Hello. I don’t post much by I read all of your posts everyday. Wondering is anyone had a similar experience.
I am in 2nd line treatment after being NED for 18 months. My ca125 has been rising or remained the same for the first 3 (every 3 weeks) treatments (900s) I am current half way though my carbo/taxol when suddenly the ca125 dropped to 420.
Great news but no one seems to know why all of a sudden it decided to kick it. Anyone have a similar story and have gotten to NED/remission after only 2 more treatments?
Written by
Kmastro
To view profiles and participate in discussions please or .
Hi Firstly great photo! Secondly I can say that I achieved remission/NED after my third cycle for my second recurrence, so yeas it happens. I did however complete all 6 cycles to make sure I gave myself the best chance of staying in remission (currently on a trial drug and so far currently 6 years 3 months NED). Best wishes, big hug. Kathy xx
Yes I had the same, CA125 dropped to near normal level after 2 cycles with recurrence. Like Kathy, I stuck with all 6 cycles, but it certainly made it mentally easier, knowing it was doing the job. (And also like you, read most posts but don't post myself). Best wishes x
I’m doing a second line of 4 Carboplatin for a recurrence after 27 months. I have grade 3 Serious carcinoma. I noticed my count going up and had not one but 2CT pet scans and an ultrasound that didn’t show anything but after a laparoscopic surgery it was confirmed that bastard was back. I’ve had two doses of carboplatin three weeks apart and my count has gone from 162 to 79 after the first dose and I’m hopeful it will drop even further for the second dose. My surgeon did tell me that sometimes it takes awhile for it to drop but I have not found that the case. I’m very lucky I respond well to the platinum drugs. I’m also relieved that I won’t be losing my hair this time not like last time with carbotaxol and having to do 18 consecutive weeks in a row. I must admit however, the fatigue after the second round has been awful. But now into the second week of respite I am starting to feel a little more human. I go to my naturopath every week and he gives me bio resonance treatment which works on strengthening my DNA the meridians and generally cleaning up the bad effects of the chemo. My bloods are normal and my immune system is very healthy. I always credit my naturopath with this and my oncologists just smiles at me. Apart from great fatigue and I have had neuropathy left in my feet from my first rounds I have had no other side-effects. Even during the 18 weeks I never had any mouth ulcers and I was able to control the nausea and to anyone who didn’t know me with my wig on I didn’t look sick. As a matter of fact people used to comment on how well I looked, not great for incurring any sympathy though, lol. When I read so many of the other women’s complications and problems I can only credit my ability to have withstood this onslaught of poison in my body so well with the use natural
therapies and herbs combined with traditional medicine. I’m very fortunate that my oncologist has no problem with me going to my naturopath and my surgeon is very much on board and believes that the combination only helps. I must admit for those few days when the fog of chemo is at its worst just to get up and get around is difficult but after that I do believe it’s necessary to put on your make up and do the best you can to be as normal as you can. I will not let this disease defeat me. With this said I am hoping to be in remission by my third treatment or at least have my count dropped to 40 or mid 30s. By my last treatment I hope to be down to 10 again. Best of luck for your return to remission and I know will both enjoy it when it happens.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
CA125 Rising Even with Chemo
CA125 Rising on Elahere
sharing my latest ca125 result
