Rare birds.....not of the seasonal kind....

[Catfeeder]

Hello all

Hopefully the title hasn’t put you off....

I (zoom) dialled into a Rarer Cancer support group discussion last week, Thankyou Ovacome for organising this,....... and it got me wondering

how many on this forum are fellow epithelial endometriod ladies (rare birds 😊)?

Wishing you all a happy and safe festive time

K x

[Ruebacelle]

Ovarian whatever variety is viewed as rare.

[Catfeeder in reply to Ruebacelle]

Thanks Ruebacelle

[OvacomeSupport Partner My Ovacome Team]

Hello All

Thank you Catfeeder for your post and for mentioning the rarer cancers group. Hopefully there will be some more forum members with endometrioid ovarian cancer who will be in touch with you.

I just wanted to let anyone interested in the rarer cancers group know that the details are here: ovacome.org.uk/event/rarer-...

Ovarian cancer is a less common cancer, the majority of which is high grade serous ovarian cancer. Our rarer cancers group is for anyone who has been diagnosed with an ovarian cancer which is not high grade serous. This could be endometrioid as Catfeeder mentioned, also clear cell, germ cell, low grade, mucinous, granulosa cell, small cell or any other rarer ovarian cancer.

Please do get in touch with us on the supportline on 0800 008 7054 or email [e-mail] or direct message us through the forum if you have any questions about the group.

Best wishes

Anna

Ovacome Support

[Catfeeder in reply to OvacomeSupport]

Thanks Anna

[Coldethyl]

I have endometrioid ovarian cancer - diagnosed stage 3 in 2016 and currently in treatment for first recurrence - also had synchronous stage 1 uterine cancer

[Catfeeder in reply to Coldethyl]

Thankyou....good luck with your current treatment

[Coldethyl in reply to Catfeeder]

Thank you x

[candyapplegrey]

well i'm looking for anyone who has two rare types of OC (endometrioid and clear cell) and is undergoing treatment at the mo. i had no idea mine were unusual or more aggressive so was very shocked when it came back after only two months. cag x

[Catfeeder]

Hi Candyapplegrey, sorry to hear you have aggressive and two types of OC, I’m only 5 months from surgery and into 4 rounds of 6 chemo, stage 1c, burst tumour during surgery, hence the chemo. Good luck with next steps. X