Ovarian cancer stage four

[Madmolly]

Diagnosed today with the above how long have people lived after diagnosis even with chemo and op

Madmolly

[Lyndy]

Hi Molly

Really sorry to hear that ❤️. But if you see my update of yesterday- I am four and a bit years on from my stage 4 diagnosis and it hasn’t returned. Take one day at a time..there will be a lot going on for you over the next few months. You take care of yourself and let your team do the business with the cancer. All the very best xx

[Madmolly in reply to Lyndy]

Thanks Lyndy I don't know if my age will make a difference I am 72 although they stated I am a very fit 72 I also have clusters on my omentum and peritoneal

[Shorty864 in reply to Madmolly]

Dear Molly, I am 71 and have nodules in my peritoneal and still out gardening. Anne xx

[Lindaura]

When I first showed up full of disease (literally riddled with cancer) a pleural effusion that caused partial collapse of both lungs, ascites that crushed my tummy so I could not eat at all, they told me I was stage 4.

But ten days later, they downgraded me to stage 3, because the cancer was only concentrated in my abdomen, not in my lugs or lymph nodes, and happily, not inside ANY organs.

First Line Carbo/Taxol and thorough surgery totally destroyed all visible signs.

So, it did return, but I live to fight another day!

Be well,

Laura

[Madmolly in reply to Lindaura]

My brain is still trying to take in all the information I was given today and process it. They also talked about trials which are randomly selected by computor. Also steroids anti sickness drugs carbo taxol, blood transfusions. Tring to stay positive but feeling a bit drained. Tomorrow however is another day. Thank you for your positive story

[1916]

Evening Molly

I was told by my surgeon when I was diagnosed with stage 3 A , not to take too much notice of stages it can all respond to treatment in different ways.

We are all in this together and will help and support one another.

Sending you hugs

Ann xx

[Madmolly in reply to 1916]

Thank you for your kind words

[Madmolly]

Thank you Ann feel I will need the support as I progress

[1916 in reply to Madmolly]

Dear Molly

Anytime I can be of help xx

[LittleSan]

Just take life day by day and squeeze every bit of enjoyment that you can out of it. It's so difficult to compare yourself against other individuals and population statistics that it's not worth trying to. Treatments are improving all the time and there are folk on here that have not had a recurrence with stage 4. If you look at the statistics you'd think this was against the odds but why shouldn't you be one of the lucky ones? Worrying saps vital energy (albeit 100% natural) life's too precious to allow energy thieves in.

I'm over 8 years in at stage 3b. Yes, I've had recurrences but still feeling pretty well.

You'll still be reeling at the moment but honestly, life does assume a new normal fairly quickly.

You're not alone. This forum is a great support for sage advice and warm understanding.

Warmest wishes.

Sandra 💐😘

[Tesla_7US]

Madmoll, I am 4 years out from 3C and just finished chemo for 2nd recurrence. Going on Olaparib PARP soon. My dear friend managed stage 4 OC for over 12 years. Anything is possible. ❤🥳

[Hidden]

Hi Molly

I was diagnosed 3C in Nov 2011, at age 65 (now 73). Always been healthy - couldn't believe it'd happened to me. Had the usual bits removed & 6 months of chemo. Went straight into remission. It returned 18 months later. Six months more chemo and on a clinical trial of Avastin too; Avastin to continue indefinitely as long as there was no disease progression and no disabling side effects, and I stayed within the bounds of the trial. Now, 5 years later, I'm still on my feet & doing all I need. Still on 3-weekly Avastin. Both our children have married in that time and we now have a grandson almost a year old. We've just returned from a long-haul flight from America (to Australia) as our daughter & family now live there. Never believe you're a statistic.

I clearly remember what a shock it all was. As soon as you're able, tell yourself that you'll do your very best to stay on your feet (even if only for a short time each day) and never believe you're a victim. Best wishes. Pauline.

[Madmolly in reply to Hidden]

I will fully take on the wisdom of your words thank you

[citrine]

I was diagnosed with stage 4 after biopsy in 2011. I was 55 at the time. Had 3 cycles of chemo followed by surgery and another 3 cycles. No recurrence since then.

Wishing you the very best of luck ♥️Xx

[Madmolly in reply to citrine]

Thank you for the info

[Cropcrop]

I’m so sorry you’ve had this awful diagnosis, it’s scary for you to say the least.

My bestie chemo buddy was diagnosed stage 4, she had half the chemo, surgery and then the Second half of her chemo. She’s still here living her life and loving every day. I was diagnosed stage 1c3 clear cell around the same time and am still here too, I know other ladies diagnosed at various stages who are all still here. This is not necessarily a death sentence, it is really really scary but treatments are improving and knowledge is improving too so many prognosis’s are improving too.

