bladder cancer

[Beachesinsummer]

my partner has just been diagnosed with aggressive bladder cancer (I already have a rare type of cancer diagnosed in 2020 and now on watch and wait ) he has to have 3 months of intense chemo to start in next week or so .. and then bladder removal ,does anyone have any experience of using a bag ? Some great tips so I can help him through the chemo sessions ,side effects any thing really …such a worrying time and the waiting to start the journey isn’t helping ..we also have two children,one of which I’m a full time carer for , and he is self employed so it’s going to be a struggle financially

[Trickysite]

So sorry to hear you are going through all this. I think Ovacome for ovarian cancer may not be the right website on Health Unlocked. Is there one for bladder cancer? Macmillan should be a good resource. Best wishes, Emma x

[Tealpillow in reply to Trickysite]

I’m so sorry you are going through such a scary time! My father had bladder cancer and after three months of chemo and lots of “pee bags”( as my kids called them) he got better. He has a dark sense of humor and said having a colostomy bag (sorry if that is not the right term) was a relief because he was tired of getting up to pee all the time. I hope that you are able to find a routine and the support you need. I hope someone else can reply with tangible assistance

[Beachesinsummer in reply to Tealpillow]

sounds like your dad has a great look on life !! Xx

Thanks for reply xx

[OvacomeSupport Partner My Ovacome Team]

Hello Beachesinsummer

Thank you for your post. I'm sorry to hear you and your partner are experiencing such a worrying time. As our members explained, My Ovacome is a forum for those affected by ovarian cancer, so there may not be as much experience of urostomies (where urine drains into a bag).

The Urostomy Association has a lot of information and support on its website: urostomyassociation.org.uk/

There is also Action Bladder Cancer UK: actionbladdercanceruk.org/

Cancer Research UK have a lot of good information on their website on bladder cancer including lists of other organisations that can support you and your partner: cancerresearchuk.org/about-...

Macmillan have specialist financial advisors which you can access through their supportline on 0808 808 00 00 8am-8pm seven days a week. There is a lot of financial information on their website here: macmillan.org.uk/cancer-inf...

I hope this information is helpful.

Best wishes

Anna

Ovacome Support

[Walkforsanity]

Hi - so sorry to hear that both of you are suffering. I cannot speak about bladder cancer but I was diagnosed with PMP in August 2021 and had cytoreductive, debulking surgery in October 2021 at Basingstoke. I worked very hard to recover from the operation and had got back my level of fitness and was doing really well. Just recently I was diagnosed with a recurrence and have just started chemotherapy. Whilst the success rate of chemo is not great I am taking each cycle as it comes. Like you i have 2 teenagers both heading in to big exam years next year so we are trying to keep things as normal as possible so they can focus on their own lives. Happy to connect for support