Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for September 2022

Tests results

Good news, my actual oncologist rang me this morning to give me my results at first l thought its bad news not heard anything from him for 2 and a half years...

Good news, my actual oncologist rang me this morning to give me my results at ...

Realistic

•2 years ago

46 Replies

Hi everyone

I was diagnosed with ovarian cancer last June stage 3C. I had 4 lots of chemotherapy and avastin, then operation then 2 more chemotherapy’s then avastin which...

I was diagnosed with ovarian cancer last June stage 3C. I had 4 lots of chemothe...

SEckett

•2 years ago

20 Replies

Neck rash looks dark?

Hi guys, Slightly concerned about the neck rash I have. Except it’s no longer a rash since I haven’t itched it for like a month. It’s now a dark patch… It’s...

Hi guys, Slightly concerned about the neck rash I have. Except it’s no longer ...

anxious98

•2 years ago

5 Replies

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what is maintenance treatment?

Hi … first ever post so here goes … I was diagnosed with ovarian cancer 1st June this year, I’ve had surgery (full hysterectomy) and am now just about to have...

Hi … first ever post so here goes … I was diagnosed with ovarian cancer 1st June...

ZPW411

•2 years ago

7 Replies

Weekly Taxol with or without Immunotherapy trial

I was diagnosed in January 20I8, had the debulking surgery that same month, refused adjuvant chemo. as I was Stage 4b and preferred quality over quantity of...

I was diagnosed in January 20I8, had the debulking surgery that same month, ref...

bamboo89

•2 years ago

22 Replies

Bone Pain

I have just had my 1st Chemo sesduon last week Carbol/Taxol..... Wow The bone pain is brutal any suggestions much appreciated 🙈Thanks

I have just had my 1st Chemo sesduon last week Carbol/Taxol..... Wow The bone pa...

Beoony

•2 years ago

34 Replies

Frightend

hello im new here hopeing u lady s can give me some advice im postmenopausal ive ad ca125 which came back in normal range and nhs waiting time for a scan is 7...

hello im new here hopeing u lady s can give me some advice im postmenopausal ive...

Bambi133

•2 years ago

5 Replies

Bad news.

I've had an appointment with my oncologist today ,its left me reeling and my husband is a wreck , although we suspected it was going to be bad news . The...

I've had an appointment with my oncologist today ,its left me reeling and my hus...

fendweller

•2 years ago

73 Replies

Did you finish first line chemo for stage 3 or 4 ovarian, fallopian tube or primary peritoneal cancer between 20 Sept 2021 and 20 July 2022?

Good afternoon everyone, Did you finish first line chemo for stage 3 or 4 ovarian, fallopian tube or primary peritoneal cancer between 20 Sept 2021 and 20...

Good afternoon everyone, Did you finish first line chemo for stage 3 or 4 ovari...

OvacomeSupport

Partner•2 years ago

Be the first to reply

High eye pressure after finishing chemo

I am looking to hear if anybody else has experienced this please. At my recent eye test (last week - September 2022) my eye pressure was quite high and on...

I am looking to hear if anybody else has experienced this please. At my recen...

SarahBa

•2 years ago

2 Replies

Will a cold stop chemo?

Hello everyone. My first chemo is planned for Thursday but I’ve started with a bloody cold today (sniffles and sneezes, no temperature as yet) - do you think...

Hello everyone. My first chemo is planned for Thursday but I’ve started with a b...

OrdinarySoul

•2 years ago

6 Replies

Rotterdam Regimen

Hello wonderful Ladies out there Can anyone tell me how they tolerated the Modified Rotterdam Regimen please? Ive been offered it as last chance saloon...but...

Hello wonderful Ladies out there Can anyone tell me how they tolerated the Modi...

pants22

•2 years ago

16 Replies

Good News

Hello ladies, This is just to say that i saw my Oncologist yesterday,& he said that my CT scan results were very good. The lymph node that was the largest at...

Hello ladies, This is just to say that i saw my Oncologist yesterday,& he said ...

Caleda4

•2 years ago

44 Replies

Types of Ovarian Cancer

Hi lovely ladies, I've been on this site for quite a while and have never wanted to admit it but sometimes it's like reading a different language. What I...

Hi lovely ladies, I've been on this site for quite a while and have never wante...

ZenaJ

•2 years ago

36 Replies

Borderline serous tumour stage 3b

hi everyone, I’m new to this site/forum as I’m hoping others will be in a similar situation. I had a bilateral salpingo oophectomy in July as I had 2 large...

hi everyone, I’m new to this site/forum as I’m hoping others will be in a simila...

Missymoo74

•2 years ago

5 Replies

Ovacome support service closed Monday 19 September 2022

Hello All The Ovacome support service will be closed for the Queen's funeral on Monday 19 September 2022. We will reopen at 10am on Tuesday 20 September...

Hello All The Ovacome support service will be closed for the Queen's funeral ...

TheOvacomeTeam

Partner•2 years ago

Be the first to reply

a good day

I just wanted to share a lovely day, i woke ridiculously early and walked Betty my dog, what a fantastic morning dewey and fresh slightly wintery feel to the...

