Just diagnosed

[Madmolly]

I have just been diagnosed with stage 3 ovarian cancer and am going for biopsy tomorrow I am then led to believe I will have three bouts of chemo followed by surgery then more chemo is anyone in the same poisition

[Tesla_7US]

Madmoll, read my bio. Dozens (tens of thousands globally) of women here began this odyssey just like you and me. I'm grateful to be here 4 years on enjoying a good quality of life. After your biopsy be sure to have your tumor tissue tested for mutations. It is not unusual to be germline (hereditary) BRCA negative but have acquired (somatic) BRCA+ mutation in your tumor tissue. VERY important to get those answers sooner than later. There are wonderful people in this group who share their experiences and understand the emotional demands of this disease. ❤😊💖🥰🧡😻💕💜💖💗

[Madmolly in reply to Tesla_7US]

Thank you I am sure sharing is going to be a great help to me

[Perthgirl]

Sorry you have had to join us on this forum but you sure have come to the right place! The ladies on here will answer all your questions and will be with you every step of the way. Wishing you all the very best on your journey 🌹

[Madmolly in reply to Perthgirl]

Thank you Peryhgirl

[mary1111]

How do they diagnose it with a biopsy these days? I couldn’t be fully diagnosed 7 years ago before having the surgery. I had full removal and was told I had stage 3c low grade ovarian. As it was low grade and I knew that chemo targets fast growing cells, I refused chemo. I have been well since then with occasional CT scans and yearly CA125 tests. So my advice is to do your own research so you can discuss the treatment of your body with the oncologist.

[Katmal-UK]

Hi Yep, diagnosed Stage 3 12 years ago this month, still here despite 2 recurrences, currently 6years 2 months NED (no evidence of disease) albeit on a trial drug. Don't write yourself off, there are loads of treatments out there with others coming along all the time (I've seen loads over the last 12 years). Wishing you well and sending a big hug. Kathy xx

[Madmolly in reply to Katmal-UK]

Your response has definitely given me hope. Thanks so much

[Madmolly in reply to Katmal-UK]

Thanks Kathy that's amazing

[Numi]

Hi - sorry you've had to join our club, but we're here to support you. I wasn't told my cancer was at least stage 3 when I had my biopsies nearly 4 years ago, but looking back it was obvious as the biopsy was from my omentum, which meant the cancer must have spread outside the ovaries. As a result of that, my surgeon recommended surgery first and then 6 rounds of chemo. After extensive surgery, which removed all visible traces of cancer, I got the staging and type from the histology - 3c high grade serous. I was offered genetic testing as this type is linked to BRCA mutations, and it turned out I have BRCA2. I recurred the year after my first treatments and had 6 more chemo, then on to Niraparib and am doing well and enjoying life.

I hope all goes well with you, but whatever the biopsy finds, there will always be someone on this site in a similar position who will understand and support you, but do ask about local support groups - smaller charities as well as the big names, as it can be invaluable to meet other women face to face. Either on here or elsewhere, you will be able to speak freely and share your concerns in a way not always possible with those close to you as you don't want to worry them further.

[Madmolly in reply to Numi]

Thank you for your words of encourament have already made contact with Maggie centre

[Lindaura]

Hi, Molly,

I am sure someone somewhere is going through what you are right now, but has not had the good fortune to discover this Ovacome Forum yet.

My specialist nurse, called a CNS, turned me onto Ovacome over two years ago now and it had been a great support.

Meanwhile, the biopsy is performed to make sure they know the exact origin of the cancer cells to truly confirm if it is Ovarian, cervical, epithelial or something else.

Good luck with your treatment.

Best wishes,

Laura

[win_56]

Hi,

I was diagnosed with stage 3C Serous OC last September. The spread was wide and gone to a lot of my organs. I had 3 rounds of taxo/carboplatin and then major surgery in January. Had a full hysterectomy, removal of omentum, lymph nodes, spleen, part of lower bowel and right diaphram, gall bladder. . 3 more rounds of chemo followed 4 weeks post surgery, felt really crap through it all. Then in May had scan and CA125 and was all clear!! M,y CA125 was 250 to start which was not particular high seeing that it had metastalised to other organs. It is now at 7, and I feel great. Going for my 2nd 3 monthly checks up next week. Post Surgery my surgeon was 99.9 said that he had removed all the cancer. I also had 3 blood transfusions and 4 magnesium fusions during chemo. Keep positive. I was braca1& 2 negative. I must admit when i was told it was advanced I really didnt think there was much hope but my husband kept saying don't you dare give up!!! He had bowel cancer 12 years ago and had op and 34 weeks of chemo and had the all clear. I know it's not easy, but stay positive, we are all with you every step of the way..you can do this!!!