Recurring Cancer cells

[Flower-Lover]

originally diagnosed with Stage1 clear cell ovarian cancer following full hysterectomy and appendectomy and removal of tumour on ovary in February 2020. I had 6 sessions of chemotherapy. Carboplatin/ Paxitaxol. Just over 12 months later a CT scan revealed cancer cells at the top of my omentum. 6 more sessions of chemotherapy and then chose to go onto Niraparib April2023 ( even thought the Bracha test revealed I didn’t have the gene), I had a dose of 200 taken daily at night. I had very few side effects and of those I had they were tolerable. I felt fit and well. All was ok until I started not sleeping very well, then I went into hospital for a Hernia repair ( due to the hysterectomy which had given me a lot of stomach and back pain ). I did not sleep at all for the 5 days admission. I went back onto Niraparib after the surgery and continued not sleeping. I had an horrendous episode because of this and ended up in hospital for 2 weeks as all my bloods had crashed. The decision was taken to stop the Niraparib February 2024. I am currently on no medication at all for the cancer and have 3 monthly CT scans. So far they have not revealed the presence of any further cancer cells. I feel fit, well and healthy. Attend various fitness classes, walk and have a healthy diet. I attend various cancer groups. There is a lot of support in the groups, insights, crafts, exercise class, craft class etc. all are beneficial and help me to support a positive, happy and healthy attitude to living with a cancer diagnosis. I don’t know what the future holds but I will cross that bridge when I come to it. I feel that keeping fit and a healthy diet helps in mind and body.

I hope this post helps someone .

Lots of love and hugs ❤️

Dahlia

[candyapplegrey]

Great to hear a positive story. Congrats! xx

[delia2]

Thanks for sharing your story. I’m glad you are doing so well and here’s hoping it continues for a long while.

[JustKBO]

hi there. I had Carboplatin in 2018 so like all things memory fades- that’s a positive! It did make my hair fall out but I didn’t care, just saw it as an experience and bought loads of beanies. I was lucky it worked for me. Of course it wasn’t nice at the time and partnered with Taxol I felt sick and had shin pains but I took all the meds they advised and concentrated on getting better. Oh yes nothing tasted nice, even water was like gutter water. All you can do is embrace it and listen to what your body tells you. Good luck 🤜🏼👊🏻💪🏻

[lesleysage]

Most of us post here when troubled or with queries, but I do think many of us appreciate hearing steady, coping stories as well. Thanks for sharing your positivity when experiencing tough patches too. Over my years of remission, I have many times reflected on how we each try to help our spirit cope with the crash-outs/‘fits of screaming hab-dabs’/‘hissy fits’ etc. etc. which happen in our bodies, so sharing this, Dahlia, helps confirms how we can ‘plod on’ with commitment to enjoy the life we have. Warmest wishes.

[JOY202452 in reply to lesleysage]

Yes much so.

[Ted26]

I was on Olaparib being BRCA1 positive and I have noticed that parp inhibitors cause or worsen pre-existing insomnia. I've been struggling with insomnia for 3 years now although I've stopped Olaparib in November 2023. I wish you all the best in the future and keep a positive mindset. I was just like you after I have finished my frontline chemo although I was diagnosed stage 3C hgsc BRCA1 positive but unfortunately, although I have exercised and had a balanced diet, my disease came back. Just finished my second protocol Carboplatin Caelyx and I still have some residual disease left. Radiotherapy or surgery (if possible) are my 2 options. I'm awaiting a response from my oncologist. Good luck and keep doing what you're doing to stay healthy x

[blackdhalia]

I had my first chemo Carboplatin and Pacitaxol on 28/01 for my mucinous adenocarcinoma of GI origin from my ovary My CT scan showed metastases in my liver ( just 3 small) and I will have bevacizumab added next chemo to stop blood supply being facilitated bu the mets.

I am now stage 4C and palliative care

I am advised this gives me a life expectancy of 18 months.

I have been referred to Liver surgeons for liver resection and possibly ablation of the mets by some type.

[JOY202452]

Dear Flowe_Lover,.

Thank you for your lovely note, it is so helpful. When I had my hysterectomy they removed my omentum. I have clear cell which can be chemo resistant and very aggressive apparently, so they removed any thing they could get away with.

So sorry to hear of your horrid blood episode but so glad things are better on that front and good luck with your upcoming treatment.

Will take your advice re cancer groups.

Once again, thank you for your reply.