I just wanted to share a lovely day, i woke ridiculously early and walked Betty ...

Bettyxxx

•2 years ago

34 Replies

Radiotherapy on lymph node/posting problems

I am to have radiotherapy on a lymph node near my armpit. There is still low activity in some other lymph nodes but my oncologist would rather watch and wait...

I am to have radiotherapy on a lymph node near my armpit. There is still low ac...

Lizzieanne

•2 years ago

6 Replies

Good news

Hi, I had my third chemo session on Friday and I found out that my CA 125 numbers have dropped to 81, that’s after the first two rounds. I’m over the moon...

Hi, I had my third chemo session on Friday and I found out that my CA 125 number...

Tay100

•2 years ago

6 Replies

Low platelets

I'm currently on a course of 6 carbo taxol. I had my 2nd one 3 weeks ago. It hit me quite hard for the 1st week then I started to improve. A week later I had...

I'm currently on a course of 6 carbo taxol. I had my 2nd one 3 weeks ago. It hi...

Zelam

•2 years ago

7 Replies

Doxil and Avastin not working any other options please

Dear beautifull strong ladies Hope your day is nice.Today i am having very hard time normalising because my CA 125 keeps rising and just figured now its...

Dear beautifull strong ladies Hope your day is nice.Today i am having very ha...

GSML

•2 years ago

17 Replies

Surgery must haves?

Hi Ladies. I first want to say a huge thank you to everyone who posted on my last post. I appreciate you ladies taking time out of your day to offer well...

Hi Ladies. I first want to say a huge thank you to everyone who posted on my la...

kristinaapril

•2 years ago

7 Replies

Stomach pains taking Niraparib

Hi I am suffering with stomach pains taking Niraparib anyone else experience this? I am monitored every month and my CA125 has stayed 8 since finishing...

Hi I am suffering with stomach pains taking Niraparib anyone else experience t...

Jingles6

•2 years ago

3 Replies

diet advice post op!? Poop talk🙈

hiya ladies , Ok so had my op Wednesday were my intestine had to be taken to one side while lymph removed and then replaced and stitched up pubic bone to...

hiya ladies , Ok so had my op Wednesday were my intestine had to be taken to o...

Newbery3

•2 years ago

18 Replies

Uterine cancer

uterine cancer

Weeken

•2 years ago

2 Replies

Did you finish first line chemo for stage 3 or 4 ovarian, fallopian tube or primary peritoneal cancer between 14 Sept 2021 and 14 July 2022?

Good morning all Have you been diagnosed with stage 3 or 4 ovarian, primary peritoneal or fallopian tube cancer and did you have your last dose of first line...

Good morning all Have you been diagnosed with stage 3 or 4 ovarian, primary per...

OvacomeSupport

Partner•2 years ago

Be the first to reply

Overnight

I habe just had my first chemo session. But next week hoping to get a overnight away. Would it be ok to have a few drinks? All depending how i am feeling,...

I habe just had my first chemo session. But next week hoping to get a overnight ...

Beoony

•2 years ago

14 Replies

Thank you from sad and scared.

Thank you everyone for your replies and kindness , I haven't got the energy at the moment to thank you all individually, I've taken everything on board and...

Thank you everyone for your replies and kindness , I haven't got the energy at t...

fendweller

•2 years ago

16 Replies

12cm tumour fit through a Laporoscopy?

hi ladies 🙂 First post here so hope it's ok. I have a total hysterectomy booked in for next month. It was discussed with my consultant weeks ago that he...

hi ladies 🙂 First post here so hope it's ok. I have a total hysterectomy book...

Weeworrier

•2 years ago

10 Replies

How did you feel on the day of your treatment? Carbo/Taxol…

Hi, I’ve had my letter with my first appointment on for this week. I’m keen to get going but also it’s on the same day as my daughters school awards dinner...

Hi, I’ve had my letter with my first appointment on for this week. I’m keen to g...

OrdinarySoul

•2 years ago

41 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for September 2022

Tests results

Hi everyone

Neck rash looks dark?

what is maintenance treatment?

Weekly Taxol with or without Immunotherapy trial

Bone Pain

Frightend

Bad news.

Did you finish first line chemo for stage 3 or 4 ovarian, fallopian tube or primary peritoneal cancer between 20 Sept 2021 and 20 July 2022?

High eye pressure after finishing chemo

Will a cold stop chemo?

Rotterdam Regimen

Good News

Types of Ovarian Cancer

Borderline serous tumour stage 3b

Ovacome support service closed Monday 19 September 2022

a good day

Radiotherapy on lymph node/posting problems

Good news

Low platelets

Doxil and Avastin not working any other options please

Surgery must haves?

Stomach pains taking Niraparib

diet advice post op!? Poop talk🙈

Uterine cancer

Did you finish first line chemo for stage 3 or 4 ovarian, fallopian tube or primary peritoneal cancer between 14 Sept 2021 and 14 July 2022?

Overnight

Thank you from sad and scared.

12cm tumour fit through a Laporoscopy?

How did you feel on the day of your treatment? Carbo/Taxol…

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