410]

hi, just finished a 2nd course of that combination and it was ok. I got a steroid injection before they started but none to take before. I found it quite tough on my hands and feet, they really dried out,peeled and cracked so lots of moisturiser. I used Aveeno (the blue one) and it really helped and relived the ‘pain’.

I found it harder the 2nd time round but the 1st time was ok. Bit of constipation (keep on top of that) bit of hair thinning, bit of tiredness but mostly ok.

Good luck with it xx

[1821 in reply to Doglover1410]

Many thanks for that info,, hopefully it will be ok for me as well, not looking forward to hand and feet carry on but, hay ho! we have to get on with it, I will get cream and try and keep on top of it.. sending you lots of well wishes! and here's hoping your 3rd round will be better than 2nd! Well at least we are going to be going through this together, I will let you know how things go and vise versa!

[Doglover1410 in reply to 1821]

sorry, meant I’ve just finished the course of 4! Got my appointment next week for bloods and chat, and already I’m stressing over it!

Hope you get on ok, like I said I’ve done 2 lots of it so I hope you have a repetitively easy ride too…..don’t forget the moisturiser! I’m not a ‘girly girly’ and was constantly being told off by him for not using it enough! Apparently it’s not such a good idea to leave it until your hands are sore and peeling, but rather use it from the start!! And I knew that and still thought I knew best!

Yes, keep me posted, sending hugs…..and moisturiser 🤣 xx

[1821 in reply to Doglover1410]

Well we never like to be told, do we! HaHa! Defo moisturizer! I will start before the cracks set in! I'm waiting to go in now! Here I go! x

[Doglover1410 in reply to 1821]

hope it’s going/has gone ok xx

[Caleda4]

Hi, I had carbo/ caelyx last year and had no steroids,which found ok. You have to be careful you don't get mouth ulcers, I only had a couple and managed with salt water rinse,mainly. Watch the soles of your feet& palm of hands, I used E45 cream everyday and never had a problem. Apart from those things I was fine. Good luck with your treatment.x

[1821 in reply to Caleda4]

Thank you for warning, I'm hoping it's an easy ride! but we just take whatever comes! Hope you are well! and chemo done it's work for you!I am having a lot of pain so hopefully chemo can kick that into touch! Best wishes sent to you x

[Caleda4]

Sorry you are in pain and I hope this chemo works for you. When I had it last year it was my 2nd recurrence, and I am still on watch and wait although there is slight progression. Fortunately I feel really well.Take care, have a good weekend x

[1821 in reply to Caleda4]

Thank you! I am so glad to hear you are doing well, it's such a hard place to be, we have to be thankful for the good days!

[SKpaints1]

hi sorry to read you have had a recurrence, my first recurrence was february last year, i took steroids on the day of chemo and two days after, i didn’t lose my hair but it thinned lots, i had skin irritation and very sore hands and feet (sore mouth to) the fatigue was tough, just rest as much as possible, also constipation can be an issue. Its doable, look after yourself. Im also in the UK. I’m doing ok now and on parp inhibitor called rucaparib… after a Rocky start things have settled and my last scan has shown all is stable, i feel very lucky, take care

[1821 in reply to SKpaints1]

How many sessions before you stated to see the side effects.. how much relief it must be to hear', all stable, so glad for you! And thank you for reply!

[SKpaints1 in reply to 1821]

by the second session, i was feeling the fatigue which got progressively worse.. around session 3/4sore joints and neuropathy problems (i has neuropathy on my first round of chemo so wasn’t surprised when i got it again) hope you will be ok..😊

[Ova-whelmed]

I have just finished that combination it was ok. After advice on here I used with udder cream on my feet. It's very thick and creamy and they do put on cows so glamourous it's not! But it worked. Also a big + point of carbo/caelyx was keeping my hair x

[1821 in reply to Ova-whelmed]

Udder cream? I'm definitely on line to get that I will try anything, thank you! Oh I hope my hair doesn't leave me, as it's just really started to come back, fingers crossed, I only had infusion yesterday and so far so good but it's a waiting game, I'm unsure as to how long side effects kick in.

[Ova-whelmed in reply to 1821]

I found it ok but I was quite tired with it I found with taxol I was very achy but none of that with caeylx. I think going through chemo for the 2nd time was psychologically tough but having finished the course I'm feeling stronger again. Good luck to you x

[mrstadpole]

I found it okay compared to the taxol. Coped quite well really. I was advised to wear the cold cap which I did, as I lost my hair first time round. Good luck and hope all goes well for you x

[1821 in reply to mrstadpole]

Thank you so much! Hope cold cap helped, I lost hair first time round, however, it is different chemo this time so here's hope I keep the hair I've got!

[delia2]

My experience was that I was fine the day after then the next day tired and nauseous and that lasted for six days then I was perfectly fine for the three weeks until the next infusion. I did have mouth sores but mostly tolerable. Also my platelets would tank midcycle but then recover in time for the next cycle.

[Kaitlinsmum]

Hi, I am experiencing 1st recurrence. I had 2 rounds of same combo as you. Was given the steroid tablet when I arrived for treatment then given 3 days worth to take at home afterwards. (Unfortunately during the third session I had a severe reaction to the carbo and it had to be stopped. Trying a single drug next. )Good luck with your treatment x

[1821 in reply to Kaitlinsmum]

Ahr sorry to hear you had a bad time! Hope it gets all sorted out! I was given steroids and anti nausea tablets on day of chemo then only one day of steroids, I felt so fatigued and a little sickly but it's my backpain giving me the most grief which I had before, I am moisturizing so fingers crossed everything goes well... Good luck!

[Sue-333]

I had this combination 8 years ago. I did have steroids each time and it did affect my skin; it was dry, and more sensitive to everything including more sensitive to the sun and to any pressure on it. However it probably depends on what your skin is like normally, I do have dry sensitive skin anyway so it may have affected it more because of that.I did get very fatigued for a week or so each time and also had acid reflux making the nausea carry on longer but doctor said it was caused by steroids so I took omeprazole and was fine after that.

Definitely use moisturiser, it does help! And I must say I don't regret a single minute, have been in remission for 8 years now so well worth whatever it brings. Wishing you the very best with it I'm sure you'll be fine xx

[1821 in reply to Sue-333]

Hi Sue! Ahr that is fantastic that you are 8 years on! Did you only have the one lot of chemo? I am having this as a reacurance, it is my second round of chemo my first time was a different combination.. which finished last August, so here's hoping it works as well for me! Thanks for hope! X

[Sue-333]

Hi there, it was my 3rd lot of chemo, first time round it was carboplatin on its own, the second time the same, so the carbo/caelyx combination was my third go....First time was 2007, then 2012 then the last one was 2014, never give up hope and believe that it will help and if it does then it's worth putting up with x

[1821 in reply to Sue-333]

Many thanks; ! Can I ask what stage you were, I was diagnosed 4b probably not a good starting point, as you say I will never lose hope! I'm so glad you are doing so well!!!!! x

[Sue-333 in reply to 1821]

I was stage 3c but have seen others on here stage 4 who did well..all the best for the rest of treatment. X