Unexpected news

[Rosebine2]

Well I want to say goodbye to the forum and thank you all for your support over the past few years. My OC has spread to the brain and basically I have to face things. Ive been experiencing problems for a while which I thought were unconnected, but apparently not. I knew it would come back somewhere., but brain mets are apparently rare. Im doing this while I can still think and talk a bit of sense . I hope all you going through your own journeys get good results.

[AuntyOrange]

I'm so sad to read this. You've fought the good fight & you, your family & friends should be very proud of the way you've managed to stay strong during your journey. It has been a privilege to have "walked" with you. I hope the end of your journey brings you the peace you hope for. Sending love.

[Lyndy2]

Thank you Rosebine for sharing your time and thoughts with us. Yours is one of those voices that stands out for me, you have been quietly determined in the face of this horrible disease. I am so sorry you are now facing another twist of the knife.

I will be thinking of you and don’t feel you can’t join in again if you feel up to it but I totally understand that you want to wrap things up on your terms. Very brave lady! xx

[Sandramo]

Love thoughts and prayers winging your way. May you find strength to help you going forward . Xx

[Lovedogs41]

You are an amazingly brave and strong woman Rosebine2.

Thinking of you and sending much love,don’t give up,there is always hope ❤️xxx

[Katmal-UK]

Sending much love to a very strong lady x

[ruthg55]

Sending love x

[Bettyxxx]

sending you much love and support and i hope your forward journey is filled with both xxx

Love Diane

[panfield62]

So sorry to hear your news Rosebine. Love and prayers I send to you. God bless you. Gwen x

[Sarathecarer]

sending my prayers and love to a strong beautiful lady so upsetting reading this my prayers are with you xx

[0462County]

Sending you all my love and hugs Rosebine2.

Beth xxx

[Doglover1410]

sending love and hugs xx

[Loorunner]

Sending you much love to you- a strong and brave lady x

[Lizz49]

sending tons of love and hugs to you Xx 💖

[mrstadpole]

So sorry to hear this.Sending love to you .. xxx

[Shan67]

I am so very sorry to hear this too - it is such a cruel disease. My love, thoughts and prayers are with you and I hope you are surrounded by love from family and friends too xxx

[bananayo]

So sorry to read this, I’m thinking of you and sending love ❤️ and hugs 🤗 xx

[Lizzieanne]

I am so sorry to read this Rosebine. Can radiotherapy help at all. I ask this but am sure you will have looked at everything that could help. I send my love and prayers to you. Xxx

[Camelia1]

So sorry to hear your news Rosebine.

Sending you lots of love and thinking about you in my prayers x

[Jannibags]

❤️🤗🙏

[Morini]

Thank you for all your contribution and support. Thinking of you as you negotiate this difficult news xx

[Nus38]

Rosebine many a time I read your posts with interest and care for my fellow teal sister, I will sad not to read any more. It has been a privilege getting to know you through posts. My thoughts and prayers are with you. Sending you lots of love.

Nus xxx

[win_56]

I have messaged you. June xx

[Lilygums]

sorry to read this and my heart is sad. So glad you took the plunge and went on that cruise - a huge tonic for the system. Stay safe and please keep in touch if you need to reach out xx

[Trickysite]

Dear Rosebine, what an example of strength, courage and dignity you have given us all. Wishing you peace and May you be surrounded by love and support. Emma xx

[Maus123]

I'm sorry you had this kind of news. Still, I'm sending you strength and hope against odds that there may be another therapy or at least some more good time ahead for you. xx. Maus

[Caleda4]

Very sad to read your post, but you have certainly tried really hard and been positive throughout. I hope that you can keep going for longer than you think,as you certainly deserve it. Sending you a hug.x

[delia2]

Sending love and hugs. I hope you can have some quality time. Xx

[Catfeeder]

wishing you peace and calm x

[JulieP1986]

I am so sorry you have had to write this post. I wish you strength, peace and precious time with your loved ones. x

[Django123]

I'm so sorry to hear this sad news. Thank you for sharing your experiences and feelings with us. Peace and blessings to you and your family. --Lani

[Pianoplayer731021]

So sorry to read this Rosebine. Keeping you in my thoughts and prayers. Thankyou for sharing, Donna xx

[MOOKIE-FOX1234]

Sorry to hear this news Rosebine2 , this disease is like walking on eggs , never knowing where it is headed . I wish you well and hope that you receive loving care going forward . Your bravery is an inspiration to all of us , thank you !!

