Denise

[Frenchhouse3]

Hi there, I’ve been on Olaparib for three weeks now and so far have only experienced mild nausea. However, I do have a very watery mouth some days which is quite unpleasant. Does anyone else have this side effect and is there anything that helps alleviate it?

Denise

[Colman]

Hi Denise I have been on olaparib for nearly 3 weeks now. I have not had any side effects as of yet. I hope you get some answers.

Claire x

[Frenchhouse3 in reply to Colman]

Thank you Claire, I’m generally okay, just this mouth watering that is annoying. Hopefully, it’ll settle down at some point. I always panic and think it’s something sinister! I’ve not had the BRCA blood test yet ( still waiting ) but I did have a mutation in my tumour. Are you BRCA positive? I’m stage 3c.

Xxxxx

[Colman in reply to Frenchhouse3]

I'm braca neg. I'm on a trial called OCTOVA. I was on taxol for nine months to start finished that in july and had a couple of months off it but one of my tumours started to grow again so got switched to olaparib. Really hope it works. I'm 3c

Claire xx

[Frenchhouse3 in reply to Colman]

Hi Claire, wishing you all the best with the Olaparib, I read recently that there have been positive outcomes with it for people without the BRCA mutation or gene as well as those with it.

I read that you have a stoma? I have one too. How do you get on with yours? I really hated having one but it has saved my life, so I am very grateful. I do hope to have a reversal if I can.

Denise xxxxx

[Colman in reply to Frenchhouse3]

Hi Denise I am managing ok with the stoma now. I took me about a year to come to terms with it. I have just had to except that it is part of my life now. It dose restrict me as to were I go on holiday. I really wanted to go traveling round south east Asia again but I just couldn't do it with a stoma so we stick to europe now. They mentioned a revsal to me but I don't think it will happen im on my 3rd reacurrance. How long have you had yours?

Claire xx

[Frenchhouse3 in reply to Colman]

Hi Claire, I’ve only had it since September last year, so not long yet. The stoma nurses have been so supportive and kind but I still struggle mentally with it. I think I’m a bit of a wimp tbh!

I think I would stick mainly to holidaying in Europe now too.

I hope the Oliparib prevents any more reoccurrence for you; I’m sorry you’ve had three bouts, that’s very tough.

Denise xxxxx