Hi. My mum was diagnosed end 2013. 3cHGS. She had Carbo/Taxol which looked promising until a recurrence. Caelyx. Then Carbo/Taxol again. In June 2017 she had her final chemo and had been NED ever since. Her CA125 has been between 9-11. She had her latest six month blood test recently and the CA125 has risen to 44. She is due to see the oncologist on 25 Jan to discuss.
She had lung cancer last year and had five radiotherapies. She has been waiting weeks for the results. She was due to go to hospital today for the results but the consultant rang instead which saved a long journey. The results were OK which was such a relief.
Just hoping the rise in the CA125 is a blip. Has anyone else experienced a rise like this which has turned out to be OK?
Thanks.
Jane
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JanePW1965
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Hi Jane, hope your mum is doing ok and that this rise in her blood test is nothing to worry about. She has done amazing so far so fingers crossed all is good. Give her my best regards xxx
Hi Maggiemo. Keeping fingers crossed. I don't think 44 is high after six months. I have heard some ladies saying other factors can make it rise. Dr F is organising another scan and meeting her on 25 March. It was good to get clear results for the lung scan. She's doing pretty well otherwise. I'll pass on your best regards to her. Hope you are doing OK. Best wishes. Jane xx
hi Jane, I’ve had a slow but steady increase in my ca 125 numbers as well - from 10 (steady for three months after completing chemo) to 28 in the last test. My onco says it could be because of Avastin (which I’ve been on for the past one year), will wait for one more test in three weeks to decide if a scan is warranted. I’ve also read that starting treatment based on ca125 alone doesn’t have the best of outcomes. All the best to your mom!
Hi Kathy. Lovely to hear from you. Yes, lots of ups and downs. Lots of trips up and down the M6 for me!! Yes, hoping CA125 rise if a blip. It was really good news that the lung scan came back OK. I hope you are doing OK. Jane XX
sending best wishes to you and your mum. Since treatment my ca 125 has always been between 11 and 14. mine went to 32 once. I was re tested again a month later and it dropped back to 22 and the next one was normal for me. My onc thought I’d had some kind of inflammation. I was having bowel issues at the time. Let’s hope your mum’s reverts back - it can happen x x
Hi Diane. Interesting to hear about your CA125 levelling out after the rise. I'd heard that other issues can affect the results. It was a bit of a shock because it's been around 9 - 10 since she finished her third line chemo in June 2017. Sending best wishes. Jane xx
Hi Zena. Yes, waiting is awful isn't it. She had waited a couple of months for the lung Xray results but all OK so that was a relief. I think mum just thought no news was good news and it was. Anyway, hoping CA125 result is OK next time. Hope you are doing OK. Catch up soon. Love Jane xx
Hi Jane, I'm so very pleased about your mom's results. The radiotherapy seems to have done it's job. Try not to concentrate too much on the CA125 results and rely on the scans etc although I know its easier said than doneWishing your mom a happy, healthy life going forward. 😘😘. Xxx
Hi June. Yeah, the radiotherapy hit the spot thank goodness. She is meeting the oncologist on 25 March and he is going to organise another scan. The thing she dreads it them trying to get blood out of her. Her veins are really restricted and last time two young medical staff tried to put the needle in but both attempts were abortive. She was in so much pain. So, next time she and my sister are going to mention this and hopefully get somebody more experienced to take the blood sample! I'm heading down to see her on 26 March for a week and a half so really looking forward to that. Wishing you well. Keep me updated. Jane XXX 😘
Your mom is a trooper, and doing awesome. I would not be very concerned with the CA 125
it can be elevated for various reasons, and her body has been through so much. They will probably just monitor it unless it’s an upward trend. I wouldn’t worry about it.
I have been NED for 20months it’s not easy. I’m always on the edge too. My numbers used to be 11 and 12 every three months but once to go up to 38 which gave us all a scare, however they were back to 12 in three months
Thanks for your message. Interesting that your CA125 went up to 38 and then went back down. I'd heard it can be elevated for other reasons. I'll share your message with mum. Sending best wishes. Jane xx
yes I’ve had 3 rises in my annual CA125 test 2 were nothing the last was a reoccurrence after 6yrs. My prognosis is good with it being found early. I wish you and your Mum all the best x
Hi Sheena. You must have been disappointed to have a recurrence after six years. Mum had her recurrence quite quickly after finishing Carbo/Taxol. It all looked so positive so the recurrence came as such a shock. She had Caelyx for a while which kept the cancer steady but when it woke up again she had the Carbo/Taxol for a second time and it obviously zapped all the tumours. Wishing you all the best going forward. Jane xx
I’m glad the treatment was success for your Mum, long may it continue. I wasn’t that disappointed because so many other ladies I met weren’t as lucky as he to have 6 good years and it was 20yrs since I first had breast cancer. I think that’s pretty good going, I’ve had a lot longer than other ladies. I’ve lived to see my son grow up, get married and be a Daddy with a wonderful life. Being a Grandma is the best thing ever, my 3yr old Granddaughter loves pulling my wig off and giggles so much. It’s all worth it for those moments, like when she saw me bald for the first time. Telling my son “Grandma has your hair Daddy, she needs new hair!” 😂 This journey is what we make of it and I’ve made some good memories along the way which help me through the tough times xx
Yeah, it's the kind of thing where you have to live in stages isn't it. When mum was first diagnosed at end 2013 I thought that was it. Then she made it through first line chemo. But then the recurrence. It's certainly a roller coaster ride isn't it. At first I was scared to research the disease but then the longer it went on, the more I wanted to understand. This site has been such a comfort. I'm so glad you have achieved so many milestones that you may not have. Each birthday came and went and Mothers' Days, and I always thought, is this the last one? So we've celebrated each time. Looks like mum is going to make yet another Mothers' Day and we will celebrate with her. It does really make you appreciate life doesn't it. Best wishes and I hope you make lots more memories. XXX
I lost my Mum when I was 25yrs old and she was only 48, that changes a person and their outlook on life. I live everyday as if it’s my last, I go to concerts, on holidays and do stupid things with my son & his family. I don’t care who’s looking or even if they’re judging life’s too short. You enjoy yours to the fullest. All the best to you & your Mum xxx
Phew that's so young. My mum celebrated her 88th birthday in October. She is so positive and doesn't dwell on things. I admire her so much . I'm so looking forward to seeing her again at the end of March. I live over 200 miles away from her. Your philosophy on life is just great. I'm inspired. Keep living! XXX 😘
It’s 28yrs since my Mum died there wasn’t the treatment options Ava back then like now. You sound in a similar position to me, my son lives 300 miles away. I got to spend 5 days at Christmas with them, I’d not seen them in person since the end of July with isolating. I’m hoping to get a couple of days down there again before my next treatment plan starts, I’ll find out in the next couple of weeks.
You have an amazing time with your Mum in March, we have to make the most of every opportunity. You take care and lovely chatting xxx
Hi Jane , sending my best wishes and hoping that her CT scan will be alright. You sound like a wonderful daughter and your mom is blessed to have you in her life. Your photo of the two of you is so so cute. Please give your mom my best regards. Donna ( live in the U.S. )
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