We are here to help you along the way with this. Big hugs and love ❤️Xx Jane

[Madmolly in reply to Cropcrop]

Thank you for the positivity x

[Shorty864]

I am coming up to my 8th year - 4 years NED and since then 4 years of rumbling on with different chemos, Niraparib and now on Caelyx and Avastin. I consider myself one lucky lady. Off to London next week to the COC and a visit to the Royal Marsden.

Take care Madmolly and this is a wonderful site. Anne xxx

[Madmolly in reply to Shorty864]

Have a lovely time thank you

[Rowan66 in reply to Shorty864]

How did the COC go?x

[Shorty864 in reply to Rowan66]

Dear Rowan, Off on Monday, Tuesday I have the appointment - will let you know on return. Anne xx

[Rowan66 in reply to Shorty864]

Thankyou and hope it goes well xx

[Haeh]

Hi Molly, I was diagnosed Stage 4 March 2017, had chemo, surgery, chemo. That took most of 2017, but I was fine through the first lot of chemo, after the op it was a bit tougher. It came back in my groin (lymph node) and had an op to remove it January2018. It has come back again (another lymph node) and now I'm on Letrozole to stop it growing (since January this year) and working fine so far, keeping my fingers crossed. There are lots of options if the bast..d returns!

Look after yourself and don't push yourself too hard. Best wishes on your journey. xx

P.S. I didn't know whether I would see Christmas 2017, but here I am about to celebrate my 70th birthday next month.

[Madmolly in reply to Haeh]

Have a wonderful birthday you so deserve it and thanks

[Maxjor]

HI Molly--Stage 4 girl here. Diagnosed July 2016. It was so advanced when discovered I had to do neoadjuvant treatment--chemo/surgery/chemo and although they said there was too much to operate at the beginning, after the three cycles of chemo, the surgeon told us that he could not find any cancer when he went in for debulking. I was NED even before being done with the remaining chemo.

An oncologist I spoke with once, told me that for us Stage 4 ladies, its a roller coaster---lots of ups and downs and that for MANY years, this can be the case, while for some, they just stay up! I know at least a few Stage 4s who did not recur, others who found a maintenance drug that has kept them in remission for many many years (so far!), and others who did recur but with many years in between. Its a lot to swallow and you do deserve time to digest it all. I would just reinforce not to go on Mr. Google---the ladies on the site post relevant news or articles and there are other sources (in the U.S., there is a site like this called INSPIRE and it tends to be more scientific and about treatments, etc (along with support and just lovely lovely ladies) and I might suggest you join that one too for another perspective or more input. I love them both. So sorry you have to start this journey.

I started seeing a therapist after dealing with the personal ups and downs for awhile and she is hell bent on getting me to focus on the here and now and being in the present so I don't forget to enjoy each good day--of which there are many.

Hope to hear from you on this site with updates and more. oxoxxo Judy

[Madmolly in reply to Maxjor]

Thank you for sharing your story. Feel calmer this morning just felt quite drained with all the info yesterday. Think I will consider their trials although it is randomly selected by computer so I may not be one of them. Whatever happens I am ready for the battle of chemo op and chemo and have an army offamy and friends behind me. Thank you

[lewisriley1947]

Hi Molly, I was diagnosed 7 years ago at the age of 65 stage 4, despite 4 recurences thankfully still hear to tell the tail, I am currently on a parp inhibitor now 14 months so far so good sending good wishes your way x

[SuziTench1]

Hi Molly , sorry to hear your news, however since I was diagnosed dec16, ive had 3 reaccurance and now on Niraparib.. so far so good . I was 53yrs at the time of diagnosis. . I have never seen it as a death sentence but more of a life lesson , I appreciate everything around me . I challenge myself to get well after each regime and have done things that I wouldn't have done .. Music festivals, more holidays.. I have seen another grandchild being born .. My daughter and family have come to live near me .. I so happy for that as I see them daily. I have got married to the love of my life , so chin up lady , PMA works ..enjoy every thing. 😍😁😁😁😁 xx

[sticky3006]

Hi Madmolly. I'm sure this has hit you like a bus which it did me. Totally unexpected diagnosis, mother to a 12 and 16 yr old and one of those people who loves being alive and having fun. Only 50 at diagnosis. The shock is unbelievable but as the months go on and your life changes we learn to adjust and accept that this is our new life. As others say I have changed hugely as a person. I'm much calmer, patient and happy with my lot. Even this morning in the howling wind and rain I had a wonderful walk with our dog and just loved the fresh air, rain on my face and being blown around. Out of something so horrific also comes some positives as we look at life from a different angle. Sending you love and a hug, sticky3006 xx

[Madmolly in reply to sticky3006]

Thank you treatment not started yet but even before diagnosis I appreciated the smaller things in life. Every morning I would say its good to be alive. I will continue to enjoy😘