Bone Pain

[Beoony]

I have just had my 1st Chemo sesduon last week Carbol/Taxol..... Wow The bone pain is brutal any suggestions much appreciated 🙈Thanks

[Lyndy2]

Don’t put up with pain Beoony, ask your team or gp for some heavy duty co codamol to get you through the next few days. x

[Beoony in reply to Lyndy2]

I'm waiting on Doctor calling me back drsuned with it Thank you 😊

[Caleda4]

Speak with your team, they may lessen the dose next time. You should not have to put up with that sort of pain.

[Beoony in reply to Caleda4]

Thanks will catch up with consultant as its not pleasant and makes me grumpy poor husband 😢

[Lovedogs41]

Hi I took Benadryl or loratadine tablets after researching and found it helped the pain,its awful isnt it? i checked with my oncologist who had not heard of this but he said it won’t do any harm.you need be taking it without any pauses.Hope it helps x

[Beoony in reply to Lovedogs41]

Thank you I did see that aswell. Will chat with consultant before next session so i am prepared X

[Beoony in reply to Lovedogs41]

It so is awful 🤞the meds Help X

[Lovedogs41]

Sorry also long soaks in epsom salt baths x

[Beoony in reply to Lovedogs41]

been living in bath with my bath pillow lol bliss X

[Tezzaa66]

i was prescribed codeine gives constipation but kept my pain under control only had to take it day after chemo for 4 days then i could cope x

[Beoony in reply to Tezzaa66]

Hi,

Thats what I got prescribed sending husband to pick up. Thank you 😊

[ZPW411]

hi … I feel your pain it is horrific! I had the same and spoke to my oncologist and he reduced one of the treatments by 20% for my next cycle. I still had pain but was no where near as bad! Good luck x

[Beoony in reply to ZPW411]

Aww hope you feel ok. Yeah its roigh Good Luck Xx

.

[ZPW411 in reply to Beoony]

you too hun x scary stuff x

[Realistic]

You poor girl, that's not right get help & advise straight away. They will be able to do something maybe dose needs tweaking they will sort you out. Hope you get sorted quickly love & hugs SheilaFxxx

[Beoony in reply to Realistic]

Thanks lovely on co codomol at the moment and so far so good. Will chat with the consultant xx

[A1r1t]

when I had my first dose of carbo/taxil I ended up in hospital because the pain was unbearable. My oncologist prescribed garbapentin tablets to take a week before my next treatment plus painkillers and it did the trick. Hope you get sorted. Xx

[Beoony in reply to A1r1t]

Thank you for your reply hope your well X

[Realistic]

Good girl obviously not the right dose for you. Hope your sorted very soon and you sound very positive which will help you a great deal. My love & prayers are with you. SheilaFxxx

[Beoony in reply to Realistic]

Thank you loely lady sending love and prayers right back at ya ❤️

[Beaugirl]

Hi Beoony

I had the same thing after carbo/ taxol and worked out it was the injection you take I think its 3 days post op filgastrim. Initially it was given in a single dose but my oncologist converted it to one dose over five days prob solved. The injection is to stimulate bone marrow. Hope this helps

Gail xxxxx

[Beoony in reply to Beaugirl]

Thanks Gail hope your well 😊

[candyapplegrey in reply to Beaugirl]

Yes. Me too. Filgrastim was the cause of mine and when I stopped taking it (after the course), the pain stopped too.

[Kblaisel]

It’s the injection ( in the US it’s called Neulastin) they give you to keep your white blood cells from tanking that’s the cause of the bone pain, since it stimulates the bone marrow to make more . Take Claritin 2 days before and 5 days after. It will help immensely.

[CastrolColours]

Do you tell your oncologist this, as this will be in an accumulative side effect. I believe it is the paclitaxel that causes this and they can reduce it slightly. I had this side-effect, I had pains in bones I didn’t even know I had! Particularly my legs.

Good luck with the rest of your treatment x

[Beoony in reply to CastrolColours]

Thank you hope your well X

[DianaPrince_]

Hey

I suffered with this too.

Painkillers took the edge off but mostly felt like I'd been steamrollered and then driven over by a bus.

I bought myself an electric blanket.

It helped.

That combined with painkillers and a hot bath worked to make me comfortable.

[Beoony in reply to DianaPrince_]

wow i just ordered an electri blanket last night hopefully it comes Tomorrow Thank you 😊

[Newbery3]

💯agree its the injections for white cells, i dread them more than chemo! Ive cut mine to 4 from 7 and that works for me. Good luck x

[Beoony in reply to Newbery3]

Thank you

[paulamma1]

ugh, so sorry, it SUCKS!!!!!

I took 800mg ibuprofen and 500 acetaminophen every 4 hours. Next chemo, start your pain regimen BEFORE the pain starts and don’t let up

I kept a written log of all drugs and a chemo journal.

I agree, no need to put up with pain. I wish I had been given a better heads up.

[Beoony in reply to paulamma1]

Thank you 😊

[bamboo89]

Were you given filgrastim to take via injection at home?

[Pianoplayer731021]

Hi, I had bone pain also after my first two chemos. Couldn’t hardly bend my knees. They lowered my dose and I felt much better. The lower dose was effective in fighting the cancer cells, so all was good. I have high grade epithelial and it was a fast spreader. Tell your dr. about your pain and they will work around things to make you more comfortable. Best wishes, Donna.