Gillian , Mookie Fox

[lesleysage]

Your courage to share is so very much appreciated. Take care and I sincerely hope you can enjoy all the days you have. Lxx

[Skyp]

Very sad to read rosebine. You sure are a courageousl lady. My thoughts are with you 💕xx

[Mommoo65]

Thank you for being a valuable member of this forum. I’ve learned so much and hope the rest of your journey is long and pain free. Hugs.

[RoseMS]

Sending my good thoughts and prayers to you. X

[Mrs_Thomas]

I will send you a prayer and my thoughts. I am so saddened to read of your story, thank you for sharing your journey with us and I hope you have support around you xxx

[Sashay2020]

I can’t find the words to express my sadness at hearing your news. I hope you feel the love, gratitude and respect being sent to you from your teal sisters and that the next steps on your path will be peaceful. ❤️

Sashay

[anna_z]

Sending you love and strength. I've said a little prayer for you. x

[Realistic]

You poor girl, feel so sad for you. Its so hard to say the right words. But send my love & hope SheilaFxxx

[Hidden]

I feel so sad to read this. You have always sounded like such a strong and kind lady. I wish you love on your journey, Marian xx

[Alfiepop]

How courageous of you to post a farewell Rosebine2.Thankyou for that.

May the next steps along your path be supported and accompanied with love and care

[Leniko]

sending Love and prayers! ❤️🙏

[Twink333]

Wishing you nothing but the best xx

[LesleyGB]

I am so, so sorry to hear this. Thank you for letting us know- you have been so brave and inspirational and I wish you all the very best x

[sonya50]

sending loads of love xx

[candyapplegrey]

Oh so sorry to hear this, Rosebine. I've always felt that we were in tandem as I think we ventured onto the forum at the same time and I've also thought we had the same type of OC and maybe even the same hospital. I am taking Granofen - which is a dog dewormer, in lieu of Fenbendazole. It has no proven track record with OC but is being trialled in US. Obviously I'm not a medic but am at the try-anything stage.

Anyway, it sounds like you're leaving Ovacome but I wondered what symptoms you've had - I'm getting occasional shooting pains in my head and sharp but spread out pains in my legs.

I pray, pray, pray that something can be done to help you. Are you on your own (with the dog)? Can I do anything to help?

Candy xx

[OvacomeSupport Partner My Ovacome Team in reply to candyapplegrey]

Hello Candy,

Thank you very much for your message and for sharing your experiences and kind support on this post.

I am sorry to read that you have been experiencing shooting pains in your head and pain in your legs. I can see that Annie has already messaged you about this on another post, but I hope that you are able to speak with your clinical team about this and that these symptoms resolve soon.

You mentioned in the post above that you have been taking Granofen which is a dog wormer. We encourage anyone who is considering taking complementary or alternative treatments to speak with their clinical team first to ensure that they are safe and will not interact with any ongoing cancer treatments. It is also important that they are aware should you experience any side effects. Your clinical team can also support you to understand if there is any evidence base behind complementary or alternative therapies. Cancer Research UK have some information about the safety of complementary and alternative therapies on their website and I will put a link to this here if you would like to read more: cancerresearchuk.org/about-...

The Ovacome support team are also always on hand to look up any information that may be helpful for you too, so please don’t hesitate to get in touch if there is every anything that we can help with.

Best wishes,

Cathryn

Ovacome Support

[SarahBa]

Sending you my love x

[KH59]

Very sorry to hear this. I communicated with you some time ago now, just before you had the op. Praying that you have plenty of support around you at this time. Take all of the help that is offered to you. People will be only too happy to help. Wishing you and your darling dog all the best. Thinking of you.

[quillette]

dear Rosebine2

This is really worrisome and sad.

Sharing this news must be so tough. Unfortunately I am learning about OC thru other peoples symptoms.

I am terminal w all the meaning that it has. But for others I always wish(ed) the best for road ahead.

I wish you quiet peace without pain

[Riverflo]

Sending love and best wishes to you for this tougher part of the journey. I hope it is comfortable and that you will still be able to write in sometimes or at least read in.All the best, Martine xx

[OvacomeSupport Partner My Ovacome Team]

Hello Rosebine2,

Thank you for your post and for sharing with the forum community. We hope that you have found the replies above supportive. I just wanted to message to remind you that the Ovacome support team are also here for you if there is ever anything that we can help with or if you would just like to talk things through. You can contact us by calling 0800 008 7054 or by emailing [e-mail] Monday – Friday 10am – 5pm.

Best wishes,

Cathryn

Ovacome- Support

[Petrolhead]

brave to post and brave to live with disease.

Fay

[Tulips66]

Hi Rosebine2, unfortunately nothing I say will change things for you, but I just wanted to thank you for the encouragement & advice you gave so many of us. Take care & big hugs Xx