Control after chemo stress again :(

[Inguc_is]

My mother had ovarian cancer in stage 2B in 2017.2021 may recurrence, now she has completed 7 courses of chemotherapy. her CA 125 from 230 dropped to 22.5 don't know if it's a good indicator or not, after the first chemo in 2017 her CA 125 was 12-14 and the average held it all years max was 18 but now it is 22.5. Tomorrow she goes to blood test and I have stress again, 4.11 ca 125 was 22.5, what to expect now? worried ... does anyone take any additional medications (non-chemical) recommended to mom mushrooms tablets Agaricus Blazei Murill do anyone have try?? Of course, this does not exempt from standard treatment, but for maintenance..

[Lyndy]

Unfortunately waiting for results is just really stressful! Your Mum has done really well so far…so there’s every reason to believe she will carry on that way. Don’t forget that one ca125 result on its own even between 18 and 22.5 doesn’t tell you much… it’s the direction of travel over several results: up down or stable that tells you what is going on with the disease.

Try if you can to enjoy your Mum’s recovery right now today and let go of what will happen tomorrow xx

[Inguc_is in reply to Lyndy]

Thank You! I hope for the best but last chemo finished with 22.5, i hope tomorrow will be the same number!!! That will be best present for Christmas

[Tillymint61 in reply to Inguc_is]

Sorry that your Mum and you are going through this. Remember that chemo carries on working on the body long after the treatment and that marker may well have carried on coming down since the blood test. X

[Inguc_is in reply to Tillymint61]

Thank You for your words! i belive that it will be same or smaller today evening when we will get results! that will be great present for this Christmas time!Wish you all the best!

[Inguc_is in reply to Lyndy]

Unfortunately ca 125 is up to 34.4 was 22.5 after 7th chemo :(((( i am so sad about this :((

[Tillymint61 in reply to Inguc_is]

We put so much into the marker but I have been told up to 35 is within normal range. However I understand your concern that it has risen. I believe inflammation can affect 125 marker and it's possible the covid vaccination can according to previous posts . You must be guided by your oncology team as to how they are interpreting it and what they advise. Xx

[Inguc_is in reply to Tillymint61]

They said need to check after 3 weeks and than more time after 3Weeks

To start do enything

[Tillymint61 in reply to Inguc_is]

There is a lot of waiting and seeing isn't there. It's very hard we just want action 'yesterday ' to ease our worrying heads. I suppose you have to put faith in the experts and try not to worry as they don't see the signs as needing 'urgent' attention yet. I hope you can get some respite from your worry over this latest development. X

[Realistic]

Bless you for looking out for your Mum, just brilliant CA125 is normal l believe up to 30 l believe some even say 35 ask her health professionals . Your Mum seems to be doingReally well try not to worry too much easier said than done l know but quality of life is very important and worrying all the time gets you stressed, but we all do it. Ive worried about everything if lm honest. But have decided life's for living so l try to enjoy life as much as l can

And l do this each and every day who knows what's around the corner for any of us.

Have a fabulous Christmas 🎄 with your darling Mum lost mine a long time to Lung cancer.

Treatments are getting better all the time, and giving us all hope for our future.

Love & hugs to you all SheilaFxxx

[Inguc_is in reply to Realistic]

Thank You! i hope for all the best will wait eveing! God bless You!

[Inguc_is in reply to Realistic]

Unfortunately ca 125 is up to 34.4 was 22.5 after 7th chemo :(((( i am so sad about this :((

[Realistic]

Yes l know what you mean l got my results today and mines gone to 21 from 9 so not good. I will get advice hopefully on Monday. Fingers crossed yet again 🙏 not going to let it spoil our wkend like lve said so many times lve spent too many hrs worrying about things just gets you stressedSometimes for no reason at all hopefully, your mums in my prayers.

Love & 🫂 hugs SheilaFxxx

[Inguc_is in reply to Realistic]

Ohhh how long time ago it was 9? My momsLast chemo

Was on 17.10 on 4.11 Ca 125 was 22.5 and now 34 :(( realy it is back? :(( her Erythrocyte sedimentation rate ESR is up to 59 norm is max 30 maybe that is reason… i dont know what to think :(((

[Realistic in reply to Inguc_is]

It was 9 six months ago, then my hospital said ld been 2 years NED so it was 6 months checks instead of 3 months. I felt this wasnt safe for me knowing how quickly my C.A 125 had gone from normal to the thousands. So spoke to my GP who said he'd check them in between so had test Sept and it had gone to 17 which l know is absolutely fine. So had more blood tests last week and its gone to 21. again l know its not high but would like to be reassured about it and although the appointment l had with my own GP who's marvellous as been cancelled because of the covid booster program l have to see another GP at my practice l never go to be honest so lm hoping to have as much faith in this Doctor. So fingerscrossed. Sending love SheilaFxxx

[SEckett in reply to Realistic]

Hi,

I hope everything goes ok with you and hope this new Doctor is as good as your normal one. Wishing you a happy and sending you lots of love and prayers. Sheenagh xx

[Realistic in reply to SEckett]

Thank you so much, yes l hope the Doctor as good as my normal Doctor l dont go very often to be honest. SheilaFxxx

[Inguc_is in reply to Realistic]

Good luck for you, mom willMake new blood test after new year

[Realistic]

Thank you so much, your mums lucky to have such a thoughtful daughter. Love SheilaFxxx